Who has/had nerve pain as a symptom?

I've had numbness in my fingers, not sure why.

I've also had nerve pain from pinched nerves.

Margaret

I've had a lot of nerve pain, in my spine and the whole shoulder blade thing your talking about. It would burn so bad, the whole neck, shoulder muscles are always sore and still are but they aren't as bad since treatment.

I had stiff necks so bad when I first got the Lyme and for several yrs almost all the time but now I hardly ever have them.

Now my left hand goes numb a lot in early morning only but then tingles off and on all day. Might be permanent damage, who knows.

Hope you feels better soon Girlie, this is no fun, all the worry it has caused and wondering if it will eventually go away. I believe it will.

I also had the exact same thing Girlie. Horrible pain in my left scapula area, numbness in my left forearm and thumb/index finger, and loss of strength (I couldn't hold a frying pan). I ended up in the emergency room the pain was so bad in my shoulder, but I wouldn't suggest you head to an ER if you can tolerate it whatsoever - for me, hydrocodone did not alleviate the pain at all and the ER doc did want to give me anything else since I had to drive.

You probably need an MRI (if the problem is still acute) to ensure it isn't a herniated disc issue. My C5-C6 was badly herniated and I saw a neurosurgeon who said it was most likely going to need a fusion because it was "huge". Praise God it spontaneously resolved (which I attribute to God, not luck) so I have never had a steroid shot or surgery. I will say that the nerve damage took quite a while to resolve my strength issue, but I did regain 90-95%. I wouldn't ignore the pain if you aren't getting relief or progressing in a positive trajectory, because nerves can be permanently damaged if it really is a pinch that isn't resolving.

As my pain subsided (probably about 5-6 days) to a tolerable amount, I decided to wait on surgery. The neurosurgeon told me that if I wasn't getting worse, it would be beneficial to avoid surgery (obviously). He said the disc would be absorbed by my body and that I had to refrain from all physical activity (with a 10lb weight restriction) for 2 months. It did help me to use rotating applications of ice packs and also to get into a bath (full enough that my entire torso could float) and let my shoulder and head float to take the pressure off of the disc. Against the advice of my neurosurgeon, I did see a chiropractor and had my neck adjusted (it did not hurt or irritate my problem as I feared it might given the surgeon's "advice") and had them do some decompression of that disc. I don't know what I recommend to you, but those things worked for me.

I think, given the MRI, it is clear I had an acute episode going on. However, today I still get re-visted by weakenss, tremors, shoulder pain, numbness, etc in my left arm (and actually has progressed to my leg). I don't know this to be fact, but I suspect it is lyme causing this extenuating condition.

I have my first LLMD appt at the end of October. I can't wait to finally address some of these issues.

Thanks everyone,

I have had an MRI of my entire spine, and no herniated discs or any type of spinal cord compression. No nerves appear to be pinched.
The pain isn't acute anymore. It is a lot better in the shoulder blade area, but the arm hurts a lot.
I'm hoping that it is inflammation from the lyme.

I did have a cyst on my spine, though...which is un-nerving (pardon the pun).
It is a scary thing, for sure, but it apparently shouldn't be causing any symptoms because it's not compressing the spinal cord.
My chiropractor isn't worried about the cyst. He has three other patients with them, two remain asymptomatic with no change, and one person's grew and had to have emergency surgery to drain it, and now has permanent nerve damage. (wheelchair I think). He thinks there's a lot of people with them, and because people are now getting MRI's, they are showing up.
My theory is that the cyst could be caused by the lyme - causing inflammation...and it could shrink with treatment. I could be in denial, but I can't live my life wondering if it's going to cause permanent damage...and worry every waking moment about it. And, if it could possibly be lyme related...then I at least can hope that it will go away with treatment.