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Lyme and constant bleeding (girl problems)

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Posted 12/21/2014 6:23 PM (GMT 0)
I've been bleeding almost everyday for over a year. Mostly just spotting. It's not like a period at all. It's pink when I wipe after I go to the bathroom.

Is this because Lyme messes with your hormones? Or is it because the infection is in there causing so much inflammation that it causes bleeding?

When I just woke up today there was pinkish white stuff just running down my legs. I had to change all of my clothes it was that bad. My OB ran some tests and when nothing came up he said it must just be normal for me. I really hate that answer. It's not always this bad.. but right now it is.

Anyone have any suggestions?
Posted 12/21/2014 6:31 PM (GMT 0)
I don't care what your doc said, that's not normal for anyone! Although Lyme does mess with your hormones and your cycles quite a bit, it shouldn't be brushed off like that!

You should see about finding a good doc that can help you balance out your hormones - that will likely help you a lot. Just going to an Endo in your area won't likely be a good idea.

I found mine by joining this group and having access to their 'Good doctor list': www.stopthethyroidmadness.com/how-to-find-a-good-doc/

They will be able to help you balance out all kinds of hormones, not just estrogen or testosterone - but the thyroid and adrenal hormones as well.
Posted 12/21/2014 6:36 PM (GMT 0)
That may be a good idea. I wonder how much it costs... I'll go to that website and check it out.

I figured it was hormone related. It's a really gross problem to have. I wanted to slap my OB when he said it was normal!
Posted 12/21/2014 6:44 PM (GMT 0)
I hate it when they say stupid stuff like that!! I usually smart off with something like "if it was your wife or daughter, would you brush it off or contact another doctor???" with the evil eye, of course!!!
Posted 12/21/2014 8:14 PM (GMT 0)
It would be easier to get second opinions if my insurance was more on board. They make it really difficult to switch doctors. Which makes me not want to offend the ones that are covered for fear I'll get worse care in the long run.

Sucks.
Posted 12/22/2014 1:07 AM (GMT 0)
Have you been checked for cysts. I had a similar issue, but not quite the same and mine turned out to be very large ovarian cysts. They eventually reduced on their own. But I went to the hospital for excessive bleeding down there and I got a whole abdominal work up done ultrasound and ct scan and that is what they found.
Posted 12/22/2014 2:58 AM (GMT 0)
Are you on a high dose of abx? I started spotting a lot more when I started 2,500 mg a day. I even posted about it recently!

Do you get full periods or only spotting?
Posted 12/22/2014 3:11 AM (GMT 0)
So sorry IHL. Don't know what say other than definitely try to get a second opinion. My cycle is all messed too so I understand the frustration and fear. Hang in there. I hope you figure it out/get some relief soon. Keep us posted.
Posted 12/22/2014 11:17 AM (GMT 0)
I had pink discharge and spotting for years. We couldn't have intercourse without me bleeding. The gynaecologist said that my cervix started bleeding as soon as it got touched. She suggested they would burn the tender veins there. I never went through with that, cause it wouldn't eliminate the spotting, only the 'clear' bleeding. And I didn't want them doing that procedure either.

My hormones were said to be normal, no cysts, an uterus straight out of the schoolbooks she said.

I started using Nuvaring as contraceptive (prescribed by my llmd) and it all became normal. Makes me think,it was hormonal after all.
I need a new gynaecologist...
Posted 12/22/2014 11:55 AM (GMT 0)
Remember that everything has a cause, we just may not be smart enough to find it. Like most, your physician isn't interested in finding the cause. Knowledge is the key so read as much as you can and find the most knowledgeable physician you can. What you have sounds hormonal, but it has a cause and this could be something as simple a copper deficiency. Copper is essential for blood clotting and numerous other processes in the body. As Lyme patients, we have a tremendous amount of oxidative stress. Copper is essential in reducing free radical formation as well as stimulating the immune response. When copper levels drop, our immune system is diminished and our oxidative stress increases. So in essence, fighting bacteria every day can deplete copper levels. It's a downward spiral that will not correct itself without intervention. Most physicians fail to see this. I would get checked for low copper levels.

Post Edited (Georgia Hunter) : 12/22/2014 4:58:17 AM (GMT-7)

Posted 12/22/2014 6:12 PM (GMT 0)
I actually had a lot of heavy metal testing done about a year ago. I'll try and dig out the papers and see what they said. As far as I remember nothing was out of range. But doesn't that change once you start treatment?

I also completely forgot. I have a Mirena IUD. it releases hormones slowly and is notorious for messing up your cycle. I got it put it because for one I'm terrified of having another sick baby, and for two because I have endometriosis really bad and I heard it helps. I think it did help the constant cramping. But thinking about the last year I've been bleeding near constantly and I have way more cysts on my ovaries.

My stupid brain. I feel really dumb right now. Ugh.. I've wanted to get it out for a while, but I'm too scared. I know it's going to be painful. And I really don't want to get pregnant! I know there are other options. It's not like I have sex as it is anyway. I told my LLND about it and he encouraged me to keep it for now.
Posted 12/22/2014 6:19 PM (GMT 0)
Even though it may be causing this??? I think I'd get a second opinion on that!
Posted 12/22/2014 6:35 PM (GMT 0)
Ya... I'm so used of having the issue. The thought of going to a doctor that will likely tell me I'm being crazy is such a turn off. I've been conditioned throughout the years to think this way hahaha. How awful is that?! I'm choosing to live like this because I'm actually fearful of being called a hypochondriac. Even though I've been bleeding for a year and in pain.

The Lyme life. I think the answer is likely the mirena. I called about 7 or 8 months ago to ask if this kind of irregular bleeding is because of the mirena. The lady told me she had no idea and I'd need a pelvic exam. When I went in my OB said I was very stoic for dealing with it. But had no solid answer. He said it could be a lot of things. Stupid...

I think what I need to do is get it out and give my body time to get back to normal.
Posted 12/22/2014 7:30 PM (GMT 0)
I asked my doctor last week about going off BC all together. She told me to stay on for now. Maybe the thinking is that less hormones and drugs in your body negates the prevention of pregnancy?

I'm still considering going off...but I'm giving it a little more time to decide.

Posted 12/22/2014 8:01 PM (GMT 0)
A little off topic, but having a heavy metal provocation test come back negative doesn't mean you are metal free. It simply means they didn't see any metal release during the test. Metals that are sequestered inside of pathogens will not be released. It can often take months of proper methylation and immune function before metals are released.
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