Babesia and Lyme~ weaker by the day? Am I crazy?

I'm new on this site and I read as many posts as a possibly could in hopes of trying to find that I wasn't crazy...well we all know...we will always did find a way to convince ourselves...we still are! Four years ago..I had neck surgery for herniated disc...c6/c7....I know...where's this going that has to do with Lyme? I promise you...it does...so the discectomy goes smoothly and within a couple months in back to work and all I well until within the year its bothering me again...surgeon says I should have those neck discs fused c6/c7...so now I have a metal plate and four screws in my neck behind my throat....I thought I would quickly heal and return to work like last time...but my body downward spiraled...I didn't know what was happening to me. The pain in my neck that was one or two symptoms....turned into about 40-50+ symptoms. Aches on my hips,shooting pains out every nerve endings,migraines,weakness all over, flu like symptoms,shaking,twitching,vomiting,feverish,numbness in hands and feet,numbness in my lips and face,fatigue. My doctors sent me everywhere for all kinds of testing...over 3 different states...I had doctors laugh me out of their offices...tell me I was a psych case...tell me I had no reason to be crying...that I needed to be inpatient at a pain clinic for months and seeing a psychologist...I have been pretty much in bed and out of work for 3 years because I am unable to function a full day...let alone a full hour without these nasty symptoms. My PCP diagnosed me with fibromyalgia and as of about 6 months ago told me I needed to get up and walk and that she refused to send me for any more tests...granted I've had so many mri's..emg's xrays..blood tests ects....I cried nearly everytime I left her office. After I left her office that day...I made an appt with a Lyme literate doctor 5 hrs away as I was determined I probably had Lyme where as my PCP wanted to hear nothing of the sort! Well long story short and 30 vials of blood later...Lyme and Babesia it is....I've been on medicine since this summer ,malarone....and just recently minocycline... and I feel lil I'm getting sicker by the day...I have days that I used to call flares...some call it herxing....where I can't pull myself out of bed Im so weak...my head I hot my body is cold...core temp 97.6...weakness...migraines..nausea...twitching...sharp pains all over..These episodes are lasting longer..
and longer... The scariest thing is the neurological part...I can't think straight to save my life...remember things...forget it! No pun intended :) I'm always at a loss for words....my old funny self...gone! What has happened to me..where has Lyme put me? Sometimes I ask that question literally because I really look around for a minute wondering...where am I...and then...oh yeah! I know now...phew!
One last thing...I think....is...I really can't get out to walk...but I used to at least be able to get out to a store or two...be totally in pain and exhausted but I would force myself...pay for it dearly later that night...but...we all know...we have to...but now...not always...but its starting to happen enough that its scaring me...I know that babesia kills off the red blood cells and of course red blood cells supply oxygen in our blood...but I'm scared and want to understand what is happening to me or if anyone experienced or is experiencing what I'm going thru....I will walk maybe 20 feet or so...if that and all of a sudden my legs will just Stop I guess...Im not sure how else to describe it...I can't take another step...and then I can't breath...my legs freeze right up..I dont know if its a brain thing...oxygen thing...muscle thing...but its really scaring me....I guess I'm really just looking to see I anyone else is struggling thru this....Im feeling alone lately....like nobody understands this is debilitating me and I'm not faking....and I'm not crazy.....

That doesn't sound off the wall at all...that was spoken of and then got pushed aside some how some way in the works...I know I cannot wear nickel or something of sorts in certain jewelry...I break out in allergic rash...trying to convince doctors of this...they think I'm crazy because these parts are made of titanium alloy...allergen free...I've heard it all..my throat has closed in...I've gasped for air...but they all claim the metal is fine...if I had all the money in the world...I would be taking this out...I need to find a doctor that does that sort of testing...as soon as I can get outta bed again....Thank you for that reminder....its been a good 8-9 months since that subjects been brought up....

What a rough road you're traveling!

Patient has a surgery, and because of the physiologic challenge of pain, surgery, healing, etc all the underlying issues come out and bloom in a frightful way.

So, you have Lyme and Babs and the sequelae of all the treatment that's gone before, and you're experiencing some scary stuff. Frankly, I think it's almost like it creates PTSD when we're suffering and then told either we "made it all up"/"are seeking attention"/"have unresolved issues"... etc.

Not very empowering for you at all. It's blaming and shaming, a way to avoid admitting they don't know what's wrong with your body, that their tests suck, that they aren't all-powerful doctor-gods after all.

Don't buy in, stay in the fight! This is for you-it's your body and your life. Don't give up!

You're being treated, the problem is known now. You can win this. The treatment can be tough and the self-doubt can be excruciating. But the way is open to you now.

These are the times when we find ourselves, right in the center of that cacophony of voices and thoughts of defeat. Right in the middle of the whole swirling mess is you, quiet and aware, at the center of it. And that is your strength.

I know it's scary. I know it hurts. At times your brain and body will act like they don't belong to you.
Don't give up. Doc says walk, get up and walk. 20 steps? OK. Maybe tomorrow we'll get 22.

Don't give up. Work closely with the LLMD, make sure he/she knows what's going on. Don't be ashamed to ask for help. Keep going. It's always darkest before the dawn.

Amen Pirouette...some of my docs that I saw make me sad that they still see patients every day ...

Sorry that all my sentences mash together...thats how they are in my head...how they come out of my mouth....Ive been a a big giant mess since my second neck surgery...not only did I lose quality of life...but I lost all of my friends...definitely not a pity party...because I am one tough goat....but you think you know your life and who will always be there for you until something tragic happens to you....and then you look around....and those you thought would be there aren't....and those that are....you never thought in a million years they'd be by your side......