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What symptom first started to receed in those of you who are feeling better?

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Posted 10/14/2014 5:55 PM (GMT 0)
Going into my seventh month of treatment from years of being ill and I feel worse than I ever have. To date, I've had zero improvement. I've actually added in many more symptoms than I started with. It has been extreeeeemly discouraging.

Last week, I started B12 shots on top of doxy, azith, Mepron, Heparin, T3, Testosterone, DHEA, Fish oil, B12 pills, Valium, ambien, and Vit D and Low and behold, this week I have 0 floaters in my vision. I know it's a little thing but if its actual improvement and not just a fluke, it will make me happy enough to do a jig naked on the dining room table to Neal Diamonds cracklin rosie (ill make sure the fam isn't home, don't worry).

With this coming to light, I'm curious what symptom started to go first for those of you that are now, or at one time were feeling much better. I'm sure it's just like everything else and it differs wildly, but I was just curious.

Thanks in advance.
Posted 10/14/2014 8:36 PM (GMT 0)
bump
Posted 10/14/2014 8:45 PM (GMT 0)
my worst symptom was the very first one to improve, Anxiety. I am so grateful for that. I no longer have that terror feeling in my stomach and body. I used to have this feeling of fear/dread radiating through out my whole body. I couldn't handle anything. I went to countless therapist and doctors who told me that I just suffered from general anxiety, I knew that there was a difference between being an anxious person and what I was feeling. I started ABX and within days I started to feel "normal" - Thank god I do not have that anymore!!! I hope that I never ever feel like that again. It was torture.
Posted 10/14/2014 9:29 PM (GMT 0)
Mine was foot pain this time around. My feet had begun hurting when I would be on them, then sit down for a bit. Trying to get back up on them was like walking on glass - or many very sharp stickers that deeply embedded in my feet. I hobbled badly for the first 5 minutes back up on my feet.

It didn't take much time at all for this improvement around a week - but I was only re-infected for a few months by the time I started back on my treatment I used last time.
Posted 10/15/2014 12:07 AM (GMT 0)
Energy and post-exertion pain along with fatigue.

But now the problems are back.

Margaret
Posted 10/15/2014 2:18 AM (GMT 0)
for the first time since Feb, today I have no brain fog. LOOVVE the feeling!
Posted 10/15/2014 12:13 PM (GMT 0)
My first sx to improve were gut issues, and weight loss (disease bloat). Then arthritic pain and stiffness mostly resolved. Still working on neuro issues, but most have greatly improved too.
Posted 10/15/2014 2:29 PM (GMT 0)
Mine were headaches. I had some really weird headaches and head pressure. That went away and now starting to some back.

I know everyone brings it up, but are you detoxing? My doctor gave me alka seltzer gold for herxing. Plus I do mustard foot baths, body brushing and take sarsaparilla. It helps. I notice I tend to feel worse when I haven't done it in a few days. Plus there are foods that help with detoxing.
Posted 10/15/2014 2:30 PM (GMT 0)
So awesome to see people with improvement!!! I Can't wait until everyone can post in threads like this one.

I have been in a very very very dark place these last few weeks, truly wondering how much longer I can take all this. Floaters are by far my least significant symptom, but getting rid of them has made me feel like I just won the lottery. I know God won't give me more than I can handle and I'm sure he knew how much I needed a victory, even if it was tiny. Now, on to the bigger symptoms :)

Cheetah, yeah, I do some things for detoxing. I think I have lemon water coming out of my pores and I do epsom baths and dry brushing daily.

Post Edited (Lymeinthecuckoonut) : 10/15/2014 8:33:34 AM (GMT-6)

Posted 10/16/2014 3:01 AM (GMT 0)
If you are doing that aggressive of a treatment and not seeing progress after 7 months it may be time to change your protocol. do you have a good llmd helping you?
Posted 10/17/2014 2:40 PM (GMT 0)
Headache and muscle pain went first. Not that I don't still have them sometimes, just not ALL the time.
Posted 10/17/2014 2:57 PM (GMT 0)
The first symptom that went away for me was the extreme, and I mean extreme muscle pain from minimal exertion. I was so debilitated, I couldn't even care for my kids. That was the worst one, and thank goodness the first one to recede.

I am so sorry for your struggles - I gotta say though, you are on potent stuff!! sometimes the meds can do more harm then good. you say you have not made improvement in months - have you been on the same therapy for months? bc whenever I was at a standstill for a few weeks, my Dr would automatically change my treatment plan. Over a 7 month period, she increased doses, added, switched around my meds about 5 times until I reached the 95% symptom free mark.
Posted 10/17/2014 3:22 PM (GMT 0)
I'll take a look at that Mike, I'm always looking for new things.

Kate, yes, I have a very good LLMD. He was one of the contributors that helped write the 1st ILADS Lyme treatment guidelines (and all that followed) and sits on the task forces petitioning to our govenor/state government for changes to acceptable/recommended treatments. My protocol has been adjusted several times and I'm sure will change again until we find out what works well. I have complete faith in what he is doing for me which even surprises me after everything I've been through with Doctors.
Posted 10/17/2014 3:25 PM (GMT 0)
You can also try activated charcoal or other binders - just be sure to take them 2 hours before and 2 hours after taking anything you don't want them to bind to like food/medicine/supplements/herbs.
Posted 10/17/2014 3:52 PM (GMT 0)
Thanks Traveler, I'll look into that as well :)
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