HealingWell
Search Close Search
☰

Igenex results help!

Support Forums
>
Lyme Disease
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 1/27/2015 1:45 AM (GMT 0)
I need help figuring this out, I have felt fatigued and crappy for about 7 years now, 2 years ago i was diagnosed with a complicated gene defect etc which could explain some symptoms but I got treatment and no change in how I feel, I am foggy, tired every moment of every day no matter how much I sleep. My muscles ache so much I have a hard time working and when I do I feel pins and needles. I can't think straight my mood is up and down, anywho here is my Igenex results and if anyone could shed some light on this it would mean a lot to me.

IFA, B Burgdorferi 40 (<40 Negative 40 Equivocal = >80 Positive)

Lyme IgM Western blot
Positive
18 +
23-25 +
28 -
30 +
31 -
34 -
39 ++
41 IND
45 -
58 -
66 -
83-93 -

Lyme IgG Western blow
Negative
18 -
23-25 -
28 +
30 -
31 IND
34 -
39 IND
41 ++
45 -
58 -
66 -
83-93 -

CD57 NK Cells Absolute CT 44
<40 Low
40-98 Borderline
>98 Normal

CD57 NK cells % Lympho 1.52
<2.26 Low
2.26-4.65 Borderline
>4.65 Normal

These cd57 scores really freak me out.

But my other question is, if I have felt this way for like 7 years now why is the Igg negative?
Posted 1/27/2015 3:10 AM (GMT 0)
sanyi3—

Sorry you are feeling horrible… your immune system is clearly overwhelmed. And your symptoms and your WB results look eerily like mine! Also, my last CD57 was 44—the one I had before I started treatment was a little higher. BUT those levels are not unusual around here so don't freak out.

And those bands are clearly indicating lyme. And there is much controversy of the IgG vs IgM results—most of us and most LLMDs ignore the supposed differences that one indicates an old infection and one indicates something new… since it's a serology test, it relies on a functioning immune system to provide accurate results, which is nearly impossible for anyone with lyme & confections. So please don't fret about the differences between the two.

What matters is that you need to find a lyme literate MD—or LLMD. I'd start with reviewing the "New to Lyme?" thread at the top of the main page on the forum. It is a broad review of everything you need to get familiar with to help you understand why you need a lyme specialist and to help understand the context for your fatigue and muscle pain and what you can do while you're waiting to get in to see someone.

Once you have reviewed that info—you might still have questions so please come back and ask any questions you might have. There are many posters here who generously offer advice and support. Sorry you are here with us but I'm glad you found us. ;)

-p
Posted 1/27/2015 3:12 AM (GMT 0)
Yup you have lyme. Don't be to freaked about the CD57 if you are just starting treatment. Before treatment mine was 15, one year into treatment it's 24. Someone else may be able to explain the negative IGG better.
Welcome to the forum!
Posted 1/27/2015 3:22 AM (GMT 0)
Thank you for your responses, I am seeing a naturalpath doctor because their isn't any Lyme Md's here in Alberta Canada that I can find. She is trying to fix my candida problem first but the syntol is really hard to take I have bad effects from it. She said it will take around 2-3 years to clear up everything, and at a cost of 600 a month... I wish I had a MD here that would help. My GP doctor refused to even test me for anything she was stuck on I am depressed, which I am not.. she wouldn't test me for anything I asked for, so I found a lyme doctor that specialized in a lot of chronic problems and she thought it was lyme just from my symptoms so I sent to Igenex and had these results. My GP refused to look at the Igenex results or even do the Canada test for it. I am up in arms with my doctor at this point and not sure if I should try to find a new GP or follow the non antibiotic Chinese medicine approach from my lyme doctor, her name is Dr. R. from Calgary.. not sure if anyone heard of her.
Thanks again for the responses.

Post Edited By Moderator (Traveler) : 1/27/2015 9:38:23 AM (GMT-7)

Posted 1/27/2015 4:37 PM (GMT 0)
Hi Sanyi!
Welcome to our community!!

I had to edit your post as we don't allow posting names of the LL docs as they are persecuted and we surely don't want to add to the considerable risk to their livelihoods that they already face just trying to help us.

Actually, there are two LLND's in Alberta!! If you would like the contact information for the other LLND, please send me an email by clicking on my name or the blue envelope under my name and I'll be happy to share that information with you.


As others have already said, the IgG is nothing to worry about. These infections inhibit the immune function and the immune function is what these tests rely on, so it's obviously flawed.
✚ New Topic ✚ Reply