needing some answers feeling hopeless

Hi kllcmw5 - Welcome to the forum! Sorry you've been sick for a long time and no one is taking it seriously. Unfortunately, this is common for us with Lyme disease.

I just wanted to let you know that even if you didn't test positive for Lyme disease...you still could have it. Often the tests come back - false negative and people do indeed have Lyme disease.

The best thing for you to do is see LLMD. (Lyme Literate MD).

To help find one, you can start a new thread titled: "Looking for LLMD in/near______" and insert you city/town and State.

I believe mycoplasma pneumoniae sometimes comes along with Lyme infection. I'm hoping someone with more knowledge on that will post on here.

This forum is full of wonderful, knowledgeable and helpful people. Keep reading, posting and we'll help you through this.

Was your Lyme test through Igenex or just a normal mainstream lab?

I was originally tested through Quest and it was negative, but then a couple months later I was tested through Igenex and it was CDC/Igenex positive (with 7 positive bands)!

Girlie- thank you so much for the reply! It feels so good to know there are other people who don't think I am crazy and who understand.

IHL- that is great news to know you as well got your results regardless of tests. I am in Indiana near Indianapolis.

runnergirl82- It was through labcorp I am not sure how to go about testing again and I am not sure how much it is. It seems everything is a money making thing and I am just so tired of having to go back because everytime I go back even with great insurance it is a $200.00 charge at the holistic dr. All as I say "regular doctors" don't take me serious and ignore my signs.

I also, have sensitivities to clothing and have sharp shooting pains all over my body. From my neck to wear my bra strap is seriously KILL me and I am in tears a few hours of the day off and on. I was in the shower earlier and my hair was coming out not in globs but ladies you know when you have a knot and you keep brushing and a bunch of hair comes with it? That's what happened when I was in the shower. Is there anyway for me to know when I was infected with lyme ? It doesn't help me that everyone in my family thinks I am nuts, including friends, and my boss. I can hardly get out of bed most days and people think I am lazy. Let me tell you I thought I was "depressed" and what not but that's not the case I am depressed because I AM SICK and cant even take a shower without crying and in pain. I went from working 50-60 hours a week, going out, shopping, cleaning, smiling, and yes I was even that annoying girl on social media that posted all the time because I was constantly happy and doing stuff! I just want my life back!! please help me

kllcm5 - I have a lot of pain, too. For many months I cried every single day, sometimes twice a day. The pain and the nervous system issues I had was all overwhelming.

My upper back is one of my 'areas' of pain, too. Clothing touching my skin doesn't affect me, but the pressure of my bra - after it's been on for awhile seems to make that area of my body hurt more, and it ramps up my nerve pain symptoms. I feel much better when I take off the bra.

I know what you mean - happy, healthy to this awful existence. I am a bit better, though, and I am optimistic that I will get there soon!
Hang in there, you're now on the right path to wellness.