HealingWell
Search Close Search
☰

a new symptom :(

Support Forums
>
Lyme Disease
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 6/8/2014 9:32 PM (GMT 0)
I was having a pretty good health day until this afternoon I started having massive stomache aches. Then I have been having blood in my stools. Yuck. I am so tired of putting all this poison into my body.

What do I do about the blood in stools? It is freaky. It is a small amount but still is quite awful. Sorry for tmu but I had to ask somewhere. advice?

Posted 6/8/2014 10:29 PM (GMT 0)
I would call your llmd tomorrow.
Posted 6/8/2014 10:56 PM (GMT 0)
I will for sure. But this is just so upsetting. I had finally been trying to be optimis abouthis and power through and think about the other side of treatment but now I feel I am just destroying my digestive tract with all these massive meds. It is so scary to me.

I don't know what to do.

Posted 6/8/2014 11:16 PM (GMT 0)
No he doesn't. And usually they take a dr so to call back and the nurse calls back. This is so sucky.

I am not taking my antibiotic dose tonight. I just don't know what to do anymore. If only I had taken the darn longer antibiotics when I first got the bite I would be on the other side of this.

Instead it just keeps getting worse and my life feels like it is falling away. I am so depressed.

And there is nothing really a hospital woudl do. I mean, my stomach pain is manageable and the amount of blood thank goodness is small- So I guess there is nothing much I can do tonight.

I just want to be on the other side of this, healthy, done with this, looking back as a terrible time in life that is over.

I read that blood in the stools means something in the digestive tract is bleeding, and clearly that is from the massive antibiotics I am on.

Do I really need to be on the antimalarials?

I know people who had bad lyme ad ere ( possibly) cured by 2 months of just doxy.

I know others who took one month of amoxicillan at their tick bite and are totally fine.

I took sproadic but total of a month of antibiotics in the first 6 weeks after the bite, and now have been treating again for 52 days plus another 10 days I did before I found my llmd- with about a week between that so 62 days of treatment.

I want to take the german test again on the possibilty that my lyme may be gone? I had low level lyme at the other test-

and maybe switch to herbals at this point?

Or pulse the antibiotics?

Or take away the plaquenil and just do mino and rifampin?

Maybe switch to cowden?

I don't know but I cannot continue to wreck the rest of my health while I treat this. I am so depressed right now,

Posted 6/8/2014 11:41 PM (GMT 0)
kate,
im totally with you, this disease just stinks. I feel like, why wasn't anybody researching this hardcore like 10 years ago?? I feel like not much has changed in the past decade in regards to treatment, so frustrating...why aren't we hearing about new treatment options ever day. Just sad stories. That's all that ever comes out in the news.

Anyway, my body cant handle any antibiotics right now. I feel like if you only have a few symptoms why not dump the ABX and just do herbals? Give your body a rest. I would think the ABX are for severely effected people, like those who cant walk or get out of bed or whatever.

You can treat the panic naturally as well as the lyme and you might feel much better. I mean, it may take longer but you might be getting toxic from your current regimen.

Why kill yourself in the process of killing the lyme? You have other options. ABART, ABABS, AL complex, cowden, Jernigan, zhang...buhner. Lots of protocols to try that are gentler on the system most likely
Posted 6/9/2014 1:04 AM (GMT 0)
Kate, I had digestive issues too... Take more probiotics if you can! Yogurt, kefir, and even fermented coconut helped me. My stomach feels so much better.
Posted 6/9/2014 1:23 AM (GMT 0)
I just started doing water kefir. It's really easy, very good for your gut, and tastes pretty good. I bought my grains on ebay for less than $5. And you can keep making and making your own probiotic drink.
Posted 6/9/2014 1:25 AM (GMT 0)
how much probiotics should I be taking and any reccomendations of good brands? How many times a day and how much?

I have the capsule kind which I just empty into applesacue- I would rather have the powder kind- but I take maybe 4 capsules twice a day- sometimes up to 10 capsules a day.

Should I be taking more? Can one take too much?

I wonder if this is just too aggressive a protocol for me?

The thing is, I want to do this now so I can have my life back in the future. I have com this far and thank god some of the panic is dissipating, at least recently. I think that is from the rifampin.

I am nervous to totally stop the antibiotics at this point if I could do anothe month and then just be really done. I do not want to bail out at this point and then have to deal with this for years y'know? But I also don't want to wreck my entire body over it.

What a drag.

I wonder what my expensive doctor will say. He is okay but so expensive. I still think he is okay though- . I hope he can revise things for me.

 

Posted 6/9/2014 1:36 AM (GMT 0)
That is lots ... Can you get some kefir or probiotic rich yogurts? Try adding those in too.
Posted 6/9/2014 1:39 AM (GMT 0)
okay I can add more yogurt- we have a health food coop in our town with all kinds of stuff. How much probiotics are ideal to take? Can I take too much?Any good brands?

My stomach had been pretty good up until today. So weird. I mean I had some issue but nothing like this.

ugh

Posted 6/9/2014 1:43 AM (GMT 0)
Also- what about gluten? My doctor told me originally to cut out gluten and sugar. I cut way way down on sugar but not at all on gluten. part of me jus didn't believe or understand the gluten thing, I tend to think it is a weird thing to cut out. Someone I know just told me she cut out all gluten and sugar and yeast when she was treating and now I am thinking oh man do I actually really need to cut out gluten? does it really matter that much??
Posted 6/9/2014 2:24 AM (GMT 0)
Hi Kate,

I really think it depends on the person. I did eat a few things with gluten and never noticed an intolerance, unless I was eating white processed stuff. There are a lot of generalizations with lyme but if it does not bother you I say it is fine - everything in moderation of course. Others will disagree. I do think it is harder to digest but there is a big difference between being low gluten or minimal gluten vs. gluten free. :)
Posted 6/9/2014 2:30 AM (GMT 0)
The worst three diet offenders are sugar, dairy, and wheat. But I just cut out refined sugars, milk, cheese, and refined flours obviously.

I still occasionally have rice or multigrain bread. The only diary I have it probiotic and kefir which has lots of healthy microbes.

I had vega one for awhile there and found that it made my digestive tract feel much better.

I haven't had any issues with food intolerances. It was only when I was really sick back in December, January, and February when I really had food intolerances. I found that as treatment progresses the food intolerances went away.
✚ New Topic ✚ Reply