At my breaking point. Nothing left in the tank.

I am doing very bad. I’ve developed shakes on top of my other 30 symptoms. Now I’m worried about Parkinson’s. My vision keeps getting worse. I am almost nonfunctional. Tying is hard. My fingers don’t go where I want them too. The chest pain is back again. It is connected to the end of the middle finger on my left hand. What I mean is it happened at the exact same time and feels exactly the same.. every time. MY fingers want to curl up all the time especially on my left hand. Last night I had all my worse symptoms all at the same time. Pain, hallucinations, heart issues, skin inflammation, pain pain pain.. brain not working the right way… weak an tired.. shaking. I was really hoping the shaking and hand curling was from the antibiotics so I stopped taking it on 8/5/14. Had a few good days now I am worse than ever. I started the Buhner herds on 8/10/14. Maybe too soon to know if they are doing anything? Maybe I should start my abx again? Shaking is getting very bad. Doctor has no answers for me. We did a bunch of blood work to see mineral levels and check for Lupus ANA and all that. Everything came back normal. How is that possible? How Can I be falling apart so quickly and the only thing that shows up on a test is Lyme on an IgeneX? Mycoplasma too. It’s crazy that this is real life. I thought I was dying last night and I didn’t care. Seemed like a better option you know? I ate a tortilla with gluten for my taco for dinner. Can all this spark from just that? That’s so crazy if so. My nervous system is shot and getting worse. When does it get better? Ever? Can’t hold my head up. Trying to keep my job. I can’t believe I still have it. Sorry for rambling. Any tips or suggestions would be appreciated.

It is a horrible experience. I have been on treatment abx for 4 months and I do beliveit is helping. Ive had this so long I will need a few more months to be convinced but some symps have ddisappeared or reduced intensity. I believe I had my first herx lasr week, http://m.youtube.com/watch?sns=em&v=i2uXLriGP9k after 7 months of abx. Not sure how long uou have had lyme and co but I have had tens years and I think it just takes time and perseverance. I have also had those dwys I did not think I could take the symps anymore but uou have to keep fighting.

I'm so sorry you are feeling this bad. Two days ago I went to the ER for the 1st time. I had that crazy shaking, one side of throat swelling, bp 186/100, only to be told it's stress. I told the ER doc I had candida in my throat. He said "No, you'd have to have HIV to have that" I told him I have lyme, to which he rolled his eyes...
Anyway, my point is that there are so many ups and downs with this disease. Two days ago I thought I was dying, today I'm up and about and feeling pretty good. Looking back it was probably a bad herx with the new symptom of shaking.
I guess my advice would be to detox, be kind to yourself, and keep putting one foot in front of the other. You WILL heal!

Oh no, Akkami!!! I'm so very sorry to hear this!!!

It's possible that with as miserable as you were feeling that the gluten sent you soaring over the top.

Do you have increased symptoms when you detox? If so, you might have the MTHFR gene mutation that prevents the body from detoxing well enough to keep up with treatment for many. But there is treatments for the condition.

Wow! Not good choices for docs!! They aren't true LLMD's in the first two you explained- or they wouldn't be that way. Not all LLMD's are good!!! Maybe it's a good thing you choose to use Buhner's protocol!!!

Is it possible that you have been exposed to mold? At work, at home, at a friend's house, or any where else? If so, you may need to clear out the mold exposure before your Lyme treatments will do much good. This is becoming more and more common.

Mycoplasma and other infections may have to be treated before much progress will be seen with Lyme treatments. I had to treat my Bartonella infection along side of my Lyme so that I could heal. This is actually quite common.

Keep responding to as many posts as you can and we can toss ideas and suggestion out and you can decide if any fit for you!!!

Hang in there! There has to be answers out there for you!
((((((((((HUGS))))))))))

Hi Akkami...please remember 'this too shall pass'. I can tell by your posts you are in stress mode mentally and physically. Dare I say I *was just there (Im not superstitious but I kinda believe in jinxing sometimes-long story!)

At any rate, I just wanted to chime in.....

I have had a few of the shaking episodes-not fun/very scary. Try not to think about how those other people ended up w/ALS, Parkinsons , etc. They are NOT you. Who's knows, maybe they have other things wrong with them, maybe they didnt get treatment or could afford to. Everyone is different ya know.


Please maybe try some of these remedies:
-chamomile tea (maybe while soaking your feet in epsom salt, himalayan sea salt & baking soda)
-deep breathing excersises from your stomach (please research if you have never done to know what I mean)
-Alka Seltzer GOLD *has to be gold* -this calms the body/and herxing
-Listens to comforting music (for me, comforting is 80s music lol)
-Dont watch anything stressful on the tv (News=def a no-no! or any arguing reality shows get me stressed when I am in fragile/shaky mode)
-no caffeine (I try to have my one cup of coffee a day-but cant do this when Im in fragile mode either)
-sometimes just venting helps, getting all the stressful thoughts off your mind (someone who will not judge you and is comforting-sometimes hard to find, I know)
-Totally up to you and your doctor, but maybe even a low-dose of valium so your mind can rest (its like when your head is thinking negative-it manifests in the body and causes more symptoms unfortunately)

Hmm, Im trying to think of some more. What I have listed above is all from experience and has truly helped me at those bad points. Reach in and find some more strength and look this disease in the face and say "Im gonna Kick your A**"!!

You WILL win the fight. Have you ever heard the saying "If youre going through hell, keep going"

Meaning, dont stop in the middle...keep going till you get to the other side! .....There's light on that other side ya know ;-)

Big, tight, 10 sec. HUG to you hun {XXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXX's}

-Courtney

Hi Akkami, I am really sorry you're dealing with this. The others have given you great advice. Keep posting, okay? We are here for you :)

Akkami don't give up. I've been sick for almost 16 years now and at one point wanted to die but I wasn't going to let satan win. I fought hard, I made myself work out, I didn't listen to news, I squelched the negative and read positive mental attitude books. I also found Ayervedic medicine and it saved me. I had just moved to south Florida from West Virginia, went horse back riding all the time or was at the gym. Then it hit me.

Just stay tough and thank God you have this forum. At the time I didn't even know what the hell was hitting me and had nobody to talk to about it. Doctors told me I was depressed. I knew better.

I will pray for you, things will start getting better, hey it got worse for me before it got better.

Just hang in there and know you have us on this forum to get you thru the bad times.

Hang tough!

Oh my, so sorry you are feeling so terrible... I don't know if you are taking any pain meds or not. I was on the verge of killing myself the pain was so bad. I was given Tramadol for pain and it completely took my pain away and much of the tingling, burning and twitching. I can't imagine treating this disease without prescription pain meds... I have 3 young kids and was finally able to take better care of them. I'm praying you can get relief soon!

Looks like you're Igenex Positive to me!

Now you know what you're dealing with...and can get treatment.

Good luck!