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anyone with MTHFR mutation ? concerned :((

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Posted 9/12/2014 2:24 PM (GMT 0)
any of you have compound heterogeneous MTHFR mutations? I know it is the worst combination

what does that mean in term of Lyme ?

will I die early or not recover at all cause my body is not able to detox well ?

what has helped you ? supplement? antibiotics? lifestyle change ?

what are you taking for your well being in general ?

I know I should follow up with naturopath or someone who is knowledgeable about this, remove my dental filings, but I can't afford any of these right now..

I am barely able to afford LLMD and still didn't go ..

so I am looking for affordable solutions..
any advice or insight ? IS THERE ANY HOPE FOR US ?

Also I Have H pylori...is it something related to Lyme ? worrisome ?any implications ?
Posted 9/12/2014 2:43 PM (GMT 0)
My daughter was just tested for those mutations and is heterozygous on two. She now takes NAC supplements from her doctor, but she just started. She seems to be doing great, but I don't know if it's just from the NAC or the other supplements plus the thyroid meds yet. Whatever it is, I'm just happy it's working.

I know the feeling of not being able to afford the LLMD appointments. It gets so expensive and money is so tight right now. What I do for myself and my two daughters is: get tested, sometimes extensive testing, to at least pin-point the problem area. Go from there with meds/supplements and continue treating on our own with very few and far between appointments to the LLMD.


Sinthia
Posted 9/12/2014 3:55 PM (GMT 0)
abenewhere1—

Which MTHFR mutations do you have?

This is a fantastic website that can provide good info regarding your questions:
www.mthfr.net

I tested positive for A1298C and M677T—one copy each. I'm not sure exactly what all my issues are, but I do know that the methyl issues cause me problems with a) proper detoxing; b) balancing neurotransmitter levels; c) blood sugar issues; d) and I have a predisposition to heart problems and maybe some other health issues and if my lifestyle also does not support good health in these areas I am more likely to have problems.

The weblink I provided has a reference list for practitioners who are "trained" in dealing with methylization problems. I found my new ND on that list. She has me supplementing with methyl forms of B12 and glutathione. I noticed an increase in energy immediately after I started supplementing.

In order to detox effectively with the mutations, you really need to supplement effectively and detox carefully. Diet is also important to control inflammation and prevent yeast/fungal overgrowth. H pylori is a bacteria in your gut that you can treat as well… lots of good info online about that.

There are a few people in the forum who do self treat—maybe they can offer some thoughts.

-p
Posted 9/12/2014 5:55 PM (GMT 0)
Pirouette, what are we supposed to do for detox when we have the mutations? Also, I am taking Methyl B12, but I didnt know that gutathione came in a methyl version? What else do you do for the mutation?
Posted 9/12/2014 6:15 PM (GMT 0)
Hi aben,

There are a many folks on this forum that have some type of MTHFR mutation. It seems to me that the general consensus is that it CAN be a major obstacle to healing but mainly...if one doesn't know that they have it.

Once you know you have it and find a good doctor, there are supplements and diet suggestions that can counteract (not sure if that is the right word) the mutation. Don't fret! Just get tested if you think you show symptoms of it and read up what you can online about it!

You will be okay! It is just overwhelming right now because you have so much to deal with. Just do/read what you can right now and you will get there - we're here for ya!

~beth
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