My 10 yr old says he feels like his joints are twisted

Poor little guy… When I have my rough days, I think about all the brave kids battling this hairy, ugly monster day in, and day out—often with more toughness and resolve than most adults.

And then I think of all the mothers and fathers watching their children live in such pain and frustration, missing out on their childhoods… who have SINGLEHANDEDLY done what no doctors could or would do to find answers and a path toward recovery.

I have no words of wisdom—other than my joints can feel horrible before I even get out of bed, then feel fine 1 hr later… or feel OK all day and then feel horrible when I lie down. No rhyme or reason. Sometimes it feels better to move around, sometimes all I want to do is sit still. My muscle pain is the same way… very difficult to pinpoint triggers or reasons.

I hope he gets a good night's sleep.

-p

Hi Simela,

Yes to everything Pirouette said: sorry he's going through it and that you have to watch. But sounds like you both have a pretty good attitude toward this whole ordeal.

I had lyme as a kid too (but didn't know) and my joints often felt that they would bend backwards. In high school during basketball practice my coaches could see when my knee caps would slide out of place and I would fall down. I had shin splints that felt as if a huge knife was inserted between the shin bone and muscle and was being wedged back and forth--excruciating. So, some of it was hard to explain and some was visible. Now I know both are symptoms f Lyme. They went away when I stopped intense exercise.

Now that I've been on doxy for a few months my knees often feel brittle and like they are bending backwards again, as if my legs are going to buckle in the wrong direction. I have no idea if this is similar to what your son is describing, but I do know it's normal for me. I definitely have the sensation that the Lyme is hiding out in my knees right now as everything else starts to feel better...

As a kid my dad would rub alcohol on my joints for temporary relief (old-school fix for "growing pains") or my mom would rub Tiger Balm or Arnica Cream or Gel for relief. These still work now for me. Maybe they will give your son some relief as well. Good luck!