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Posted 3/22/2014 3:24 AM (GMT 0)
Today I was in my Dr. office getting ready for my IV abx when my pots kicked in. BP went up to 220/100 and heart rate 150. My Dr. wanted me to go to ER but I talked her into staying there for 2 hours. My nurse sister took me home and stayed with me for 6 hours til things calmed down. It was awful scary and exhausting. I would really like to know how others with POTS handle it when this happens? I upped my beta blocker per Dr and am not taking my last dose of zith and plaqunil tonight. Any other ideas?
Posted 3/22/2014 4:26 AM (GMT 0)
You may already do this

My tips for managing POTS are as follows:

* Lotsa salt with food -10,000mg with diet

*Fluids

*Stick with foods on the lower side of the glycemic index

*Avoid caffeine and sugar

*Sleep with a bed wedge or elevate head of bed >6
Posted 3/22/2014 4:31 AM (GMT 0)
Thanks Maine I'll work on those.
Posted 3/22/2014 4:37 AM (GMT 0)
Are you in a beta blocker? How often do you have symptoms?
Posted 3/22/2014 5:04 AM (GMT 0)
I was on propranolol but switched (this week) to metoprolol 50mg ER. Most afternoons my BP and heart rate go up but if I catch it and lay down right away it will stop. When I'm herxing bad or out and about it happens like today, probably once every 2 weeks. I had to take a leave of absence from work because it was happening so often:( It's by far the worst lyme symptom I have.
Posted 3/22/2014 5:12 AM (GMT 0)
I wonder if it's what I have, I've had heart rate of 200, do you get PVCs. I dint just get tachy I get arrhythmias as well. My BP runs super low normally. I could bend over and it will set it off and then it feels like I'm breathing through a straw and I get so much pressure in my chest. My cardio prescribed me propanolol 80 mg once a day but I haven't taken it. He also good me to increase my salt, and drink Gatorade. Yeah Gatorade is great for lyme!
Posted 3/22/2014 5:50 AM (GMT 0)
It kind of sounds the same. I went to a LL cardiologist and had an echo, when I sat up to get on the treadmill my heart rate jumped to 150. Then I got to dizzy to stay on the tredmill. That combined with the results from the halter monitor he diagnosed me with POTS due to lyme. He said with lyme treatment it should go away and my heart is in good shape.
I liked the propanolol but started on a much lower dose, ended with 20mg am & 20mg pm. But my bp is high, I bet it's tricky with your low bp to treat with a beta blocker.
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