Drs. Horowitz, Singleton and Fein all write extensively in their books about
anxiety being a symptom of Lyme.
I, too, have recently begun to wonder if I also have Bart despite negative testing....only because the soles and sometimes the arches of my feet are a bit sore (not painful). I started a new abx regimen two weeks ago and that might be to blame...
No matter what, it's clear to me that a worsening of our symptoms or the development of new ones are to be expected when we start abx, when the regimen changes and/or we're dealing with a Bb growth cycle.
I had 3 measly, mild and transient issues when I started treatment and Bell's Palsy so mild that neither I nor my family noticed it. I *know* I would have never thought to consult a LLMD if I hadn't pulled that nymph deer tick out of my abdomen. After my latest-greatest herx, the number of different symptoms I've had since starting treatment is up to 30 something. Thank goodness I have never had ALL of the symptoms at the same time but my experience follows what I've read in the mentioned books. It's herxing - blech.
I think we all need to remember that Lyme and co's are clinical diagnoses and we are paying our LLMD's for their clinical skills. We need to trust our LLMD's.
It's totally appropriate to be actively involved in our treatment and one of the best tools I've found is maintaining a detailed daily symptoms journal from which I summarize symptoms and rate them in a spreadsheet I give to my LLMD at each appointment.
Think about
it - a clinical diagnosis is based upon symptoms. If the doctor is provided with a comprehensive summary of the individual's symptoms, he/she stands the best chance of sorting everything out and treating accordingly.
Just because we are still dealing with symptoms does not necessarily mean we have additional infections. It's become very clear to me that it takes a long while to heal from "just" Lyme.
Heck, in Dr. Burrascano's guidelines, he writes that it takes an average of 4-6 months to heal from early disseminated Lyme....and that's if the patient doesn't have co-infections, immune deficiency of any type nor history of steroids. Not surprisingly, the longer a person had any infection that went untreated, the longer it will take to heal.
It seems best for our peace of mind to trust in our LLMD's and not go looking for pink elephants.
Post Edited (cd3764) : 12/8/2014 8:03:47 AM (GMT-7)