Posted 9/30/2014 6:53 PM (GMT 0)
Is there anyone out here in Michigan that has had a positive lyme diagnosis that has found a good place for treatment? I potentially have Neurolyme with brain lesions, joint problems, heart problems, and many other symptoms. The specialists I have seen for individual problems are shying away from treatment for me since my IGENX lab came back and no one knows anything about lyme. Since my area of Michigan doesn't have Lyme problems, or so they say, I'm looking for more options before my brain gets worse.
I do have a LLMD from the ILADS list, but I have some concerns and I'm looking for more doctors who are ILADS guidelines knowledgeable and isn't afraid to use IV medicine, and who can handle brain involvement, etc. etc.
My recent Dr. referral to the University of Michigan isn't going well since the University told me on the phone that they don't treat chronic Lyme, only those bitten recently (last thirty days).