I'm in pain... much pain...

Home alone, and I need to vent cause I'm really in pain

I'm used to pain, but this is bad. I don't know what posture to take. My whole left arm (elbow is worst), all around my torso and my left shoulderblade are worst.
And my knees and left hand.
I can't even sit still. I'm sweating.

I'm sick of not having/finding medication that can bring down the pain. Tried everything, nothing works to really get relief from pain. Some herbals help after a while, but never bring it down entirely. The only thing that happens is my inflammation going up. Aaaarrggghhh....
It has been building up the last few weeks, the pain and the neurosymptoms...

Sorry for this... don't have hubby at my side to complain, he's at work tonight.
Maybe a long warm shower to relax my muscles.

Oh pumpkin,

I'm sooooooo sorry.I wish I could dash round and give you a very big,gentle hug.

If I remember you don't have a tub so that suggestion won't work.

The problem is the more pain you're in,the more you tense up and that makes it even worse,I remember the agonizing pain all too well.

Try a foot soak and a magnesium oil massage if you're up to it.............sorry that I can't be of more use

Thinking of you(((((((((((((((( )))))))))))))))))))))))

Tickled

Also Marie if it gets any worse do you think you should head over to the ER just to get checked out ?
Im starting to wonder if lower dose antibiotics for prolonged periods of time are superior to high dose abx for short periods of time.

Post Edited (BarnGurl) : 4/22/2014 3:07:08 PM (GMT-6)

That's awful. What do you think is causing it?

I vote for the hot/warm bath, although I guess you're asleep right now, with hubby at your side.

I find that adding minced fresh ginger to the bath helps too.

Have you thought of going to a physical therapist? She could give you gentle stretches that might really help. Stretching and baths are what do the most for me.

Are you allowed to take things like hydrocodone over there?

If I'm in severe pain, I'll just take a little crumb of that. Does Lyrica not help you? It helps me, but it messes up my bowels, so I can't take it.

Regardless, I will be thinking about you, and trying mentally to erase your pain!

Margaret

Marie, I feel sad that you are in pain. I am with Traveler that heat helps. When I have whole body pain like you do now I wrap myself in a heating blanket and get under the covers. The heat helps a lot to bring down the pain. The heat also makes me sleepy so I go to sleep and forget the pain. If you don't have a heating blanket, try a heating pad and wrap it around the area that hurts.

I hope you feel better soon.

I have that kind of pain and it was so severe at the beginning of the disease that it got to the point that I just wanted my life to end. Nothing over the counter eased my pain. I was put on Tramadol and it completely took my pain away. The first time I took it, I almost cried. It was almost euphoric to be out of pain. 1.5 years later, I'm still on it for pain. Can't imagine going through this disease without it... It doesn't help when herxing, so other methods of reducing pain are also important when herxing. The salt baths help and lots of lemon water.

You can see a pain specialist for the pain. I really hope you find relief ASAP....

Thank you all for your responses.

I had to sit it out.

I was at a round table at the Belgian Senate yesterday afternoon, and my dr was one of the speakers. So I went up to him and asked what I could do, cause I can't go on with that pain all the time.

He told me to start taking LDN (Low Dose Naltrexone), I'll be ordering that as soon as I get the prescription. He said it should get better once I start taking it, slowly building up. Luckely I'm not taking antidepressants, cause he doesn't want to combine those 2.

Barngurl, thank you for all the advice you are giving me   . I was on abx for 15 months, but it did nothing for the pain, on the contrary, the herxes made it worse, and I have trouble tolerating them now.

I had a membership at a sauna complex, but I get really nauseous in a sauna, I think the heat is causing too much die-off. I had to freeze my membership. An accupuncturist is def an option, but I can't seem to find one who knows about Lyme... I've been mailing my friends, even asked it on fb, but nothing...

I took a long shower (we have no bath), and heat helped, but as soon as I switched of the water, I could feel it again... at the end, I took clonazepam and went to bed.

I tried Tramadol, but the only thing that happens is that I get a stoned feeling (it's something, but not what I'm looking for  ), pain doesn't go away.

I looked up hydrocodone, but I will need to go and see a dr first, probably a neurologist, cause it has to be prepared by a pharmacist. I went to see a neurologist a few times, she wants me to try an antidepressant that also helps with fibromyalgic pain, but then my llmd doesn't want me to take it, cause it'll complicate things even more. It was Cymbalta (duloxetine).

I'm rambling - LOL

Lymebabe, I did a coffee enema before leaving yesterday noon

Thank you dearest Tickled and Trav, hubby will need to be more available to rub me with that magnesium oil.

I'm not feeling really well lately, more and more neurosymptoms, and my joint/muscle pains have gotten worse.

My dr told me yesterday that he is working on getting a drug approved to bring down inflammation, cause that is my biggest issue.

this was my rambling update...

MarieLS, in the 'for what its worth' category: when I took my son to the acupuncturist, he didn't know about LD either. I explained about so many toxins being released and no progress, but that at the same time I was worried about my son herxing if he did too much work on him at once. The acupuncture he did both times we've gone so far has not caused a major herx (its hard to tell if my son's extra fatigue the next day was a herx or the fact he was out of the house for 3 hours getting messed with). Could you ask for an acupuncturist who is good at working with what people need/responsive to people's knowledge instead of one who knows about LD?

Or is it the fact that you have a lot of variables going on other than LD & Co that makes you want someone who is LD literate?

Folks, can I tell you a little secret? I was lucky enough to go to the round table yesterday with MarieLS!!! I got to meet this amazing woman and she is as lovely IRL as on here! But here's the most amazing thing: at one point we were walking and I couldn't keep up with her--that's how determined she is through all of this!!!

Barngurl, I will certainly share my experience with it when I have been on it for a while. I can't wait to start. Dr is sending me the prescription today.

Ksgirl, you are making me BLUSH!!!

I was so glad to finally meet you, and I can say the exact same thing: you are as lovely in real as in your mails, it was a great meet-up!!
I have to say though that I'm a total zombie today, not feeling good... I have to temper my enthusiasm.

Roots, a better climate than the one in Belgium would certainly do good things to me.