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Posted 11/27/2013 7:38 PM (GMT 0)
I just received a follow up CD57 panel and my number went from 78 down to 51. Isn't it supposed to go up? Does anyone know what it means when it decreases?

I'm feeling totally deflated right now...
Posted 11/27/2013 7:48 PM (GMT 0)
The latest studies show that a lot of lyme drs jumped on the CD 57 bandwagon a little bit too early. It can fluctuate widely throughout the day. Many have recovered that still have a low CD57. Try not to dwell on it too much Chitown!

~beth
Posted 11/27/2013 10:20 PM (GMT 0)
Agreed! I remember when everyone was saying that the CD57 was the test to get! I was upset over it, because I had read the actual reports on the test and it said that it was "a" tool to "help" determine the level of illness. Well, heck!! The symptoms and their severity tell us more!!! Not only that, but someone who had much more severe symptoms could have a higher CD57 # than someone who was hardly being impacted by symptoms.

So as Beth has said, try not to dwell on it - it fluctuates.
Posted 11/27/2013 11:54 PM (GMT 0)
These two ladies got it right. The CD57 test is not necessarily reliable as an indicator of how susceptible that a person is to the illness. My daughter had a low test reading of 29 almost 4 months ago, but she has been well for about 3.5 years. If her immune system was sickly and susceptible, how could she have been symptom-free and healthy for so long? How could she be competing in college in a D1 swimming program and be doing very well? Here is a link to my daughter's journey and the CD57 issue. I encourage you to read the entire blog to understand why the CD57 test is not necessarily reliable.

www.healingwell.com/community/default.aspx?f=30&m=2865045

Please don't feel "deflated" right now. I understand how you feel, and I've been in your shoes. However, things aren't always as they seem! Relax and smell the roses!

Don

Post Edited By Moderator (Traveler) : 11/28/2013 8:48:30 AM (GMT-7)

Posted 11/28/2013 4:02 AM (GMT 0)
Hi Don,

I am not sure what is wrong with my computer….as I am not that literate :( I can't seem to get the link for your daughter's journey but I am interested in it.

Please help :)

Thanks
Pure Green
Posted 11/28/2013 4:37 AM (GMT 0)
Hi puregreen,

I'm sure that your computer operates fine. The problemm is that I didn't provide these links as hyperlinks, because I don't know how to make a hyperlink. Here is what you can do:

1.) place your mouse's cursor over the first character in the link that I have provided
2.) click the left button on your mouse, and while keeping it depressed, drag to the right, and stop when it is over the last character in the link
3) then place the cursor on the highlighted link and click the right hand button on your mouse which will open a small window
4) then click "open link" with the left hand button on your mouse
5.) The link will open up to the article (blog) that I have intended for you to read.

Let me know if there are any problems.

Don
Posted 11/28/2013 4:20 PM (GMT 0)
Hi Don!! Thank you so much for taking the time to come back and to continue helping out here!! It's greatly appreciated!!

I went into your post and made that link a hyperlink. If you ever have some time, you might want to consider going into your profile, go to edit profile, and down near the bottom of that page, you can put that link into your "signature line". When you do, just be sure to put this set of parenthesis around it - [] and the letters url in the first set of parenthesis at the start of the link and then the same set of parenthesis - []- and /url in the second set at the end of the link.

Was I able to make that as clear as mud? turn Giggle!!
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