After 3 1/2 weeks of H---

After 3 1/2 weeks of ...., I started to feel a bit better. I went to see the doc and she said I tested clear of lyme, though she wants to test me again in 3 weeks. However, since that time it has gotten REALLY bad. She said the die off can be bad. Is that rally what this is????

To back up....I started a new treatment. The awfulness started the beginning of the 2nd week of treatment. I did the in office treatment in the morning, saw my parents that afternoon (they are awesome and prayed for me. ) and by that evening I was in pain...everywhere!!! The next day I lost stability in my legs several times and it proceeded to get worse through the week. My doc was out of town and I just had to wait. After another week and a half of pain, losing control of my limbs I finally got to see her.

Like I said she muscle tested me for the lyme and I checked clear. She really thought the die off was the cause of my problems. She took me off the homeopathic lyme stuff but I stayed on everything else. That was a little over a week ago.

Friends, it's still been pretty bad. I'm exhausted. My joints hurt. At times it feels I'm weighed down with sand bags and just can't move. For the first time yesterday I had this feeling plus I couldn't speak. That was really scary. Since then I have felt I'm in a dream. Weird!

I made myself get on here today because you people give me so much hope and strength.

Oh, one thing to note...baths make it waaaaay worse. Hubby has picked me up a foot bath so I need to try that. Honestly I've been avoiding anything that I think is going to make it worse though. I'm trying not to stress about the holidays, but I have two Thanksgivings happening in my house this week. I'm sure that doesn't help.

I do so appreciate your love and support.

Traveler, you are such a dear. All good advice. Living-free we love you. Glad you came on today . I wish I had words of wisdom for you- right now I just have love and compassion for what you're going thru.

Hang in there ok? And let others help you. Rest and be patient with yourself...

Big hugs on top of travelers.

Xo
Sarah

One of the reasons I love this forum so much is the love and compassion that you all show each other!! I'm so glad that this forum is a place where this is cultivated as different members rotate through here. Thank you one and all!!!

Yes, try at least cutting back on the lemon juice in your water. You may want to try leaving it out completely to see how much you are being affected, then adding very small amounts back in to see if you can tolerate it. I know that I had to leave the lemon out of my water for a time. I was not a happy camper about that since I'm not a water drinker - but the muscle issues just got to be too much to deal with.

Have you ever done oil pulling? It's really easy and many people swear by it to help remove toxins. Using a healthy oil (like coconut I believe), you swish the oil in your mouth similar to when you use mouthwash. Some say that it should be done 1st thing in the morning. You can do a search on this site to find more information, as I know there have been several discussions on this here.

You mentioned your throat hurting. Can you tell me if it inside your throat or if it's on the outside, near the ears or a little more under your jaw? If so this is likely your lymph glands and they are full of toxins that is being filtered out of your blood. You should be sure you are detoxing before trying Lymph massages, but they can make a major difference.

Do you know how to do lymph massages? They are very gentle motions that will help release those toxins, helping you to feel better. But beware - they could create a herx, as they will release those toxins to be cleared by other organs. Again, you can do a search on this site for more information, as I know there have been many discussions on this here.

Can you have some of your guests bring a dish? It would cut down on your work load a lot if you can get enough of them to bring something!! And yes, let the kids help!!! Even if it's not perfect, many will still enjoy the fact that the kids did a certain amount of the work too!! Supervising them will likely be enough work for you! LOL!

Thanks for the hugs - I've had a tough few days myself, but with too many trips to the vet's office in this family, not these diseases as you all are still dealing with.

Be sure to tell your kids that we are all VERY proud of them for helping you so much!! Don't forget to have them help with the clean up too!!

Thanks so such for the hug!! I could use it!

Yeah, vet visits are no fun - fortunately, our little Jack Russell was okay, high ALT on her blood test, so she'll be starting on milk thistle!! LOL!!! Now I feel like a regular vet! We are taking care of our daughter's dog- who just had emergency bladder surgery, our little Jack Russell, and a cat that has an abscessed tooth/infection going on that I'm giving penicillin for! Plus different foods for some of them - I think I preferred it when I was just taking care of myself!!

"My throat burns on the inside. Mostly on the right side at my jaw, if that makes sense. Both my jaws and and ear ache. I also have quite a bit of pain down the sides of my neck, on the outside. Just below my collar bones are painful as well. Tonight I've had terrible stabbing pains just below my left jaw. Most of the time these areas are achy with pressure. Sometimes like a cramp though."

