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Posted 8/10/2014 5:40 AM (GMT 0)
Hi everyone. Its giving me some hope and less scary to be alone. I have been really sick since I was 19 and have been treated many times with IV and oral antibiotics but the co infections were not treated and I have babesiosis, bartonella, mycoplasma and borrellia of course
I am having trouble tolerating detox even or even tiny drops of herbs. Its hard because I have severe neuropathy pain and horrible headaches. After I did rocephin IV a few years ago my migraines went away so at least I know they will again. It gives me hope to hear so many of you do get better. Its been 33 years of this and would like to have a life. Thank God the vertigo the worst of that is gone! I had that in 1996 and that was hell! Any tips on how to stomach the herbs I take probiotics and supplements. Thank you and bless you for your help.
Posted 8/10/2014 11:37 AM (GMT 0)
Hi elsa,
Welcome to the forum! You do have a lot on your plate, health-wise, that is for sure. It's great that you have a diagnosis, at least.

I'm glad you are searching for hope. You have the medicine to help your body heal, but you will need hope and good spirits to make the difficult journey back to health. I do believe you can get there.

At the moment I am making the last ascent to my full health. It has been very hard work and these last steps are quite difficult. I also am reacting to every single drop. I've decided to put one drop into water and only drink a portion of it, so I can work slowly up to the next dose.

Are you detoxing? There is a very good thread at the top of the forum "New to Lyme?" that has a section on detoxing. Some of it sounds funny, but it really works.

One thing that has helped me stomach my meds is to sit still for 30 mins after I take them. Sounds like a waste of time, but it stopped me from feeling nauseous and vomiting all the time.

Glad you found us!
Posted 8/10/2014 1:16 PM (GMT 0)
Hi Elsablue,

So sorry to hear you are so ill and for so long. Have you tried dividing the drops as achievinggrace said?

At one point I was only increasing by a quarter of a drop at a time, because a full drop was causing me to herx too much. Just put 1 drop in a tiny glass of water and drink one quarter of it a day (or a half or a third - whatever you feel you can handle.)
Posted 8/10/2014 3:02 PM (GMT 0)
Wow! You are so helpful. The sad thing is I'm a nurse but not in this case I'm totally lost and feel so confused so these tips really are a lifesaver. I have tried some detoxing but not enough and I'm going to make an effort. This disease is hard for those of us who were taught to ignore symptoms stiff upper lip etc... because in order to get well you have to focus on yourself. I always was taught it was self indulgent and I have to get over that now. I do believe that's why Ive stayed sick for 33 years. I would get enough function back and go back to work full time of course in ER and ICU so the stress would put me right back in bed. I had children while sick and they have had difficulties with their health and my ex used this to accuse me munchausens by proxy and he took them away 3 years ago by the court. I have been crying ever since and have supervised visits 2x a week so I get enough strength to fake okay for a visit then rest for the next one. I am trying to get them back but its been really hard to ger help. So having your support is unbelievable. Thank you again so much I will try the drop and only drink some and then sit for a while. Thank you!!!!!
Posted 8/10/2014 3:57 PM (GMT 0)
Welcome elasblue! I'm glad you found your way here. I'm sorry for all that you've been through and I hope this site will help you move ahead and learn more about Lyme. Have you read any of the "New to Lyme?" thread at the top of the page? There is a lot of good info. there.

I wish you the best! Stay in touch.
Posted 8/10/2014 4:08 PM (GMT 0)
Thank you garden peace! Yes I have all the info written down to start the detox baths etc... I have had no life since I was a teenager. You know you look back and you have lost so much but I am determined to win this fight not ignore it like I have been. Thank you for your help. It really is like gold this support and info.!
Posted 8/10/2014 4:55 PM (GMT 0)
Elsablue - You've been though so much. I am so sorry - I can't imagine how tough it is for you losing your children and being so ill on top of that.

Yes, you do have to put yourself first now. Detoxing is of MAJOR importance. The baths are great but make sure you do the dry brushing too. It really helped me. I also ingest calcium betonite clay and chlorella to help detox. I still have a long way to go but am starting to get better now. There is definitely hope!

I know it all seems overwhelming at first but start with one thing and keep adding. You may have to read the "New to Lyme" thread over and over again to take it all in.
Posted 8/10/2014 6:57 PM (GMT 0)
Considering how ill you have been, I would suggest that you start off with the Epsom Salt/peroxide foot soak and only keep your feet in the warm (not hot!!!) water for 5 - 7 minutes to begin with. Detoxing too fast can mobilize the toxins and cause a herx -which you don't need with being this ill.

I would also suggest that you start dry skin brushing- we need all the help we can get with detoxing!

Drinking lemon water will help pull your body back to an alkaline state, rather than the acidic state the bacteria and viruses prefer.

With all things that you do to heal, I would suggest that you start off small and go very slowly.
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