Burning skin and bartonella

I have not been diagnosed with Lyme, but I suspect I have it. Waiting for an appt with a LLMD I can afford to see as well as an order for Igenex testing...

I get burning sensations on my skin from time to time. I have had it in my feet and in my face before at different times. I get it more often in my arms and hands though.
I have it right now in my right arm . I hate it. It is usually accompanied by a feeling of exhaustion in my arm. Like I have carpal tunnel or have been writing for days (I have been checked for carpal tunnel and do not have it).

Hi R.F.C. Welcome to the forum!

YES! FOR SURE.....I HATTTTTTTE the Burning!! Feels like acid kinda. Actually started around my heart area and on limbs in beginning and then when started heavy abx and had a lapse in treatment, it started on my top of my head (or scalp kinda) and now my eyes burn also. I pray it doesnt get any worse. I believe its neuropathy. Lyme or Bart in the CNS (nervous system). Either that, or the die-off of bacteria affecting the nervous system.

Hmm, things to help..... ALA has helped some (alpha lipoic acid), I take 100-200mgs. When I take a multi-vitamin it helps a lil bit (I think because of the B vitamins in it help nerves). Sometimes taking a vicodin pain med has helped but cant take that too much because dont want to get an addiction. Oh...and for some reason, its worse when you stress. Gotta try to 'block out' any stress or avoid stressors if possible.

One night I was laying in bed with head burning away and couldnt think about anything else and it was driving me crazy! So I had been meaning to give the dog a bath so I got up and made myself give her a bath (it was like midnight!) but sure enough because I wasnt paying attn to it while being occupied and bathing her, it subsided! Weird.

The Meriva kind of Curcumin Phytosome helps too because its anti-inflammatory.

May I ask, where are you burning on the body? Curious....

I hope you feel better soon

{Hugs}Courtney

Hi Real Food Cook!
Welcome to our community!

If you haven't yet, please be sure to read through our "New to Lyme? Start here!" as it's packed with helpful information, including symptoms lists, detoxing suggestions, probiotic information and more.

In my experience, I had such a severe burning sensation that I couldn't wear clothes or have anything touch my skin - and it was my entire body that felt that way. This started after my trial of pharma abx, and before I started herbs the first time. I knew that I was overloaded with toxins because of other symptoms I was having, so I started detoxing heavily and even the skin sensitivity went away.

So I would encourage you to take a look at your detoxing routine and see if there is something that you can't add to it. It could be just due to a need of better detoxing.

I would greatly encourage you to get a good detox routine started. Not only do we get toxins from things like the water and food we put into our bodies, but as the Lyme bacteria dies, it puts off it's own toxins as well that can overwhelm the body. Detoxing with the things that we use can reduce your symptom severity.

Start off slow though - many find that if they dive right in that they create a herx (Jarrisch-Herxhemier reaction), because too many toxins are being released from tissues and go into the blood stream. So, for example, if you wish to use the Epsom Salt/peroxide soak that is described in the "New to Lyme?" thread, you would make sure that you used only warm - not hot- water and would only stay in the water for 10 minutes the first time or first few times until your body had shown some tolerance for this.

We are here to help you learn about many aspects of healing from these infections. So be sure to ask lots of questions!!

So what kind of treatment are you doing? You'll find people doing a large range of treatments in our community.

I have had this burning sensation on one of my feet and also my scalp. I attribute it to Bartonella because whenever I increase my drops for Bart these things tend to get worse.

Oh okay gotcha....well actually, now that I think about it, my lower back used to get it too(right above the tail bone. Oh and between my shoulder blades too. It def migrates. *Sigh* your not alone R.F.C.

Like others above mentioned, Detoxing does help give some relief always. For example, Bowel movements(not to be TMI-but we all have em!), I notice a big difference if Im not regular with BM's. Its one of our detox pathways and if not getting the stuff out that way fast enough, its just sitting there with the toxins essentially 'hanging out' in your body still...and even worse, getting reabsorbed in the intestine and in bloodstream to be recirculated and make you feel crappy.

This was just an example, but on top of this many like to use 'binder' type supplements such as activated charcoal to help bind toxins and move 'em out even more. I will post my fav site below for a good run-down of the majority of detox options as we have a handful of detox pathways that need to constantly be detoxed with lyme & co's....

www.tiredoflyme.com/detox-methods.html#.VIuUqSvF948


Also, like I mentioned, try not to think about it. Try to even occupy yourself with doing anything so you dont think about it. If you dont feel like moving too much, at least put on some good music and kinda get lost in with singing along or watch tv. Getting up and making myself clean has been a good distraction at times.

