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Worst day ever! Anyone else had this??

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Posted 12/4/2014 10:52 PM (GMT 0)
Hi All,

I'm hoping someone out there has had something similar to my experience today...

I woke up this morning, a little rough (but then this is normal to me with Lyme).. Had my green smoothie like I do everyday but just didn't feel right...

By 10am I was experiencing chest pain and feeling really agitated (like nervous body language and extreme stress, but I'm not the "stressy" type)

By 12pm I was useless, my chest, arm, neck and jaw were hurting with intermittent shooting pains and my heart was not beating fast (if anything slow) but really loud and prominent.
I was also really not (not sweaty), then really cold... Was dizzy and could not eat anything to save my life... Why??

I eventually seeked some advice from my GP who told me to go straight to A&E....

Long story short after 3 hours of waiting I had an ECG and bloods and everything was normal... As usual!!

However, today was far from normal and it has really concerned me... I should mention that I'm only a 25 yr old male and before lyme, was healthy!

What could have caused this episode of EXTREME pain? Why was it so much worse than every other day?? I've been on doxy for just over 3 weeks now so I don't think that's caused it.


Can anyone help with this? Would really appreciate it

Post Edited (Duarte) : 12/4/2014 3:55:35 PM (GMT-7)

Posted 12/4/2014 11:23 PM (GMT 0)
Welcome to the Herxheimer reaction! Don't mean to make light of a frightening and altogether disturbing phenomenon, but there it is -- a worsening of symptoms or the appearance of new ones.

This is, as awful as it is, a very good sign. Your meds are working. The worse you feel now, the better you will feel in the long run.

Get serious about detoxing. You know, you read about it in the "New to Lyme" thread at the top of the forum. It really does help.

And please try to remember that everything you are going through now will make you a better person. And stay out of A&E -- they can't help you. Except if you really, really need to be there
, and then they're great!
Posted 12/4/2014 11:26 PM (GMT 0)
ding ding!

"on doxy for just over 3 weeks".
welcome to herxland, brother.
That was your first major dieoff. Get thee in a warm Epsom salt bath, hydrate, do your detox and herx protocol. Hopefully the first will be worst.
Posted 12/5/2014 12:53 AM (GMT 0)
You must detox. There are a number of different ways to detox. Look at the first thread (top of page). It will tell you what you need to know.

Are you only doing four weeks?

Margaret
Posted 12/5/2014 1:02 AM (GMT 0)
Oh man! I remember those days.

I ended up in the ER twice because I was sure that I was having a heart attack. It was hard to learn to ignore the symptoms, so each day felt like for sure that was my last day on earth.

I went to bed not knowing if I was going to wake up the next day. That was 15 months ago and yet here I am..so far.

The good news is that it gets better. Just hang in there and you too will get better, hopefully sooner than later.
Posted 12/5/2014 7:59 AM (GMT 0)
Thank you all so much for your comments... Glad to hear I'm not going crazy... How far along are you in recovery? I was only diagnosed by my GP a few weeks ago (when I started the doxy)... Bloods show IGM and IGG positive! Seeing a 'tropical disease specialist' in Wednesdsy as the doxy didn't seem to be working... Unfortunately the NHS don't like to give long term abx which sucks so hopefully I'll have a solution Wednesday and possibly some IV Antibitotics... Time will tell I guess... How long does the hero last? I still feel awful but not as bad as yday
Posted 12/5/2014 10:12 AM (GMT 0)
How long a herx lasts depends on a lot of factors (how sick you are, how long you've been infected, how easily your body can get rid of toxins, and what kind of medicine you are taking, for example). I'm glad you are feeling a little better.

I hope the doctor you see Wednesday has some experience in dealing with Lyme disease. Having such a positive test result is a real benefit. Please do make sure that you are treated beyond the resolution of symptoms.
Posted 12/5/2014 1:21 PM (GMT 0)
I have done the same. But for me it was Lyme triggered en.wikipedia.org/wiki/Coeliac_disease.
The immune system attacks own body and inner stress is how its initial phase can feels.
If suspecting this, its an easy blood test
Posted 12/5/2014 3:00 PM (GMT 0)
Please read through our detoxing suggestions and get started right away! The longer you wait the more toxins that will build in your body.
Posted 12/5/2014 3:42 PM (GMT 0)
I see my LLMD in 2 weeks and the plan is to begin antibiotics. This herx stuff is what I'm pretty nervous about. I can't remember who, but someone had recommended not to start all the abx at once, but to add one in every week or so. But with Duarte's herx coming at 3 weeks, should I add abx every 3-4 weeks? Or just dive in?
Posted 12/5/2014 3:52 PM (GMT 0)
You can start detoxing now to lower the toxin load in your body - this will help.

You can wait as long as you feel you need to when starting multiple abx. Some find they are sensitive enough that they need to only start one every few weeks, others can start them with only one week in between - but this varies greatly, so unfortunately no one knows until they try.

Remember that not every herxes hard. It's all about the toxin load in the body - the higher the toxin load, the more likely you are to herx. Some people don't herx at all!
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