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Air hunger - Babesia?

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Posted 4/9/2014 6:08 PM (GMT 0)
I am learning so much from this forum, thank you! I feel like I am so much more equipped to go to my next visit to the LLMD. Knowledge is definitely power - there is SO much to learn regarding this disease, and I am just reading about the various coinfections. Overwhelming but very fascinating...

Anyway, is air hunger a sign of Lyme or Babesia? I'm glad there is a name to air hunger - for the longest time I have been doing this little "gulping " for breath, mostly at night.

If it is Babesia, what is the treatment for Babesia? the LLMD has me on doxy, azithromycin and atovaquone (substituted for Malarone)

Thanks for input. I am seeing my LLMD in a little over 1 week and I want to go in with as much info as possible..
Posted 4/9/2014 6:31 PM (GMT 0)
This is one of my most annoying symptoms and for me at least, it is definitely from Babesia. Especially if it is at night. I also get it in the morning right when I wake up. I am usually okay throughout the day then every night around 9, it starts up again.

Do you have night sweats at all? I get really bad hot flashes at the same time every day too from Babesia.

Those meds are good to treat it. I was just prescribed malarone, azithromycin and minocycline (I already did 4 months of just doxy). I haven't started the new meds yet, I am a little scared.

My Lyme doc just told me Monday that he was at an infectious disease conference over the weekend and they are seeing more success with Malarone and not Mepron which seemed to be the drug of choice for Babesia for a long time.
Posted 4/9/2014 7:07 PM (GMT 0)
Thanks!! The LLMD had not mentioned Babesia when I first saw him, he just said I had Lyme and put me on those three meds. I think he didn't want to confuse me; he could tell that I had brain fog (amongst other symptoms)

As far as the air hunger, I have the same thing - about 9 or 10pm it starts in. I I used to get night sweats but I always attributed them to menopause. Hmmmmm...

My very worse symptom though is dizziness. I have had it 1 year and its so horrible. My balance is sooo bad - it's like coming off a roller coaster, all day and night! I'm sure I look like I've been drinking, lol.... Is balance a sign of Babesia too, or just Lyme?

Good to hear about Malarone over Mepron. The doc originally wrote the rx for Malarone, but the copay was astronomical, so it was switched for atovaquone. I read a side effect for that drug is dizziness. Lovely!!!!

Good luck on your new drug regime Elleon. I don't know anything about minocycline, but as far as the other 2 go, piece of cake!!! (Famous last words - my luck I'll have full blown c-diff in a week, lol)
Posted 4/9/2014 7:09 PM (GMT 0)
I have air hunger in the a.m. and the p.m. and mine is from Babesia and I also took Malarone for three or four months to get rid of it. It flares in times of severe stress, but I don't have that or the sweating
to death nearly as bad as I used to.
Posted 4/9/2014 8:37 PM (GMT 0)
Dreamer, did you have any bad herxes from the malarone?

Dannarahn, yes dizziness could be Lyme or babesia. My babesia dizziness though is not so much dizziness as it feels like I am walking on a rocking cruise ship. I always say it's the feeling like you just missed a stair when walking down steps. Or like someone just moved the floor from under your feet. Also, sometimes my feet feel like they are hitting the floor and sinking down into it and through it.
Posted 4/9/2014 8:59 PM (GMT 0)
I had air hunger with lyme. It went away with treatment for lyme. Babesia has now shown up and it is back. Though it is worse now than it was with the lyme.

Elleon, that is a good way to describe the "dizziness". I would tell my hubby it feels like I've been riding in a car for 12 hours. It's so weird.
Posted 4/9/2014 9:29 PM (GMT 0)
I am on Doxy, Mepron and azithromycin when I started taking Mepron I had a horrible herx fever, chills, back pain, night sweats, air hunger, dizziness, cough, all Babesia symptoms together after 4 days I was fine. I am on a 4 days break now after taking them for the last 6 weeks (per my LLMD because prior stomach issues, IBS and acid reflux).

I can see a big difference in my symptoms after only 6 weeks, my LLMD was thinking to switch me to Malarone I think it is easy on the stomach.
Posted 4/9/2014 11:27 PM (GMT 0)
Elleon and Living Free, those are really good ways to describe the dizziness. I wish for once I could walk a strait line!! I feel like I am always veering.... Very strange feeling....
Posted 4/10/2014 1:51 AM (GMT 0)
Dannarahn, I used to walk with one hand touching a wall. I totally understand the veering. I joke that it's like drinking without the giggling....and the hangover. LOL!!!!!! ;) The veering isn't so bad anymore. I guess you might say it's more like a slight constant motion. So it does get better.
Posted 4/10/2014 2:57 AM (GMT 0)
Living-free, I am so glad someone can relate! Sometimes I think I am going nuts cause I don't believe that anyone else could possibly feel or have felt this way (unless, of course, they finished the entire bottle themselves!!!)
Good to know the veering will diminish over time. This "space walking" is tiresome. My dog has recently become disabled: when I walk her outside, I am sure we must look like quite a pair - who will fall over first? Lol...
Posted 4/10/2014 4:38 AM (GMT 0)
Air hunger could also be Chlamydia Pneumoniae, one of the coinfections. You may want to have that checked out.
Posted 4/10/2014 12:41 PM (GMT 0)
Thanks Lymebabe, I never heard of that one and will definitely look into it :-)
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