My first LLMD visit!

Finally someone acknowledged Lyme exists! I had a 2 hour visit to go over a lot of things. Thankfully this forum had prepared me and lead me to do a ton of research so I was able to go in prepared. I brought in a one page summary sheet of all the supplements I'm taking with a lot of the ideas coming from here and he liked a lot of them.

I will be going on three different medications: minocycline, plaquenil, and azithromycin. In addition, I will continue taking a multivitamin, vitamin c, vitamin D3, probiotics, olive leaf extract (my own research), glutathione, vitamin b complex, green vibrance, and neuro-antitox II basic (detoxification drops). In addition, he recommended I take CoQ10, Mycofend (boost immune function), NT factor energy (mitochondrial formula). I also have purchased and have on standby coffee enemas and alka seltzer gold. For sleep he recommended phosphatidylserine (manage cortisol levels).

He said I had Lyme based on a clinical diagnosis. I was a little disappointed my Lyme blood work couldn't be explained to me even (he hasn't heard of the C6 peptide test). Although I know we discussed it here on this forum a few times.

The next steps for me is to do a cortisol saliva test to check my levels. Also, I will be getting a co-infection panel done. I was a little disappointed again (sorry I'm just a particular person!) that he wants me to get this blood work done at a typical laboratory Labcorp. I even brought my Igenex kit with me and had all the paperwork filled out. Oh well I guess I saved a few hundred bucks. But either way, co-infections blood work have notoriously low sensitivities so I'm not expecting much from this additional blood work. Also checking on vitamin D levels, heavy metals, and magnesium.

My only question for the moment is: What are your thoughts about the three medications I'm going to be taking?

Thanks!

Glad you had a good doc visit! Keep getting better!

It sounds like you had a good appointment overall. It's good you learned a lot on you own too. I hope you will improve a lot. It helps that you haven't had it a long time compared to many on here. Hopefully you'll tolerate the drugs and be able to progress. I wish you the best!

cppoly, I'm so very happy that your had your first visit, and it seems to have gone really well. Are you seeing the LLMD I referred you to?

I had all of my labs for Lyme and company done prior to seeing him, they were ordered by my Naturopathic doc, she wanted me armed and ready when I went to see him.

As far as the meds go.... I'm on the minocycline and plaquenil. The only issues I had with the minocycline was dizziness, it's still there, but not as bad as it was when I first started it. I haven't had any adverse reactions to the plaquenil. And on Feb 8, I will be dropping the Biaxan and switching to Azithromycin, pulsing Tindamax 2 days per week.

I take a potent probiotic, as well as drinking kefir every morning, to help protect my stomach, and I think it's working, because (knock on wood) as of yet, I haven't had any GI issues.

These are all strong medicines and have different effects on different people. So be mindful of your body and listen to it. Refer back to the New to Lyme thread and DETOX! I use Water with lemon, and burbur. I was taking the baths, but our tub is out of commission and we only have a shower right now.

Good luck and keep on keeping us updated!!!

Glad you stuck out the weather! And really no thank you is necessary. He is an awesome Doc, very compassionate for his Lyme patients. I love that he takes his time, and is so thorough!

I like him so much my 2.5 hour drive to my appointments is nothing! I can't wait until my next one. While it's scary hearing some of what he has to say, I take comfort in the fact that I'm in good hands, between him and my LLND.