Anyone have sleep jerks?

I have them in different areas of my body...they were worse a few months ago when my twitching was at it's worse.

I would get a whole body one, as well as just arm jerks, and leg jerks.
It must be a symptom, as I never got them before lyme.

Is it called myclonus? (or something like that?)

Yes I've had these. Prior to my diagnoses - same as Girlie, when the twithing was at its worst.

Girlie - I think you and I have/have had almost identical symptoms. Although I have some spine and back pain/issues.

I'm pretty certain I got it in Wisconsin, and I've read how the symptoms can vary a lot depending on the geographic location in which you were bit. But I think I remember seeing that you live in BC Canada so that wouldn't line up...

Yes i have this. Sometimes my whole body, sometimes just a limb. One time I smacked myself right in the face! It is not as bad now, but it still happens. It used to be every night at one point. To me it seems like it happens when I am about to switch to a deeper level of sleep.

Yes, I had this very bad. Started after my son was born. My body would jerk significantly before falling asleep. Lasted about 6 years or so and suddenly stopped. It's back a bit with the lyme.

Wow, that's so weird... Mine started on my left side of my body too - Same symptoms. I get them everywhere now, but left side is still worst. I'm like popcorn - my back, knees, shoulders, you name it! Crazy.
My symptoms started at the end of October and I hit rock bottom in February so that's similar as well.

The things that happened in October that I suspect might have helped bring this thing out are: flu shot, minor surgery (to remove a lipoma), and I quit breastfeeding (so maybe some hormonal stuff too). Did anything happen to you around the time your symptoms started? Did you happen to get a flu shot?

I just wonder about the flu shot because apparently it can cause neuro issues in a small number of people... Maybe because it contains mercury. But if you had Lyme and got the shot - I'm sure that could cause some big issues.

So, the left side pain - was diagnosed as a pinched nerve in my neck.

I've been saying that my lyme symptoms started in September, but maybe the left side "pinched nerve" was really the start of my lyme symptoms.

Girlie - I too was told I had pinched nerves in back back (diagnoses by nerve conduction test), I demanded the neuro do an MRI of spine to confirm these "pinched nerves" (which he said showed up as they would with someone who had been in a servers car accident - no accident here), sure enough MRI showed NO pinched nerves.... Explanation, (well the neuro had none) lyme.

I've read Lyme/co can cause Radiculopathys (pinched nerves), or the appearance of. Mind boggling what this stuff can do.

Roxie - I've had that happen as well. I know how scary and unnerving it can be!!!

I've had sooo many of the 'sleep jerks'! I've had three black eyes that I've given to myself, and the dogs and hubby started all sleeping on the far side of the bed when that was happening! snicker, snicker!!

The worst are the full body jerks - which happened randomly for me, not just while I was going to sleep or coming out of sleep - although mainly I had random limb/toe/finger jerks frequently during the day. I had one muscle under my right eye and one muscle on the top eyelid of my right eye that stuck around the longest. Irritating as all get out!!!, but they went away with as my Lyme treatment progressed.

When they were the most active, my muscles would even tired considerably, so I would do the full body detox soaks and they would ease that discomfort.