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Posted 3/27/2014 2:36 AM (GMT 0)
Hello all!
My name is Lauren Bruno. I am 22 years old. about 3 months ago i started having a burning sensation in my upper thigh and in my lower tummy. I was having some female issues, so i decided to make an appointment with my gynocologist. I go and get my normal checkup along with some bloodwork and an ultrasound. Everything comes back normal. I then start to have pain developing into my legs.... it doesn't go away for weeks. during this time, my anxiety level is absolutely through the roof. I started to have the pain in my arms as well. By this time, i am in sheer panic.... I finally get to the doctor and she does tests for lyme disease, rocky mountain spotted fever, lupus, and rheumatoid arthritis. The rmsf is what came back positive. The doctor said though that my titers were so low that she wasn't even sure if it was truly positive or if it was a false positive.The first week on the medicine i felt terrible and then the second week i felt alot better and my leg and arm pain went away. I take 2 weeks of doxycycline and then get tested again. She said that my titers went up some which shows that my antibodies in my blood are building to fight the infection. This week my arm and leg pain are back and i have a tense neck. I have developed a rash that i just now noticed on my arms now. I am so freaked out. I haven't yet had a fever. Shouldn't i be getting better???? I am crying as i type this. I might also mention that i am on doxycycline... and prilosec... and lexapro for anxiety... plus a quarter tablet of ativan. I don't know if my body is just overloaded or if my rmsf is worsening. The doctor said there is no telling how long i have had it. I don't remember ever getting bit by a tick in recent times... I have been on prilosec because my digestive system is so messed up. It has improved though and so have the bowel issues i have been having.... and up until i saw i had a rash i have been feeling better mentally.
I am sorry this is so long. Has anyone ever had the rash pop up later??? Is there anything natural i can take to combat it along with the antibiotics?????
Thanks so much for your help
Posted 3/27/2014 2:59 AM (GMT 0)
Hey Lauren,

My first symptom were anxiety attacks out of nowhere. It is an anxiety that is very sudden and usually you aren't anxious about anything. It just pops up and overwhelms you. I was super calm before I became ill. There are many natural drugs. Check out the "new to lyme" link. It has pretty much everything you need to start. Just take a breather and try to relax. It's a lot of info. A little at a time. Good Luck!
Posted 3/27/2014 4:33 AM (GMT 0)
What does your rash look like? Is it a bulls-eye? You may want to take a picture of it to show your doctor. Rashes are common with lyme and co infections. I get rashes that come and go quite often. Relax and ask questions:)
Posted 3/27/2014 2:19 PM (GMT 0)
Hi Ferretgrl,
Welcome to our community, although I'm very sorry that you have a need to be here.

Have you read through our "New to Lyme? Start here!" thread yet? It covers so many things, it would be very helpful if you took the time to read through it if you haven't yet.

What you are experiencing is known as a herx or Jarrisch Herxheimer reaction and it shows that your body needs hlep detoxing. There is a post in the "New to Lyme?" thread that introduces members to what they should be doing to help their bodies detox.

These infections are created by bacteria(known as spirochetes) that create toxins when they die, so as you are killing more and more bacteria, more and more toxins are released into the blood stream, and eventually the body will become overwhelmed if it (your body) can't keep up with the detoxing needs. So I greatly encourage you to eat very well - no sugar, no highly processed foods, no fast foods, and to begin helping your body keep up with detoxing.

You should know though, that the testing for these infections is quite poor, so the fact that you had a negative Lyme disease test in no way means that you don't have the infection - it only means that you aren't producing antibodies to the bacteria at this time to the strains that are being tested for. The tests only pick up 4 or 5 strains of of Lyme out of the 300 different strains that are world wide - so it seems it would be pretty easy for that kind of a test to miss an infection.

Hang in there, and educate yourself about the tick-borne infections please!!
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