Posted 8/16/2014 5:24 AM (GMT 0)
Hi LymePickle, that is quite a bit of abx that you are on. You have an aggressive llmd like mine apparently! Its so scary when you are taking so much and trying your best then its like it gets snatched away to being symptomatic again and we are left feeling bad and confused again.
I was doing good too (month of June esp.) and now I have seemed fall again. I wish things were NOT so darn complicated with all this! Grrrr!
Here's what Im trying to figure out....
Is the burning from:
A. Burning neuropathy in general caused by lyme or co's disease flaring up?
B. but to letter A, how, if we've been on abx....so we obviously killed *something right? So it from herxing then?
C. OR I hate to say, from being on these strong abx....are we doing residual damage to our body and nervous system?
Where Im at to be honest is......Im currently giving myself a break from abx. Its been going on over a week now. Ive been doing extra supplements and detoxing. I am still having burning...but thank the lord, it is letting up some day by day. I was on mino, tindy, and bactrim. Mino and Tind are known be hard on nerves if taken for long periods of time...so this scared me and was my decision to let up on the abx initially. I started freaking and was like AHHHHH!-2 major nerve abx are doing the burning and its nerve damage!!
BUT now...that I see it is subsiding day by day with detoxing....I am actually thinking it is the lil jokers dead, floating around, laying on nerves causing the burning and other symptoms.
Ive been keeping a symptom/treatment/detox journal since first llmd appt. It helps alot when I need to know cycles and such.
As of last Sat (go figure the super moon night-which I never believed until this past sat!!..Lemme tell ya!! whew!!) I was very symptomatic on that day.
Here's what I recorded going on with me Sat. night.
-cheeks numb, pinky fingers numb
-a few more black mole dots popping up on body
-very sore breasts
-top of head/brain burning neuropathy
-heel's burning
-knee's stiff and sore and crackly (feel like wanna swell)
-depressed/emotional
-thumb knuckles hurt
-burning elbows & knee's
-toe joints hurt
-tinnitus
-sore shins
-pain between shoulder blades
-light internal tremors (not as bad as before)
-crawling skin sensations
-vibrating in right ankle
-new finding: two small nodules along left hand side of pinky finger
Holy frkn cow.....gosh after just writing that, I realized I am thankful for today. What a bad place that was. Im at about at 1/3 of those symptoms now I would say.
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SoOOooo....to answer your question.....sounds like "toxic body from die-off right"? I think we are both herxing basically. Im hoping we have not been on abx long enough to cause damage. I believe you are a few months in with abx combo's as myself? I, personally am going to try to make it to about 6-8 months with abx but my llmd doesnt believe in pulsing, so I guess Im kinda doing my own pulsing if you will. This is personally where Im at.
Gosh I feel like Ive been all over with this post! Hopefully whomever reading can follow my lil evaluation here as these are my thoughts.
When everyone says "DETOX DETOX DETOX" .....*they are saying it for your health! (no pun intended ;)
xx's
-Courtney
P.S.
On another note but same subject, I read in another forum awhile ago from someone who was sick for a LONG time, we're talking like 20 years....whom is now healed, she mentioned she truly believes that the body cannot detox properly while it is constantly being loaded with toxic things such as abx! *THIS* resonated with me. To ME.. it makes sense. Hence this is my reasoning for giving my self a break. Although- I am NOT a medical expert in any way. Just literally un-picking my brain thoughts and putting them on this screen today.