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LLND apt. suggestions?

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Posted 10/17/2014 5:08 PM (GMT 0)
I should have posted this yesterday to give enough time for replies...but I'll try now, anyway.

I have my LLND phone appt. later today.

I have had a bit of improvement on the biaxin/ammox combo.

I'm thinking this time, he's going to look at a cyst buster, or perhaps rifampin for bart. He was hoping the biaxin/ammox would help with bart. He likes to see more improvement in 4 weeks...so I'm thinking he may switch it up again.
He discusses options with me...and is quite flexible...as to the order of treatment.
I'm leaning toward rifampin for bart...and do cyst buster later.What do you think? How harsh/harmful on the body is rifampin compared to the macrolides and tetracylines, etc? I mean, none of it is without some risks of damage to the body.

So, if we decide on a cyst buster instead of rifampin...dont know which one to do? When I read other's protocols, sometimes there isn't a cyst buster listed....Is a cyst buster always necessary?

tinidazole, flagyl, GSE.

Last time he mentioned that he preferred tinidazole to flagyl.

I know there has been studies of mice getting cancer from tinidazole...but I'm thinking of going on it - just a couple weeks to see if it does make a difference.
What do you think? Is it worth it...for just a couple weeks..or am I doing more harm than good by starting/stopping?
I could follow up with the GSE after. I just don't want to be on any of the three for very long...

I know you can't make the decision for me...but I like to hear your ideas...so I can go into the appt. with a bit of knowlege.
Posted 10/17/2014 5:31 PM (GMT 0)
Just wanted to add - I've been on abx just over three months now. i have had only a bit of improvement overall in that time.

Two weeks ago, I had 2-3 hours of almost symptom free....and then several hours where the symptoms were minimal.

But, it hasn't happened since... I had been on the biaxin for a few days when this happened.
Posted 10/17/2014 6:15 PM (GMT 0)
IMHO, pulsing, or starting and stopping, is a bad idea...makes it much easier for the bugs to develop resistance.

As for the cancer from tinidazole/flagyl, someone put it to me this way:

Which would you rather have - guaranteed problems from chronic Lyme forever, or overcoming Lyme but with a minimal increased risk of cancer (which may be able to be offset with nutritional supplemention, IMHO)?

In other words, the risk of cancer is so low that many believe it is well worth it to get rid of the Lyme cysts.
Posted 10/17/2014 6:41 PM (GMT 0)
Thanks Razzle - I also wonder how much tinidazole did the mice get? Probably a heck of a lot. Sometimes I wonder about the validity of these studies...makes me feel better anyway.
Have they even studied lyme patients who have taken the tini and assessed how many got cancer?

How long do you have to be on a cyst buster? is four weeks enough?
When I said starting/stopping - I meant stopping for good after a couple weeks. But, if it's not long enough - as in 4 weeks, maybe it isn't worth it.

I hate taking medications...prior to lyme had only been on antibiotics twice in my adult life...and am not/have not been on any other meds.

It's interesting though, that I chose the abx route instead of natural.
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