You have had Lyme D. for 40 years

awww, thank you, Berean!! It was fight or die - and I just wasn't ready to die yet, and I had no desire to continue to live with those symptoms - so it was time to take it on as if healing were my job.

I can honestly tell you that I just don't sleep well when I know another member is suffering badly - especially if I have some knowledge that I can share that has the potential to help them ease their situation somehow. Being a Mod here has grown on me - I actually didn't want the job at first, but it was either take the position or the forum was going to be without a Moderator. That was back in the "good ole days" (LOL!) when we only needed one Moderator.

We have a handful of wonderful people moderating now, and with the help of other members who contribute (and there are quite a few!!), we have quite a wonderful community here, I think! and we know that I'm not partial! Giggle!!

Thank you for all of your contributions to the conversations here - it takes all of us to make this a wonderful forum to be a part of!

Never a problem, Simela. I know that there is no way everyone can read every post I've ever made!! LOL!!

Yes, I believe that my seizures were brought on by the high toxin load I had at that time, and months of detoxing seemed to be what stopped them, since I was doing nothing but detoxing during that time - all treatments had been stopped. It was a horribly scary time of my life. I had even called my kids and told them they needed to come see me, and we had that "when I die" talk, because I thought it was that close. It might have been too, had I not had the information on this forum, and one member - Deejavu - who helped me figure out how to get my body detoxing.

So keep asking questions that you need and if I can help, I will!!

And thank you so much for your kind words -and I hope that everyone in your house finds their healing as well.

I'm so sorry, Bellyfull!!! When you remember your question, please just get it out first!! Or write it down so that you can remember it once you say a few other things.

We will be here to help you as much as we can when you are ready!

I think any of us with lots of pain completely understand that sometimes if we can just distract ourselves from the pain, it would help!!!

So to start a new thread - which is what I think you should do - you can click on the 'button' that says +Post New Topic that will open a new window in the place of this one.

Place your link in there. To make it a hyper link (clickable link), you just place the letters url (all lower case) surrounded by these brackets []. At the end of the link place the same brackets around this: /url

Or tell me and I'll do it for you!! I can post your link or I can just make the link "clickable" - your choice and only if you need me to. It's kind of what I'm here for!

If I were to post the link for you, you could then come in and explain it in the next post!! But as I said, it's strictly your choice. While I was fighting these infections, some days it was next to impossible for me to remember how to do that!

Way to go!!! It's the little things we learn to do to help us cope that mean a lot!!

And please do let me know if I can be of help.

Hi Tiomasviatoy!!!
Welcome to our community!!

Now you've made me nervous! LOL!! My story is being actively discussed?

I'm so very happy that it gives any one hope, as it should. I thought I was doomed to a life trying to live with these debilitating infections, but I managed to find my healing.

What I meant was that I got another tick bite, started having symptoms again, panicked (LOL!) and started back into treatment using the same herbs again. I'm happy to report that I stopped treatment 104 days ago (still counting the days! LOL!) and have yet to have any symptoms return.

I've also had 6 more ticks attach just this year, and so far all I've had to do was increase my dose of astragalus from 1,000 mgs to 3,000 mgs a day to keep from getting any Lyme symptoms. I just got bit again (ARrrg!) two days ago, so I will continue to use the higher dose of astragalus for another month - and hope that I don't get any more ticks!

Please feel free to email me personally (click the blue envelop under my screen name) or we can continue to talk here on the forum - whatever you would be more comfortable with.

And thank you for writing! My goal is to help anyone I can get through this mess.

Hi Lyme Mother!
I'm so sorry, I'm not really sure what all herbs were used, but they were specific to my own body weaknesses at that point. I know that I had to literally scare my doc into taking me on as a patient though! LOL! She was afraid to do much because she felt I was too close to an Addisonian crisis and she felt it would be best for me to check myself into a hospital. So I just explained that with Lyme disease that was the worst place for me to go - no matter what else was happening, so I would just go home. That's when she conceded and started my treatment that day. It was not an intentional thing on my part, but I knew better than to go to the local hospital.

For #2 - have you seen this thread? I broke it down into the amounts I used to help those who the instructions didn't make much sense.
www.healingwell.com/community/default.aspx?f=30&m=3244272

And please feel free to ask me all the questions you need to about this!!

LOL! Sebreg!! Thank you, but seriously, where else would accept crazy little ole me???? Giggle! I have some pretty strong opinions about doctors and these infections, you know!!

