what do you guys think?

So Im in utter frustration. When I got sick in December, I thanked God everyday that I had no pain. Well that took a dramatic turn for the worse starting around May and then have had unrelenting pain since June, that doesn't stop. Here are my new symptoms:

Hot burning searing pain in various body parts, comes and goes. Feels like the worst sunburn that you ever had in your life.
Squeezing sensation in stomach
Burning searing pain in throat (not in throat but outside in throat near thyroid area) that is mind numbing and 24/7.
My skin and body are now super sensitive to pain and just touching my skin is excruciating. All of a sudden im hyper sensitive to the sun (not on doxy but I was..did my body develop an autoimmune to the sun from the doxy?). My skin is now paper thin and shears off If I wash my face or anything..... all of this is so new. I just feel so unwell and cant leave the house.

I went from walking everyday, sitting outside enjoying the weather, running small errands, doing mild house work, to this!! Like what the ****??

Ive gone to the ER twice in two weeks - don't bother they cant do anything. Ive had top docs do so much testing for autoimmune, inflammation markers...etc.. and things look perfect. Of course.

Ive had a bad reaction to every med that I have taken. And to be honest, it seems like lots of this came fast and furious after taking the natural meds. I don't know what to do, just really need relief. My children are really suffering with this new onset of my crappy symptoms.

I now realize why so many lyme suffers commit suicide. This is all so unimaginable..

Options/Opinions:
MD - something is wrong with you, you just have to keep searching. You have had extensive work ups and things have all come back fine, so it may take a while. You've been given a toxic mix of crap from too many people and stay away from your holistic doctor, he poisoned you. Don't take any more medicine...especially from him!!

Holistic Doctor - Really sounds atypical for lyme, but very possibly bartonella. Try rifampin and see if it helps. (but im now scared to do anyting)

Husband - drop everything and try to detox your body naturally. See if your body can heal. Which Ive pretty much been doing all along

I have been off all supplements, everything for weeks and no relief.
CT scan of neck was totally normal, (doesn't seem possible) Ive been told there is no way I have cancer.

Im skin and bones, can barely eat, with searing pain. Hey thanks lyme disease..

What can I try??????? I started HBOT and hoping for a miracle. But running out of money and ideas. What next.

what would you do/think?

I'm sorry you are feeling this way Louise...

I too have a sudden serious increase in neurosymptoms. My dr told me it's an increase in neuroinflammation. I stopped all of my medication for 2 weeks now. He said that I need to cut my med dosage in half.
I've been slowly building up cumanda and Banderol lately. I think that those 2 are guilty.

What herbal protocol were you doing? Did you get anything to up your detoxing?

did your holistic dr look up if it could be an allergic reaction? or doesn't he have a clue?

I hope someone else can jump in who has experience with AL-complex. I took Houttuynia and artesimin before, but didn't have an allergic reaction to it, just herxed like crazy on H the first few weeks. It's pretty strong stuff...

Marie and Louise I am on AL - at 20 drops and A-Bart at 11 and serrapeptase 2x day so far and have been dragging my butt EVERYWHERE- NO energy at all - heavy head, major visual activity and anxiety - it is the pits, but I think all this stuff is doing something to the bacteria and they in turn are releasing toxins - that's all I can think of.

That happened to me also. Unrelenting pain in joints and muscles. Joints felt like they wrre on fire at times. I went to rheumatologist, shd ran nlood work, checked my joints(thd day I saw her my symptoms were not as severe), questioned me. Ultimately she dismissed me, blood work was fine so that apparently meant there was nothing wrong or I was making it all up. I suffered for at least a year with no resolution then without explanation the pain became less severe and more intermittent. This was before I learned that these symps would come and go. All I could do was try to use OTC advil, aleve which really had no affect on the pain. My joints have never been the same since that flare up.