Just got my positive Lyme resuts

Welcome to the forum Sparkyjo - this is a great place for support.

If you haven't already, please read the thread at the top of the page.."New to Lyme?...Start here". It has a lot of good information.

I live in Canada, too. I am being treated by a LLND as there isn't a LLMD here in BC. ND's here in BC can apply to have prescribing rights...which mine does...so I am able to get antibiotics.

I don't know if you're interested in the antibiotic route...or want to try herbals instead. Are Ontario ND's able to prescribe antbiotics?

To help find a LLND in Ontario, start a new thread titled ..."Searching for LLND near London, Ontario" .
You can also enable your email for members to get information to you.
Good luck, and keep posting!!!

Hi Sparkyjo:

I am unaware of any LLMD's in Canada. I do know of one here in BC that retired - years ago because he was treating patients with long term antibiotics and was constantly being investigated...and when they threatened to take his licence away, he retired. He now educates and does lyme research.

I suspect the MD's listed on CanLyme would only be treating with a short-term antibiotic (I only say this because I am in touch with a Lyme support group here in BC on Vancouver Island...and I have not heard of anyone seeing an MD for treatment. I correspond with the Facilitator of the group and her along with many others travel to Richmond, BC to see the ND that I see)

There is an MD in Vancouver, BC who treats using something very close to the Marshall protocol - which I believe is a long term low dose doxy regimen coupled with keeping your vitamin d levels very low. I wasn't "sold" on the treatment when i read about it.

Yes, my ND can and does prescribe antibiotics. There may be some in Ontario (ND's) who are LL - but I'm not sure if they have prescribing rights in Ontario.

The ND visits are not covered under regular medical here in BC. But, I have Blue Cross and 80% of the visits to a maximum are reimbursed.
If you did travel to see the ND in BC, after the initial consult, he would do phone follow-up appointments for a few months...so you would save money that way. - So, I guess you need to crunch the numbers and see what's more cost effective. If you go to the U.S. - how far over the border do you need to travel...and do you need to go every 4 weeks....plus, the appt. will be out of pocket - I don't think you can get reimbursed for that.

Welcome. Good to see another nurse joining and hopefully you find some answers and support. Im curious, as a nurse dud you encounter patients that eventually were dx with lyme and coinfections?

Thanks for the welcome Roxie60. I have been sick and off work for a few years. It didn't start with Lyme's though I suspect have had Lyme's for at least 2 years. Back in 2012, I was referred by a family DR. to go to emerg because I had come in with a perfectly red rash on my thigh, as well as swollen lymph node and 3 bug bites on by upper back by my neck and an extremely tight neck and headache.
Well.....after a few hours at emerg. the Dr. quickly learned of my history of a MVA and other long term injury and diagnosis which you may already have an idea of and sent me home saying the neck was acting up. The rash on my leg and bug bites were unrelated and sent me home. No blood work.
You know as a nurse I really failed myself but when you are in so much pain and sit in emerg in a chair suffering you are relieved just to go home. It wasn't until I watched Under our Skin and another documentary and saw a lit up bill board on Lyme's that I realized God was certainly directing me and my husband to get tested.

So as a nurse the only experience I have is knowledge of a young lady at my church that was diagnosed with Lyme's (she knew she'd been bit by a tick) and started Rx in Canada and then next thing you know she in on her death bed. Her mom is a nurse (and a hero in my books). She went to bat and next thing they realized she had a couple of the co-infections(Ehrlichia and Babesia) which are treated differently that Lyme's. She went south of the border and saw a Dr down there as well as some alternative things up here. She is 3 years past now and I asked her how she is and she said 90% better. She has been off her meds for 2 months and are waiting to see if symptoms return.
Otherwise all my experience of Lyme's is listening to my mother-in-law who is a vet talk about Lyme's for years now. In Ontario many vets screen yearly for Lymes and 3 of the co-infections. My family DR. wouldn't let me get tested for the co-infection when I asked to be tested. I told her that my dog gets screened for it so maybe I should as well.
BTW I tested negative for Lyme's in Canada.