Feeling alone and frustrated and very sick

I have days where I feel like I'm okay. I feel like I can deal with everything and that whatever thoughts were in my head was just paranoia. then all i have to do is give the doctors some time and they'll figure out whats wrong with me. I just have to be careful, watch what i eat and not over-exert myself.

But then there are days like today where i fell like I'm not going to make it all. I have a headache or head pressure, sometimes it feels like pinches all over my skull. There is pressure at my temples and behind my eyes. I don't have allergies but my sinuses are achy and the inside of my ears hurt. My neck hurts and is stiff, my back hurts, my joints are achy and so are some muscles. I'm dizzy and have double vision in one eye. I'm nauseous but fairly certain I'm not going to throw up. Very low appetite and anything that I do eat goes right through me (been having that the last four days). My abdomen hurts in areas, (like upper areas both left and right, lower abdomen, near my belly button and they all radiate toward the back). Sometimes it feels like every organ in my abdomen is swollen and tender. My hands hurt and feel a tingling or vibration in them. Sometimes I barely move them and they tingle as if they fell asleep. Same goes for my legs, unless they are in a comfortable position, within seconds they begin to tingle. I have no energy, I could barely stand to cook in front of the stove before I felt terrible and had to lay down. Last week I could even walk the length of a supermarket before I felt terrible and sick.

All of these are just the symptoms I can describe. There are days where there are new symptoms that scare me because I never felt them before. Like the tingling and vibrations. I sometimes feel them when I'm sitting or laying down and it freaks me out. Sometimes I can even feel it in my sleep. I suffer from brain fog and I know my short term memory is getting worse.

What's especially frustrating is that I haven't been diagnosed with anything other than GERD and acid reflux. Most of my blood tests have come back normal except for low vitamin D. All my hormones are fine. The last round of tests checked for rheumatoid arthritis and lupus, but those also came back normal. My doctor did suggest Fibro as a possibility, but other things need to be ruled out first. I waiting on my head MRI results. I'm beginning to wonder if it could by Lyme disease. I work indoors but the area is next to a large park and deer and other animals are a regular occurrence. I've heard of people having Lyme for years, but I've only being dealing with this for two and half months. But I feel as if I'm deteriorating and getting worse every week.

I feel like my family doesn't understand or sometimes even believe what I'm going through. I've been to the ER twice, I went to a GI who said I probably have fibro and Celiac (totally getting a second opinion on that). I also have an appointment with my GYN because I think i can feel a lump or lumps on the side of my breast. I've been looking my LLMD in my area and hoping to get an appointment soon.

I feel like I'm going crazy... Could this be lyme? If not, what else could it be? Is there anyone else feeling like this?

I was thinking about consulting a naturopathic doctor. Some friends have had success with things they were going through. It's all just so frustrating. I know I need to be patient, but on days like today when it feels like my head is going to explode from the pain, I find myself angry at every doctor and test. And even the whole system and how its run. Every time I call for an appointment their first available is 3-4 months away. And all that does is give you time to not only get worse, but think of every horrible thing is could possibly be.

I know at this point I'm just ranting on, but it feels good to get it out somewhere.

Thanks for the reply btw. It's always nice to hear that people are able to get over their situations. I hope your neighbor is doing well.

Yes, what ToddPaul said - get the WB from Igenex - for $200. If it's positive, you'll feel a relief knowing what you have. If it's not positive, then you're no worse off. You should still see a LLMD for a clinical diagnosis.

Don't waste anymore time. (I made that mistake)

Cheetah: A year ago April I suffered a pinched nerve - excruciating pain left shoulder blade, radiating down left arm to hand. I couldn't do anything for two months. I lost 13 pounds in 6 weeks. Then things started to get better, but then in August started to feel some anxiety, and episodes of depression. September I started to get vibrations through my body like my nervous system was on overdrive (still get them today). My shoulder blade/arm symptoms start to get worse again. October woke up one morning with joint pain. Two weeks later, add muscle pains to my symptoms. I now am having lots of anxiety and many wakes during the night with sleep apnea, and choking. In October I also started to get chills. During that time I got the tremors and also muscle weakness to the point that I stopped driving for a few weeks...wasn't sure if I was strong enough to put enough pressure on the brakes. Some of my pain was constant, some was migrating. Oh, I forgot to add that in May i also got a sensation of a lump in my throat that comes and goes - makes it difficult to swallow sometimes.
At some point I also got the light-headedness, off balance symptoms added to my list, along with short term memory problems.
I am lucky in that I've never really had any digestive issues. But, as much as I try, I have only gained a pound or two back to my weight.

I started Buhner this past May when I was considering being tested for Lyme. I asked my regular Dr. for a lyme test in June and it came back negative. I then went to a Naturopath for the Igenex test and it came back positive beginning of July. At that point I started the antibiotics.

Good advice has been given already. I hope you can get to an LLMD soon and agree to get a WB done. To make it even more effective, I'd also start taking high doses of Olive Leaf Extract to help provoke the infection, if it's there, and should help the test be more accurate.

Also wanted to mention that "fibroymalgia" is a NAME given for SYMPTOMS. It is NOT a diagnosis of a cause of the symptoms. So so so sooooooo many people (mostly women) are being treated only to address symptoms and their doctors are not even bothering to find out what is causing the symptoms. It's a dangerous red herring.

-p

Girlie- It's really scary when pain just suddenly appears for what seems like no reason at all. And the nervous system stuff I'm even more scared about. I admit I do twitch or jerk from time to time, but I usually find an excuse for it. Like it was just me moving or a cramp. I'm definitely adding it to my long list of symptoms that seems to just keep pilling up. As for the weight loss, I've lost about 20-25 in the last two and half months. I know most of that is from diet change, I cut out all dairy, gluten, anything spicy and acidic, most meat (I only eat a little chicken from time to time), and my sweets and chocolate. My regular diet was cut down to maybe a quarter of what it was, or even less. Then when I get this "attacks" and everything wants to go through me, it cuts it down even more. I am starting probiotics this week, so hopefully that'll settle some stuff down.


Pirouette- Thanks. The fibromyalgia non-diagnosis seemed like it was fired from the hip. I never thought about alternative doctors too much, but lately, after all I've been reading and experiencing, I'm starting to understand where they are coming from. The GI prescribed me pills for the pain I've been feeling but didn't seem too concerned by what is causing it. The Olive Leaf Extract, would that actually make some of the symptoms worse? I'm a little afraid when you say "provoke the infection."

Cheetah:
"The Olive Leaf Extract, would that actually make some of the symptoms worse? I'm a little afraid when you say "provoke the infection.""

Sorry—I should have been clearer. By "provoke" I mean to provoke a reaction. The intent is for the OLE to act like an anti-microbial and kill off some of the infection, thereby the immune system creates antibodies that can be detected by the blood test. It does take a few weeks for this to occur. I bought a large jar at Whole Foods and worked up to 3 capsules 3x/day for 4 weeks and didn't notice any change in symptoms but everyone is different. My WB came back "CDC positive", which is, like, irrefutably positive, not just kinda positive. So no b.s. with the insurance company fighting treatment.

The best advise given on the thread is to see an LLMD as soon as you can. But it wouldn't hurt to get a WB done regardless of whether or not you try to provoke the infection. Please report back!

-p