LOL! It's no problem, LymeMother!! Did you see that you can subscribe to each thread you wish to follow and you will get an email notification when someone posts in that thread? If you have any problems with it, please do let me know, I think I can be of help.

And there really are no stupid questions. If you don't know, you don't know and we would much rather you ask than to assume. These are medical treatments, it's important to get them correct for them to work well.

So to answer your question, it would actually depend on what protocol you are doing. To make the Chronic Tonic, you would be using the whole herb or what is sometimes known as "cut/sifted" herb - but they are not powders, and it's done by weight, not tsp or tablespoons.

Buhner's protocol is done with either tinctures or encapsulated powders.

So when you do decide what you will use, if you would share what you have chosen, we can offer more guidance. Or if you are trying to compare them for some reason, let us know which ones you are comparing and we can likely help you!!

LOL! Thank you Keylyme! I do this because (a) I can't stand the thought of anyone suffering through this alone and scared out of their wits! And (b) because when I had healed using herbs only, they still weren't recognized as being strong enough (HA!) to deal with the most complicated cases of Lyme. Well, if being infected for over 40 years and having every single symptom of Lyme (almost- no serious heart issues), Bart and Babesia isn't complicated, then I don't know what would be!! LOL!

So my original intention was to stay to help let those that can't tolerate abx for some reason, that they still had a chance to heal. Now that's not needed so much, but it kind of helps make up for losing 40 years of my life, and all that it entails, to these infections.

So in reality, you all are part of my therapy!!! LOL!!!

Maybe I need to be thanking all of you?!?! Giggle!!

Traveler,

Thank you so much for sharing your story, it truly gives those of us starting on this difficult journey hope and we all know how very important that is.

One question, I know you also have/had POTS. Did either that or the Lyme flare after you started acupuncture? I'm considering adding it.

Thank you.

LimeyLyme said...
Traveler,

Thank you so much for sharing your story, it truly gives those of us starting on this difficult journey hope and we all know how very important that is.

One question, I know you also have/had POTS. Did either that or the Lyme flare after you started acupuncture? I'm considering adding it.

Thank you.

When I started using acupuncture, everything flared, but that's because we were bringing my immune system back on line and getting my detoxing pathways functioning better (so I had more toxins moving through my organs, which they weren't real happy about at first), and trying to support my organs and their functions, which is something that needed to happen, but at first it was like it only served to piss everything off! LOL! Fortunately, I had a very gifted and intuitive acupuncture therapist that knew how to calm my body very quickly. I always felt better when I got off the table than when I first laid down, but the real work was helping my body detox when I got home.

When I first started going for those appt's, it was a 45 minute drive and my husband had to drive as I simply couldn't stay awake that long. I was always exhausted and we were going once a week for the first two months (approx), then we backed down to only going twice a month. The transition wasn't easy for my body to adapt to, as it liked the extra help, but I still agree that it was time. I am still amazed that I was told by everyone when I was trying to use abx that it would take me 10 or more years to heal, and yet when I treated with herbs, I was only in treatment for 2.5 years, and this includes the first 6 months of nothing but work to get my body detoxing and the organs/systems balanced back out.

But, I can't deny the struggles that I had while healing. They were difficult to get through - and I don't say that lightly. I had horrible pregnancies and deliveries of my 2 children, and yet that was nothing compare to what I had to go through to heal Lyme and company. None of this is easy and is likely the hardest thing any of us has had to get through if you have chronic Lyme with co-infections.

That's where this forum, and others like it, come in. Come here to get understanding of your struggles (we've been there too!), to get ideas on how to help yourself not suffer so much as you go through this (there are some very inventive people here!), and for our cheerleading efforts!! We make good cheerleaders!!

Annette (PetZa), we are so very happy that you have found us too! I wouldn't have made it through the things that I did without the support of those there were on this site back in 2007 - 2012 when I was trying to treat these infections.

I am so very happy that you did finally realize that this wasn't a 40 yr sentence for everyone!! But I do wish you would have emailed me so I could help calm your fears!! LOL! I'm so very sorry!!

And thank you for your kind words. I love my "job" here, and have received as much as I have given and more, not to mention all the wonderful people I've been able to meet!

And I find that we all need something different to heal interesting as well as frustrating! Thank you for posting your information about Beyond Balance!!