My Entire Family has Lyme

Its official as the title my entire family does indeed have lyme. My three kids my husband and me. It was not congenitally transmitted bc I was just bitten this past fall. They say it can't be transmitted by saliva so I just have to assume that the hike up in beacon county left us extremely unlucky! I figured out I had it in january. After much research I discovered my youngest had it in february. That's when we had all of the kids tested. My son came back with band fourty one and I realized he had gotten sick everytime my youngest got sick but didn't really exhibit any obvious symptoms. So we started treating them at the same time. My youngest had obvious herx reactions and my son couldn't walk for a few days and ended up with a weird rash behind his knee. They are both doing beautifully and only have a week left of antibiotics to go! They will however remain on al complex for the next six months. My oldest daughter came back with a positive elisa but negative igm. I suspected she had it too but she only had three symptoms a sore throat extreme thirst and bladder issues. These things could have been attributed to anything. But once. she started to complain about numbness in her fingers I really got worried. So the dr did a cd 57 test and her level was only forty. I then convinced the dr to write for the doxy and started her on it right after I had her blood drawn for igenex. All of the other tests for everyone were done thru stonybrook. Results came in today and she came back clearly positive even within the cdc guidlines!! Now last but not least comes my husband. He's positive igm and igg. But with no symptoms!! Dr wants to treat him bc he said its better to take care of it now so he doesn't have issues down the road. But how do we even know how long to treat him for? Some people don't believe in treating without symptoms. What do u all think?

Chapelle
Im really sorry. I have it and so does my son. My husband refuses to treat himself consistently. My son and I are under the care of a llmd.
Sometimes people do not treat until they experience symptoms. But I believe in the sexual transmission so use your best judgement. I also believe this is passing around more readily than people think, mutation etc.

yeah, all I need is for him to give it back to me once I am over it, LOL.

Thanks. I am actually not upset, bc I am not surprised, LOL. Good thing I am a pharmacist, bc I have been taking and administering meds and herbs to myself and everyone like an average of 15 times a day - Which is part of the reason why I had to quit my job!!

I am going to make sure my story is heard, somehow. Once I am healed, I am going full force with lyme disease awareness!!

Wow - entire family! They are so lucky to have you for a mom! Now you just need to get your husband on board. And being a pharmacist - you would know so much about the abx.

Could I ask your background? (You've probably told your story a ton of times, so I apologize)
You said Muscle/nerve symptoms Jan 2014 - what were you experiencing?
And what diagnoses did the Docs give you?

I'm still trying to figure out if my diagnoses is Lyme. My main issues have always been muscle/nerve.
I never did have flu symptoms.
I'm seeing a ND for Igenex testing next week. I am asking for the full Lyme panel. Do you think it's worth it to get the PCR test?

thanks,

thanks Chapelle.
So the PCR test isn't usually the one the docs use to diagnose?
Maybe I should save the money then.

I just don't know what else i could have, if not Lyme...and that's really got me worried.

Because i didn't get any flu like symptoms, I wonder if it could be Lyme.
At one point I thought I had Parkinsons' - because in October, I had the tremors really bad, and then the muscle twitches came and muscle weakness. Now the twitches aren't so bad, tremors are almost gone, but I have migrating muscle pains....and the nerve buzzing/vibrating (that one is a disturbing symptom).

It's all so scary - I don't fit in to any of the auto-immune categories - and my Dr. has done extensive blood work for antibodies, inflammation, etc. and it's all good.

I keep saying to my husband 'what are the odds I have Lyme" - it's not very common - especially here in BC Canada...

I get the buzzing in my legs as well so Lyme could definitely be causing that for you. Sometimes it feels more like tingling and other times burning. It doesn't ever get real bad but a few nights ago I woke up in the middle of the night to urinate and the buzzing volume was turned up to a level I had never felt before which was pretty scary. Maybe a herx from the monolaurin but not sure. Also have some muscle and eyelid twitching.

I read that the spirochetes can't survive in saliva because of the digestive enzymes. But really, could we have all gotten tick bites in the fall??

Me too, if you count myself and my two dogs, which is, well, my whole family. We all got it in my neighborhood, because we walk a lot. I now have high tech flea and tick collars on my dogs, but Sophie isn't reacting well to it, and she doesn't do well with Frontline either. UGH!!

I feel for you I'm sorry!

Well I'm not saying you are all lucky but you're kind of lucky you dint all gave it for years and years you should all be fine! :)