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Today is just not my day...

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Lyme Disease
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Posted 11/24/2014 7:31 PM (GMT 0)
Ugh.... I'm tired of "hanging in there and staying positive". It's too much work.. Maybe I'm herxing or something but this is just really getting to me.

I have horrible stomach cramps, I don't think the antibiotics are going over well. I'm tingly numb and vibrating all over. I feel like someone is dumping cold water all over me. My feet hurt sooooo bad, im nauseous, my head really might explode, and I'm just in a bad mood. I'm snappy and grumpy and just plain exhausted. My brain isn't working, I'm all rashy and broke out. I'm bleeding and I'm not on my period. My neck won't stop jerking around. I'm embarrassed..

I changed the sheets on my bed and all the pillows and blankets, everything was covered in blood from my face and hands bleeding. My very expensive 12 inch thick memory foam mattress is stained with sweat even though I put 2 layers of sheets on it. I can't sleep for anything. I don't think it would be possible to detox anymore than I already am. I think its inevitable that I'm just going to have to keep getting through the days. Hope isn't comforting to me like it once was. I just want this to be over and I've hardly even started.

Maybe everyone feels like this at first. I'm sure I'll have a better day soon. But that doesn't help me today. Writing on here to you guys helps tremendously! It's nice to know that I'm not the only one, and that this is all pretty normal in the "Lyme world". Thank you all for being here. I'm going to take my pain medicine and see how I feel. Maybe I should wake up and take them first thing and it wouldn't get as out of control like this in the first place.
Posted 11/24/2014 7:40 PM (GMT 0)
You need to call your doc and explain what all is going on. Take each thing on your list and address them - are you doing all you can? If so, ask the doc for help. He can prescribe binders, and other things to help you detox, he can help you with something for your hands (at least some suggestions on what you can do at home) and other things.

I'm so very sorry that you are dealing with so much, and yes, most of us feel like this at least once - usually a lot more though.

This is not an easy thing to get through, and you have a particularly hard time with your hands being so bad.
Posted 11/24/2014 7:42 PM (GMT 0)
Yes, it is better to stay one step ahead of your pain. Once you start feeling pain the medication just can't help you as well. It's not copping out: it's a useful tool. It should help with your mood, as well.

Hope this bad spell breaks soon.
Posted 11/24/2014 7:57 PM (GMT 0)
He warned me that this month would be terrible. We email eachother all the time. I'm going in on Tuesday for the B12 shots and to get set up with a pain management doctor. The "lyme rub" stuff he gave me has been helping the skin on my hands alot. They haven't bled (that Ive noticed) since day before yesterday. They did bleed a little today after the shower, but that's because they got softened up.

I'm only on 250 mg azithromycin and 300 mg Rifampin once a day. He said it's very low, but he doesn't want me to have too bad of die off reactions..... I'm worried if I call and say that I'm miserable he will tell me not to take my meds. I can deal with it, I don't want to, but I can. I've been more miserable than this without meds.

It's not reasonable for me to try to feel better everyday. From what I understand, that just isn't possible with this disease. I'm just having an off day, and I'm in a horrible mood. There are all these things happening within my family and I just...ugh. I just can't deal with it on top of my symptoms. Not today. There is always tomorrow.

I'm taking alot of meds, and from what I understand all the bases are covered with my treatment plan. I think I'm lucky with the doc I have, he seems to be really really good. I will talk to him on Tuesday. I'm kind of assuming this is all because I drank the other night. Maybe by tomorrow I'll be feeling better once the alcohol gets out of my system.
Posted 11/24/2014 10:31 PM (GMT 0)
That sucks!

You don't have to stay positive! This sounds dumb, but let yourself feel your feelings. Or at the very least, just observe your feelings.

My exbf used to say he was tired of my crying, but then he said that he realized how I felt better after a good cry!

You can accept something, but that doesn't mean you have to be positive all the time.

Have you tried Vitamin K? And yes, IHL, it's that time again: Go to the doc or the ER.

Margaret
Posted 11/24/2014 11:40 PM (GMT 0)
Margaret what are your symptoms?
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