~I'm no doctor, but this sounds like besides a 'regular' sore throat (from sinus drainage?), you have your lymph glands 'clogging up' and a lymph massage could possibly be helpful. BUT remember, it will likely make you herx, but maybe only slightly if you are careful to not use hardly any pressure and only a very brief lymph massage?? You do need to get those toxins moving - my lymph glands would hurt sooo incredibly bad form this! I did lymph massages, but also had to use some kind of tincture that my doc made up to help them drain.

We are going to have a house full here for Thanksgiving weekend too, but it's only the one dinner and I always make others help!!!

Do be careful with yourself - remember, you really are ill despite what some docs may tell you!!

I too have made it through the Thanksgiving weekend now - but I'm exhausted!!! Ugh! LOL! Maybe I should have come to your house?? Giggle!

I'm just as bad! I had my Mom, daughter and step-daughter telling me it was time for me to sit down, that they had it under control! LOL! Then they threatened to sit on me if I didn't!! Giggle!

Do your absolute best to rest as much as you can until those parties get started - remember, even a power nap of 20 minutes can help!! We don't want you sliding backwards when you finally do sit down.

You could plan on doing just one morning of oil pulling to see how you react. On the other hand, if you feel you should wait - you are the best judge of where your body is right now!!

Whatever you do, I sure hope that you and your kids have a wonderful time with those birthday parties!!!

Oh believe me! My 'breakneck speed' is a lot slower than it used to be!! Of course just getting older doesn't help, but when combined with having had a very long term chronic infection that did some damage, it only makes it worse. That's no problem for my family though, they are so glad to just have me able to host a Thanksgiving dinner again - even if they do have to help out tremendously!!!

We've already begun plotting - uhm, I mean planning!! for Christmas dinner as it looks like I'll be hosting that too.

Most of my let down hit me yesterday, which is still a new experience for me. It used to take up to 3 days, and then I'd be confined to bed for a few days or so. I'm a bit goofier today, and my memory is no good at all, but I'm up and functioning!!! Woo HOo!!! Giggle!

Get the rest that you can. It's hard to juggle all of this with young ones in the house and not wanting them to miss out on things, but remember, they would much rather have you around to sit on the sidelines (if necessary) than for you to push until you can't even be there.

If i didn't have laughter, and the ability to laugh at myself, I would have been in sooo much trouble long ago!!! It's a good thing!!!

Okay, now you're just embarrassing me! LOL!

There are many days that I wish I didn't have the knowledge and understanding that I do!! LOL! It all comes simply because I've lived it - so I can't see "wasting" it by not sharing. Besides, I've been in the position that many visit at least once - scared. There is just no good reason for me to not reach out if there is any hope at all that I can ease someones fears....even a little. This is a very scary thing to go through!!

And my kids went through this as well as my hubby - so I can share what they have told me, and can look back and see that, yep! No one was actually damaged or hateful because I was sick and couldn't participate, or do some thing that I used to think was necessary.

Take Christmas for example. I have two young grandsons that I just adore. Two years ago, there was no way I could have put up our Christmas tree -even though I wanted to for the grandsons. So my other daughter (she has no kids) offered her help to get the tree up before they arrived. So it actually has made us a closer family!!! They all know they can call on me to do many things, but none of them expect me to do anything "all by myself".

And like you, laughter is how I cope. My Mom sent me a card once - it was supposed to be a little silly, as I hadn't been doing so well, but had so much truth to it that it is still pinned to the wall, right above my computer so I see it daily. It says:
"Blessed are we who can laugh at ourselves for we shall never cease to be amused".....and I am rarely not amused by most things!!

That's not awful - it's reality. Holidays are incredibly stressful for those who are chronically ill! Not only do we have to try to act as if nothing is wrong, run all over town (if we aren't house bound), and attend parties & get togethers we aren't up to attending, trying to make 'healthy choices' with foods that we shouldn't be eating, but we are feeling even worse due to the cold weather!

So please don't beat yourself up over being glad when they are over so that we can get back to the business of healing.

PS- This is a speech that I go from my daughter one year!!

And it's wonderful that your family is gathering around you at this time!! It's part of what families are for in my mind!

You're fun!!!