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Hand gets cold then slow just manuvering the PC mouse/ job issues from lyme health in general

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Posted 3/21/2015 1:41 PM (GMT 0)
I have to move the placement of the mouse to help this issue. My mouse fingers get real cold and slow down my whole hand, no tinging though.

I cant use lap top keyboards for this reason - to cramped and my hand gets stiff.

I dont know if this is true renaurds syndrom or what.

Even though I've functioned all these years, when you add up all the odd things and body pain, there is less and less 8 hour jobs I can do. Not knowing how my body will be the next day drives me nuts. This is worrisome as far as my limited future employment.

What do sole/self providers do in the event that we cant do our careers anymore? Cant make end meet as a walmart greeter if you know what I mean.
Posted 3/21/2015 5:53 PM (GMT 0)
Sorry to hear this, do they turn whitish or bluish?

Yes, it is unfortunate that we have to suffer so much and can't get better treatment. Then on top of it, we have to work to pay for the expensive treatment.

I clean offices and houses, it is sometimes hard to even walk up a flight of stairs but I find cleaning easier than working an office job, sitting on the computer all day.

Hope you stay strong so you can work.
Posted 3/21/2015 6:14 PM (GMT 0)
They dont turn blue, I massage the circulation back before that happens. So far this helps my hands gimp along.

Mr LLMD is thinking I have leftover damage from not being treated for 25 years. I'm starting to think thats the case too. Cant change the past, but I obviously wonder how much better I'd feel had I been on ABX way back then.
Posted 3/21/2015 7:49 PM (GMT 0)
Since I've been taking sublingual heparin my hands are stiff freezing cold but the stiffness and pain has been reduced by maybe 20%. Not a huge difference. I was thinking the warmer weather probably has more to do with it than the blood thinners!

Maybe you should apply for dissability. You will most likely be denied the first few times. I was was told the average person gets it after 4 years of trying. Lyme won't get it for you. A doctor told me my best bet was getting it for interstitial cystitis so maybe you have another qualifying diagnose as a result of lyme. Something to consider.
Posted 3/21/2015 11:14 PM (GMT 0)
Astroman - how long have you been treating? You talk about damage - are you at the point where you're not improving anymore with treatment?
Posted 3/22/2015 7:16 PM (GMT 0)
Girlie- I've had about 12 months of four different ABX , with breaks in between its about 1.5 years.

I felt terribly ramped up on abx, weather it was herxing or toxicity from my methelation detox issues, or all of the above. It was brutal to say the least. After the first round, I slept better, my dyslexia improved a little and my neck improved.

This last round of abx did nothing positive for me, and I'm still recovering from it 2 months ago now.

The majority of body aches and stiffness are the same as before treatment, but they improved somewhat on there own from the "abyss" I was in 10 years ago with this. This is the possibility of "long term damage" I'm mentioning-muscles and the nerves. I've done a boat load of skeletal/muscle work, but its been very slow and progress has pretty much dwindled.

Having this for 25 years before treatment, its anyone's guess as to what damage has been done, vs whats reversible/repairable. I have read about repairing whats left after the lyme is controlled in chronic cases, but its different for everyone, and its trial and error.
Posted 3/22/2015 7:40 PM (GMT 0)
Hi Astroman, I was working until the beginning of September last year, a deskjob. I had the exact same thin happening to me, every single day. My colleagues used to say I was crazy putting the heating on 25°C... (77°F). My hands were ice cold...

I have a similar thing in bed too, my arms and hands fall asleep really quickly, and it takes forever to get them normal again, sometimes up to 15 mins or more...
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