Oh and let me tell you this, when the burning started to get kinda bad for me, I was scared to death too and crying alot also. I searched and searched online to see what I could find. Theres not a whole lot about this but I kept coming across posts from this very site from a past member who could not figure out the burning. She had posted about it here and one other forum. Her email was posted in the other forum so I felt so compelled to contact her. Omgosh she was so sweet and is 100% back to normal living her life healthy! She went through the crazy burning like we are dealing with but it got better with treatment. In our exchanged emails she shared many good tips. But to do with the burning, heres a part from the exact email of what she told me and it really helped and resonated with me:

""My initial symptoms were body wide and numerous like yours. I had each of the symptoms you describe and now believe the burning to be related to the abx and possibly from toxin build up. Anxiety creates its own neuro symptoms that complicate and intensify what you feel. Anxiety can create its own burning and twitching.
Best advice an old timer Lyme patient gave me..learn to accept and ignore the neuro stuff mostly. I know its difficult but it will go away.""



Hang in there R.F.C, it will get better the more of bacteria load you keep hitting! As they say "we just gotta get worse, before we get better!"


{Hugs}Courtney

You really should move your detoxing items at least 2 hours away from your probiotics - the detox caps will bind to the probiotics and not let them get absorbed - and then the detox caps can't bind to the toxins to move them out of your system.

If you allow 2 hours between them, detoxing caps first, then that will be digested and absorbed when you take the probiotics 2 hours later to replenish your digestive track with the good bacteria.

The detoxing should decrease the need for the Neurontin in time. You can also add ALA (Alpha Lipoic Acid) to help yourself detox - Dr. Horowitz recommends it as a precursor to glutithione - a master element needed to detox.

oh and I forgot to mention that I really overdid it yesterday moving and cleaning out a bunch of junk from my parents house I had left there. when I got home after being there all day in the hot sun, I started having ovarian cramps (remember, I think I might be preggo) and I thought “oh no, I overdid it and am having cramping now”... so I got an epsom salt bath. not very hot at all. I can’t do the hot hot water. I usually get cold showers.

but now thinking back i’m wondering if I got a herxheimer from being in the 80+° weather a lot of the day, driving 2 hours, I almost hit a motorcycle who didn’t yield in a round about, AND my baby screamed and cried almost every 30 minutes all night cuz he’s teething. a mixture of those things I suppose could certainly cause a huge stress response that would give a mild “relapse”??

sorry talking out loud

Oh my word Saraeli, you may have hit the nail on the head! I was just in an old bedroom but it was very dirty, some mild dust. But this is the bedroom I was exposed to mold in when I lived back at home... at my sickest.
My parents have renovated and removed the moldy porch outside my old bedroom, but I wonder .....

I used to have moderate mast cell responses to certain high histamine foods and heat, and basically any stress.
The reason I was out in the sun so long at my moms which I would definitely avoid normally, is because my car battery died so I was trying to hook it up to my dads charger and it was pretty stressful after a long day already. haha. so just yeah maybe a combination of things.

but I have had completely regular periods my whole life since I was 11 years old, I started them back up when my baby was only 7 weeks old. they were completely regular until just 3 months ago. Suddenly I had them every 14 days!!! which is bizarre because they have ALWAYS been every 32 days.

RealFoodCook said...
Does anyone else have migrating burning all over their body with bartonella? It feels like a terrible burn but there is nothing to see. I've read a lot about burning feet and shins but not anywhere else on the body.

I have it constantly, used to be my feet. Now it's in my head and chest area, scary .

Traveler said...
Hi Real Food Cook!
Welcome to our community!

If you haven't yet, please be sure to read through our "New to Lyme? Start here!" as it's packed with helpful information, including symptoms lists, detoxing suggestions, probiotic information and more.

In my experience, I had such a severe burning sensation that I couldn't wear clothes or have anything touch my skin - and it was my entire body that felt that way. This started after my trial of pharma abx, and before I started herbs the first time. I knew that I was overloaded with toxins because of other symptoms I was having, so I started detoxing heavily and even the skin sensitivity went away.

So I would encourage you to take a look at your detoxing routine and see if there is something that you can't add to it. It could be just due to a need of better detoxing.

Hey there, pls let me know how u detoxed heavily? What did u take

Thank you Traveler for coming back to post!

We miss you here!!