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Posted 1/25/2014 8:08 AM (GMT 0)
Hi everyone,

I received my results yesterday, and they were IgG 41 positive and IgM 39 positive. I also had a few IND bands Igm. Do you think this means an overall positive for Lyme disease? Would a US dr treat this, as I'm not sure a UK one will :(

Thanks x
Posted 1/25/2014 9:03 AM (GMT 0)
sounds just like my results so I will presume the overall result on the report was negative. My primary Dr decided it was negative and started down another path. I wrote a letter to her and talked with her asking her to consult with LLMD (since I could not get in to see the LLMD for months). She agreed even though she said she would not treat me if I had lyme. After the consult my primary agreed to start treatment with the understanding that I am going to see the LLMD.

How many INDs did you have? It would be helpful if you would post all your IGG IGM positve and IND results since certain bands are lyme specific and likely impact conclusions. If yo have lyme a regular US Dr probably not useful. Recommend finding an ILADS LLMD. I think there would be lyme literate drs in Europe which I think would be closer to you and there are those that believe the strains are different in UK/Europe than US (I dont know how valid this is). Where do you think you contracted lyme?
Posted 1/25/2014 9:14 AM (GMT 0)
According to guidelines, it was negative. But was told that band 39 is very specific to Lyme disease, and that it means I have been exposed to the bacteria? I'll check the report to see the IND bands. From memory the IND bands, were bacteria strains known to Europe, which would make perfect sense!!

I consider myself lucky (touch wood), that I'm functioning quite well compared to most. Just lots of niggling, horrible symptoms!
Posted 1/25/2014 5:16 PM (GMT 0)
That's correct - you can't have antibodies to the bacteria unless the bacteria is in you - and band 39 is specific to Lyme. It actually indicates BmpA (Bacterial membrane protein A).

I'm afraid only some US doctors would treat with these results - even though they are positive. We seem to be getting some docs that call themselves LLMD's but they really haven't gone through the training from ILADS or practice by their guidelines (not talking about Holistic docs here, only allopathic docs), and they not only won't recognize positive test results, but won't prescribe meds as ILADS standards dictate.
Posted 1/25/2014 6:35 PM (GMT 0)
Thanks Traveler.

Unfortunately that's what I was expecting. I'm hoping my GP will see sense and clinically diagnose me, as I have a few IND bands also.

To be honest, I didn't relish the thought of pumping my body with antibiotics, although I appreciate they have their place. What do I do now? Would you start herbal treatment? May I ask what protocol you used??

Thanks
Posted 1/25/2014 6:53 PM (GMT 0)
Welcome to the forum! I sure hope you can find a doctor that will test you correctly. I think there are a few members from your area, so hopefully they'll respond.
Posted 1/25/2014 7:05 PM (GMT 0)
Personally, I like how herbs work with the body rather than like abx, which just kills things (LOL!).

Unfortunately, it's not likely that your GP will be willing to do much - they don't want to get caught in the middle of a very highly political fight.

Depending on where in the UK you are, we have a couple of members here that may be able to share with you which doctor they are seeing, or of course, you can use herbs and treat Holistically.

I used a protocol that's not well-known, but it worked for me. I used the "Chronic Tonic" that can be found on this site: www.mistymeadows.org/wendy.htm

Go to the tile marked "Lyme disease: A Practitioners Experience and Discovery" in that pdf, go to page 78 (or is it 77???) and you can see the herbs that I used. My practitioner had me make the tea differently though - same herbs in the same amount, just the prep was different. I'm 2 years post treatment for Lyme.

I used Houyttunia alone for my Bartonella infection and it worked well for me. I'm 2 years post treatment for Bartonella.

For my Babesia treatment, we were using all kinds of herbs and acupuncture to try to get it under control, so I'm not sure what actually worked - but I'm 1 year post treatment for Babesia now.

Many here are using either Cowden's (www.nutramedix.ec/ns/lyme-protocol) protocol or Buhners (buhnerhealinglyme.com/) and are having good improvements as well.

No matter what route your choose to use for treatment, I would suggest that you get started now with detoxing and getting your diet as "clean" as possible, drinking at least 64 ounces of lemon water a day - unless you have issues with muscle cramps, spasms, or twitches - the lemon increases these in many people.
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