Hey Lymepickle,

How are you feeling these days?

You are starting to sound like Burrascano - he crashed 3 times, blasted it 3 times and the third time, it did not come back - the author of Cure Unknown did it too.

I wish he was still practicing. Not sure he would take my son... Dr. Z refused us because of his psych issues which are So much better now.... but she still will not take him. :(

I think he has a way to go, another 6 months maybe and he should be sharp. His movement is calm, small tics only, some short episodes where he zones out, but the raging is gone and with the last two detoxes, he tells me he is clearer. He wants to get back to school, just not sure a full heavy honors load is a good idea. Last time he got "kicked out", missing days, no homework done or much work in school, but home school is only 1 hour each main subject - like nothing and he's bored, lonely and depressed. Now it's more sad than scary.

Son #1 won't listen, no symptoms, just a rash and had 4 weeks amox. (not enough, LLMD even said so). I want him to take Oil of Oregano 2 drops 2x a day and probiotic at lunch forever, just in case - he doesn't want to hear anything about it.... ugh.

So glad you are down the road here. This summer was so bad for you. You are probably really lucky, not that you have it, but that you were all over it so soon and had the presence of mind to do all you did with insane research, it always pays off. I have one mom now in total denial after I gave her so much information - she said too much knowlege in the medical field is not good... I told her knowledge is power and will help her daughter be treated (already positive for lyme in the past... now passing out, getting concussions and knee problems... but oh, it can't be lyme!) :(

So good for you, you have an excellent reason to celebrate life this new year!

Hey Lymepickle! Thanks for the update! I was wondering how you were doing.

Did you ever get a rife machine?

Glad to hear you're living life!!!! yay for you!

Okay - if you come back on the forum - I got a question...lol

I am on biaxin and ceftin...but in January, Dr. C. is prob going to pull the biaxin...
What do you think about ceftin and rifampin together?

Loveyourchildren - Yes it's been a long rough haul for sure... Actually my worst was December, January, February, and March... Then in April I got much better... But for the longest time I was not really getting any gains in health... Just hovering around 90%... But then it got a bit bad again in August, esspecially the burning and fibromyalgia like symptoms.

Utahgal - yes I did get the rife machine! I got the GB4000. It works! But to me it is hit and miss and i haven't been able to figure out the right patterns of use. I tried all kinds of frequencies, and I used lyme channels. The first time I used it I got a bad HERX in my spine and sternum. Like it was pretty powerful! And I felt a moment of panic actually. Definitely a reaction. Then there are times when I used it and got tendon pains and muscle twitches. Then times I used it when after I was done I was completely symptom free, times where I had 0 herx reactions at all, and then times when I finished and I was super achy. So to be honest? It seems hit or miss to me.

Kit Kate- I got the wild cherry bark extract on amazon... I just want to say please take at your own risk, as wild cherry bark is in my opinion one of the more toxic herbs to the body. Some Doctors recommend not using it longer than 2 weeks, some say 1 month. But I am going to be taking it for 60 full days total. Then again I am just taking it once per day. For bart symptoms - I had a feeling like my body was on fire, intense anxiety, insomnia, red eyes, ice pick headaches, burning headaches, foot pain lots of inflammation. It was pretty bad. But both my LLD said I have bart for sure based on my symptoms.

Girlie- Dr.Chan says no more biaxin? Not sure about rifampin and Ceftin together. If you are going after bart, maybe try ceftin and some bart herbs? I thought the bart herbs worked quite well, for me they did at least. I think rifampin needs to be paired with an intracellular antibiotic like doxycycline, mino, Biaxin, azithromycin, or Septra DS. You can ask Dr.C about it. I think rifampin and ceftin will certainly cause yeast to grow! They did in my experience on each drug by itself! So the combo might make yeast grow! Lol I know I said this many times but might want to consider nystatin with that combo and increase your probiotics.

Traveler- thanks again for kind words and hope in my recovery.
Like I do agree with you on the fact that it is unknown when we finish treatment if we got every last germ... So my plan is to focus on rebuilding my body, my gut, doing lots of juicing (probably daily), and maybe a few immune support herbs. I might also do weekly half an hour rife sessions. Might take a few anti-microbial herbs too but just something light and tolerable. I am going to make sure I have abtibiotics ready just in case! And I will still avoid alcohol too, so I do have a plan. It's a life changer for sure! I used to be the type of person that likes to enjoy beer and sometimes to excess. So I guess it's got a good side and a bad side to it but I think overall it maybe for the best. For someone like me, I won't stop until I feel completely well. Keep in mind I also have gut and mitochondrial damage from the antibiotics that needs to be resolved. Eventually I just want to adopt a healthy lifestyle that I can maintain.

Mister Mike- I take 2 dropper fulls per drink. With the woodland essence herbs the droppers are actually pretty long, but I just get what I can with what the dropper can suction from the bottle twice.

Post Edited (LymePickle) : 12/21/2014 1:08:09 PM (GMT-7)

Just curious, LP - have you checked out Astragulus for when you are healed and trying to prevent future infections? Buhner says that this raises the parts of the immune system that attacks Lyme, so it's good as a preventative, and for early Lyme*. I'm using it this time around and it seems to be honestly helping.

*Astragulus isn't for use in chronic Lyme as it can bring on a huge herx and/or autoimmune issues.

So glad you are feeling great, you got hit pretty hard. Prayers for total healing. It's awesome your back to your self pretty much.