Equilibrium Issues

Equilibrium problem has improved some today. I have been eating small meals. New symptom, herx, issue for me and trying to sort it out.

Yes I am not sure what is causing it. Could be a herx but def something I have not experienced before. Thanks so much Trav. You are a constant source of support and encouragement to many.

Aw, golly gee shucks!! Thanks Barngurl!

Yes, I did have issues with it - I had a lot of issues with POTS and more - but it cleared up while using the herbs that I used for Lyme and Bart with acupuncture.

I have gotten lots of good information on POTS from Lyme disease from this page:www.lymeinfo.net/autonomic.html

Barngurl, the first time that I experienced equilibrium issues I thought I was going to die. One moment I was walking OK, the next I felt like I was on a boat in rough seas or trying to walk on a trampoline.

A year late I am still having issues. When I walk, I have to walk with my head down, focusing my eyesight a few feet ahead of me. If I look up while walking I get disoriented and lose my balance. I am OK driving, so this is weird.

The antibiotics have helped a lot but I still have symptoms, not as strong but they are still there. I also found that if I stay in bed late on weekends that the symptom is stronger. Something about my neck having pressure from the pillow that makes me lose my equilibrium when I get up and walk.

My ear, nose & throat doctor did a bunch of tests and found nothing. My ophthalmologist did a lot of tests too and all came back normal.

Something that you can try which sometimes helps is to lay in bed facing up and to have your head hang over the side. You then very, very slowly move your head to the left as much as you can and then very, very, very slowly rotate it to the right as far as you can go. This is called the Epley Maneuver and it seems to help some folks if their ear stones are out-of-place. When these stones/crystals are out-of-place people feel disorientation issues.

A natural herb that can help with this is Ginger.

Healing98 thank you Traveler you also. I appreciate the information. Trav I read the whole site and it was great. Was reading parts to my husband and it is highly interesting. Healing98 I had a bad day today and cut off all supplements and meds for the day. I feel slightly better but still off. You are so right this is one of those highly distressing symptom. I am supposed to be returning to work soon and this is going to make it very difficult.

Hey Trav...I took a ride and was fine later today. Sometimes just going out for a bit helps a lot. I also had a massage Fri and felt like crap since Sun. Dont know if that had something to do with it. Have never had any issues before. Im going to call doc in the am and see if I need to go in. I used to give myself little breaks in between meds to give my body a break and I will ask him again. As I said you really have to forge your own path with this disease. Many thanks to all of you, my personal support group. :)

Trav thanks for sharing your experience. In my worst moments I have learned a lot from others here who have suffered with similar issues. I had no idea about the delayed reaction. I will def remember that for the future. I think the disequilibrium is classic lyme. My son is also suffering from lyme and reminded me today, Mom sometimes you get worse before you get better. Hoping and praying. Many thnx...hugs :)

Thanks for sharing that with us!

TheWryter said...
Oh yes...poor balance is horrible! It's a symptom of both Lyme and Babesia. I think mine is moreso babesia. It's getting better (knock on wood) but when I am standing still...especially in a line or a check out I feel like I'm on a cruise ship that is on rocky waters.

LOL! Reading this reminded me suddenly of having to hold on to magazine racks, the counter or lean against something so that I wouldn't start rocking back and forth, feeling ready to topple over at any time!!! LOL! Not funny when you are still living with it, but now that I'm past it, it does give me a giggle!!!

Oh yes...PMS brings out the beast with Lyme and it's buddies! And yes Traveler I hold onto Jordan's stroller, a counter, table top, lean on walls, etc. It's not cute at all but it's passing and will go away.

Yeah I start the new supplements this weekend. I never start new stuff mid week since I work so if I don't feel well or even have a poop fest lol I'm in the comfort of my own home.

"poop fest" snicker, snicker!!!