HealingWell
Search Close Search
☰

What's stopping the healing??

Support Forums
>
Lyme Disease
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 2/12/2015 3:26 PM (GMT 0)
A brief rundown. I started treatment back in June 2014. It required 3 months of treatment before I noticed any improvements. After experiencing troublesome GI issues. I was told to stop all meds and herbals in October 2014 after only 4 months of treatment. All my symptoms returned shortly after stopping. I started back on antibiotics in December. In January we added Malerone, a couple of weeks latter we added Buhner's protocol for bart.

I don't seem to be making any improvements now, I feel like I'm getting worse. WHY?? My LLND is confused and so am I. Could the lyme become resistant to the antibiotics? If so, what would be my next step? Could there be something we are missing? I have one copy of the MTHFR 667 gene. Could this be playing a role in it and would it stop the healing process dead in it's tracks? Could there be yet another coinfection that's hindering my progress? Why did I have improvements the first time around if there are other coinfections.?

My husband and I did the 23 and me test and I have received all the pertinent data from the raw material. My LLND wants me to email him a copy of everything but I'm extremely hesitant to do so. All this genetic stuff is new to me and I haven't found my comfort level with all this information yet, as to who if anyone I want to reveal my entire genetic makeup to. TMI

Call me a nervous Nelly, but I don't see great things coming from this information in the hands of say, health or life insurance companies.
Posted 2/12/2015 3:51 PM (GMT 0)
Anything can be contributing to it. How is your diet? It took me about a year to really feel a difference, I had a few days at a time, or hours at a time but it took a long time. Also my LLMD said I would feel way worse before better. I would think it's die off happening and your feeling it. Be patient, it will come in time.

I have two copies of the 667 gene and wonder if I'm not taking enough of the right sups to support it with my pain level right now but I also tend to cheat a lot on my diet.

But really with our habits like happyjo said, charging, grocery preference cards, etc, I wouldn't be hesitant to let my LLND in on the results, and just maybe something in those results can be the culprit.
Posted 2/12/2015 4:06 PM (GMT 0)
If the antibiotics seem tahr are not working you need to check for heavy metals intoxication because this maybe stoping the effectivness of them.
Also check for leake gut.
Posted 2/12/2015 4:06 PM (GMT 0)
Mom of 2,

I too had an initial course of antibiotics (amox, doxy and ceftin for about three months also) and had to stop for GI reasons as well. I was okay for about two months then got really sick again. I then started on Byron White herbals and when that wasn't helping I was put back on abx for another couple of months. I went off the abx (as per my LLMD) and went on full Buhner Bart and Lyme protocol and am finally starting to feel better. I've had many ups and downs. I think in my case the bacteria went into hiding while I was abx but came out when the coast was clear. I'm hoping these herbals will do a better job as I plan on trying to stay on them for a full year- hopefully!
Posted 2/12/2015 4:10 PM (GMT 0)
Bettjoes,



"Some would suggest MTHFR therapy but when you actually understand genetics and the fluid genome this becomes rediculous, in other words, how are you going to coerce your genes into behaving when they respond substantially to their environment and are being bombarded by toxins? The genes change sequence in the macromolecule when environmental chemistry changes and when they do their function also changes, are you going to let an MD mess with that? Your genes will sort themselves out when you fix your body chemistry."

--can you explain this as I too have the mthfr mutation, how do you fix your body chemistry? thanks
Posted 2/12/2015 4:20 PM (GMT 0)
The genetic "stuff" is really important. It can tell you, for example, if certain drugs and foods make you sick.

Antibiotics should not be taken by some people with certain genomes. I did better treating Lyme and coinfections WITHOUT antibiotics. This could be why you are not seeing results.

Also, antibiotics, although a blessing for reducing the living load of bacteria, can cause an array of other problems:

They can remove good gut bacteria needed for a healthy immune system;

And they can create resistance the various bacterial strains.
Posted 2/12/2015 4:22 PM (GMT 0)
If you are only treating "lyme", I would suggest you investigate coinfections. Lyme rarely travels alone.
Posted 2/12/2015 4:33 PM (GMT 0)
Please disregard any comments that Bettjoes made. He is trying to promote his own protocol.
Posted 2/12/2015 5:07 PM (GMT 0)
Mom of 2, I'm having trouble remembering what you're treating for- what infections? Lyme and Bart? I see malarone, does that mean babesia as well?

One copy of the 667 gene is not hugely significant but it does impair your methylation. Are you supplementing with methyl folate and methyl or hydroxy b12?

I don't see a reason to withold your 23 and me test from your doctor, but it's up to you.
Posted 2/12/2015 8:12 PM (GMT 0)
Happyjo, LOL. I think about that stuff too. I just feel uncomfortable giving out all my genetic info. Maybe he would be happy with the just the genes related to the methylation process.

Revive, my diet is good, not perfect but good.

Perhaps it's just taking more time than expected to feel the effects.

Lymemama, I haven't had any testing for heavy metals. I have well water, could be a culprit.

Kitkate, this is day 10 of diarrhea. I'll give it till Monday to go away. If not, my LLMD gave a specimen cup to check for c diff. Keep us update as to how the herbs are doing. Best of luck:)

Itsnotjustlyme.com. I didn't mean to offend by using the word "stuff". Until I have a greater and in depth understanding of genes, it will be just "stuff" to me:) As for the antibiotic resistance, this is what I'm trying to figure out. If lyme can change forms in a hostel environment (antibiotics), will you still have all the symptoms as if it was still in normal form? Wouldn't it effect you differently?

Rowingmom, I'm also treating babs and bart.


Sarahm620, yes I'm taking methyl folate and hydroxy b12.

Mister Mike, I have seen a lot of your posts. You and I do have similar issues. I don't have any allergies that I know of.
✚ New Topic ✚ Reply