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I need some veteran advice, please.

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Lyme Disease
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Posted 3/18/2014 11:12 AM (GMT 0)
CC,

I went thru some tough times with IV. Weeks 4 thru 9 were the pits, but it did get better.
Fortunately I didn't have any gallbladder issues.

Are you taking any Milk Thistle? Sundowner brand makes a nice combo with Dandylion Root and Licorice, all 3 really help the liver.

For the rash under the picc bandage... ask your nurse to switch to alcohol/betadine solutions. Quite a few Lyme patient are overly sensitive to the picc bandage adhesive and cleansing solutions. The betadine type helps minimize any rash.

I too had a low temp thru IV treatment. Maybe it was always that way, but I never used a thermometer until my nurses weekly visits.

Hope you are doing better.

tickbit666
Posted 3/19/2014 7:57 PM (GMT 0)
You are all too kind. I don't like making you worry, so I need to give you an update. Besides, sharing my story might help others in the future.

I finally listened to you all and got checked out and my bloodwork showed my liver was not doing well, to put it nicely. I had to stop all medicines to give my body time to heal up. Also, I had to get the PICC line removed immediately. Turns out I was really sick, and you were all right I should have gone to the doctor a lot sooner.

My doctor had me take one month off to see where my body was at. Within a week all my old symptoms started resurfacing. It's been nice to not have abdomen pain and PICC problems, but Lyme sucks too, we all know that.

I just went back to my LLMD yesterday, and my liver levels are real close to being normal again, but I'm still sick as a dog, so it's time to start some abx again. I just started Mepron, zithro (my first time on these two), and alinia. I'll be on these for 3 weeks, and then we'll see where I'm at again. The plan is to follow up with some more IV stuff, but we'll see.

Thanks again for the concern, everyone.
Posted 3/19/2014 8:36 PM (GMT 0)
WOW! Thank you for posting, Ccbrunk!! You're right, we were concerned for you!!

I'm so very glad that you did finally make it to the doc's before it got any worse, and that your liver is now doing much better.

Please remember to detox well and often! :-) Ask your LLMD about milk thistle to help protect your liver - many LLMD's now have their patients use this even if they don't really "believe in herbs".

Any time you are up to it, we would love a bit of an update. I hope that you begin to get those Lyme symptoms under control soon now as well!
Posted 3/19/2014 9:40 PM (GMT 0)
Thank you for the update ccbrunk!

Yes, please come back every now and then with a short message (or a long one).

Glad to hear that you decided to get checked out :-) I was getting worried, it didn't sound good...

Good luck with the new protocol!

MarieLS
Posted 3/19/2014 10:53 PM (GMT 0)
Thank goodness you posted!! Glad you are ok!!!
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