need to vent

So I'm in the most unbearable throat pain to the point where I can't function, for days now. I went to my regular doctor and had a scope and CT scan. I was fully prepared to get a cancer diagnosis. End stage cancer is what I expected. How do you explain unbearable pain in one concentrated area. Because the pain is constant and just that bad. I literally was preparing to have that talk with my family. Nope everything came back fine. Part of my was hoping for cancer. Because that means it's lyme and its just killing me, literally. And people think I'm making myself sick.

One stupid symptom is slowly pulling the life out of me and I don't know how to stop it. Plus I'm literally wasting away. I put a call into my LLND so hopefully he comes up with something.

This disease is truly ridiculous and not fair.

I'm going to look into nerve blocks or something so I can function.

As an aside, when I went yo the ENT, I was balling my eyes out because I can't take the pain. She looked at me and said, sorry I only deal with the physical side, not the emotional side. And she said, you know you are basically the only patient I had react like this.

How erogant of that ent. All drs seem to specialize now a days and have lost their humanity. How could someone be suffering so much for so long and not be emotional. Imo ent license should be revoked, we dont need more judgemental robot health practitioners, we need humans who underdtand the entire biochemical processes and can offer support when the emotions vome to the surface due to all the imbalances occuring in our nodies. They have no clue the other issues lyme patients have to deal with, disbelieving family, friends and coworkers. The self incrimination of not being able to do the things we use to do. Why do we not have an avenue to report irresponsible doctors other than suing. In private sector we have performance appraisals docyors should also with patient feedback as input.

Thank you. Surely I don't have strep but we are trying penicillin to see if it helps. I'm sure it's Bart that is lodged right in to this spot that is probably super inflamed. Right at the top of my thyroid area and every time I swallow it sends shards of glass right up the throat.

Girlie, good luck with the ENT. It's good to get stuff ruled out, but I get incredibly disappointed when the don't find stuff. Just want my family to believe me...

Mike,
Nothing yet, still in unbearable pain in that area, that seemed to come out of nowhere. I'm going to try ABART and Nystatin now.
Also doing a swallowing study soon, so hopefully I'll have an answer.
Then I might try a food elimination or something. Something has got to give here.

I'm sorry Louis. I hope you find an answer soon!

Wow, I am sorry to hear that you are suffering so much, Louise74 and having to deal with unprofessional and unsympathetic medical providers in the process. I hope you find some answers and get on the road to recovery soon.