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Abdominal and upper flank pain

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Posted 6/24/2014 7:31 AM (GMT 0)
It's a long story but the gist of it is, I can't get any medical help let alone an LLMD so I am having to be my own doctor and advocate and hopefully get some advice on here too.

Following the advice of a friend I put myself on the Cowden protocol - it is day 11 and I have been hit by burning abdominal and upper flank (kidney?) pain, eye socket pain and chest pain - all of these are brand new symptoms that I didn't have before I started on the protocol: my question is, am I herxing or am I getting worse?

I am scared of being sick and sick of being scared.
Posted 6/25/2014 8:35 PM (GMT 0)
Look what I found languishing on page 3 with no responses at all.

Please could someone spare a few seconds to offer me some sagely advice, I am already fighting lyme disease and depression: I don't need to add paranoia and a sense that no one cares if I live or die to that list.
Posted 6/25/2014 10:06 PM (GMT 0)
Sorry lymelymie - didn't see your post. IF you have only been on Cowden 11 days it is likely a herx reaction. Cowden can be pretty strong just starting out. I would back off on your dosing a little bit and up the detoxing.

What state are you in? It still might be a good idea at some point during your treatment to get standard bloodwork done if you can afford it. I can get kidney/liver check, blood cell counts etc for about $95 out of pocket without insurance/without going to a dr. Not available in all states though, sometimes they offer it even cheaper.

What tinctures exactly of Cowdens are you on? Are you doing any supplemental support for kidneys/liver like red root tincture, milk thistle, dandelion, parsley? That might be something to suggest adding in.

It does stink being your own doctor but a lot have healed this way too, just takes a lot of patience! :)I would do a detox shake asap, 1/2 cup parsley, 1/2 cup cilantro, 1/2-1 whole lemon and a cucumber (optional) + a teeny bit of something sweet like OJ/pineapple just to make it palatable. Throw it all in a blender and try to drink without gagging! lol - that will flush out a lot of toxins in your kidney/liver and hopefully make you poop.

Speaking of poop - you moving your toxins out?
Posted 6/27/2014 8:31 AM (GMT 0)
Opugirl, thank you so much for your reply and support. I think one of the most frustrating thing about this disease is the pain that seems to have no source - it hurts like hell but you can't tell where the pain is coming from, ribs, kidneys, it could be a gut problem for all I know: anyway I am detoxing with Sparga, Pinella, Parsley and Burbur and have started taking my probiotics again. When I started this protocol I stopped taking all my vitamins because I was not sure how they would react together, perhaps I should worry a lot less about things like that. That recipe you suggested probably tastes better than it sounds so i'll definately be giving it a try along with the other products you suggested, I am also investigating the benefits of coffee enemas - I am beginning to see that fighting this disease is a full time job. I did get to see an infectious diseases doctor who refused to test me for bart because I don't own a cat so paying for a bart test might be money well spent.

Finally, the depression I am treating with huge doses of comedy, Eddie Izzard, Russell Brand and Rik Mayall (RIP) are some of the best doctors I know.

Thanks again for your support, I hope I can return the favor one day.
Posted 6/27/2014 8:48 AM (GMT 0)
Oh, I forgot, you asked what state I am in.... I am in Massachusetts.
Posted 6/27/2014 12:58 PM (GMT 0)
Lyme,
I'm in MA too and really struggling. Been sick going on six months. I was doing ok and then crashed hard and can't seem to recover. I also have a burning abdominal pain and a burning throat. Both of these came on about two weeks ago and just won't quit. I would say take it slow because if it's a herx, it's taken too long and I haven't had a good day in two weeks now.
Posted 6/27/2014 4:18 PM (GMT 0)
okay - that's the second post about a Dr. saying it can't be Bart because you don't have a cat.

Bart is a co-infection from a tick...plain and simple.

What is the connection to cats,anyway - where are the Dr's getting this from?
Lymelymie - if you do the detox shake - would you post - I'd like to know if it's palatable. I have very sensitive taste buds...and don't really like the taste of cilantro...so how about you try it out first...and then I'll follow?
Posted 6/27/2014 5:58 PM (GMT 0)
Bartonella is originally called cat scratch disease. They are carriers of this organism. When a cat scratches you, if they are infected, it can be passed on to you. I think the cat version is milder than the tick version but I could be wrong about that.
Posted 6/27/2014 8:30 PM (GMT 0)
Oh - is that the same as Cat Scratch Fever?

I knew there was a good reason my cats are indoor cats..lol!
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