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Have a fun couple days planned....apprehensive!!

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Posted 3/27/2015 1:26 AM (GMT 0)
Last fall I bought 4 tickets to Maroon 5 - two for hubby and myself...and two for my son and his gf (xmas present). Back then, I thought I'd be much better, if not completely better. (yah, right!) We are travelling to Vancouver (big city) - so it's an hour and half drive, an hour and half ferry, and half hour drive to Vancouver. Staying in hotel that night.

It's this coming Sunday night...and then Monday morning I have a face-to-face LLND appt. - have been doing telephone appts for 6 months...this is my second in-person appt.
Then hubby is having his consult after.

So, I'm kinda excited about the concert, but don't know how I will feel that day. I hope I'm okay, I would hate to sit in the hotel room and miss it. And my hubby would miss it, too. If i don't go, he won't go and leave me. I think I'm just gonna go for it...even if I feel sh---y that day, as you never know, an hour later I could be feeling better.

Am I being careless to even attempt this?

I don't want to make pre-arrangements with my son and his gf that we may leave the concert early if I'm not feeling well. -Because, even though they know about my lyme disease...I try not to always talk about it...and I don't want to be a 'downer' at the concert...my son is going through a lot of stress now...and I don't want him to hear that I'm not feeling very well. He was living here when I first got symptoms, and I know he's concerned, and we've talked a lot, and he's been there to hug me during some bad times I had. And, he just doesn't need to hear that I'm feeling awful. Especially at a concert when they're trying to have a good time. The last time he came home for a visit, he said I was looking better and he could tell I was feeling better. I must have been having a good day. He wants so much for me to be healthy again...but he doesn't need to be worried about it. He's young, and I want him to enjoy his life and not worry about me.

What am I worried about? Don't really know...I've been able to tough it out at dinners' out, and I've even gone to a movie with a friend...and felt crappy half way through, but I didn't die. I'm still here, right? What's the worst that could happen.

I am apprehensively looking forward to it.
Should I go?
Posted 3/27/2015 2:17 AM (GMT 0)
I feel that's something only you can decide. It might do you some good to get away and have some good times with your family and the memories would be good to focus on when you're back home. Take ear plugs and maybe sunglasses in case the noise or bright lights start to bother you, so you wouldn't have to leave. Rest whenever you can on the way there.

Your son sounds like a great person who cares a lot about you. That's so sweet.

Good luck with your decision!
Posted 3/27/2015 2:20 AM (GMT 0)
YES!!!! Go and have fun!

I completely understand where you're coming from, Girlie, because I, too, have had similar dilemmas.

I opt to carry extra Quercetin and Alka Seltzer Gold in my purse in the event I start herxing. (and, I've been known to do a few rounds of burbur and pinella before heading out ;)

If you have anxiety issues at all, I suggest bringing whatever works for you to keep it in check.

Otherwise, I hope you have a great time and let us know all about it :)
Posted 3/27/2015 2:40 AM (GMT 0)
Thanks -

GP - I don't have any sensitivities to lights, so i'm good that way. And, I LOVE loud music, always have...only thing is now I get shivers whenever I hear a song I really like...especially if it's slower song, love song, etc. No anxiety issues...mine mostly is pain...the nerve pain and vibrations.
I'm thinking the loud music might actually distract me. I have found many times when I'm really busy, or have lots on my mind...I often don't feel my pain so much.

CD - good idea, I'll take my pinella for sure and take a few doses prior to leaving.

Yah, I really want to go....and last August I was thinking the same things...and our mini-vacay to the sunny destination all worked out...no issues at all.
Posted 3/27/2015 12:36 PM (GMT 0)
I would go and not think twice about it. You can feel bad anywhere and the distraction might get your mind off of it. I keep some pain pills with me and that usually does the trick, plus some detox things.

Life is short, go enjoy yourself and build some memories with your family.
Posted 3/27/2015 1:08 PM (GMT 0)
"I would go and not think twice about it"

I agree with Revive - have fun!!
Posted 3/27/2015 2:16 PM (GMT 0)
I know you are gonna go for it, so HAVE A GREAT, HEALTHY, WELL time! When in doubt, always think, what's the worst that can happen, and if you are with your loving family, nothing can be that bad. They love you and you all want to be together and have fun (at least try to). You would be sad if you stay home and feel great and missed it!

you go girl! we want to hear back from you on tues. :)
Posted 3/27/2015 5:24 PM (GMT 0)
Okay - I'm going!!!

It's not like I have to carry heavy luggage...hubby will do that...and he will be real quiet in the hotel room prior to the concert so I can try and squeeze in a nap.

I don't have pain pills...but I've made it thus far...and I'm sure it will be fine....I LOVE concerts and I think I would really regret going.

I will let you know how it went.

The starting band is 'Magic' - they're good, too.

I'm getting excited now.
Posted 3/27/2015 6:06 PM (GMT 0)
Absolutely girl, go get it!

The only way I would say think twice is if somehow it would compromise your recovery. But enjoying yourself and getting away from regular life and lyme disease, even if only for a day, is not going to do this!

My LLMD stressed finding humor, joy, and keeping hope as essential part of healing. It does wonders for our bodies!

Have a great time, I am a little jelly!
Posted 3/27/2015 6:50 PM (GMT 0)
How exciting for you! :-) love maroon 5 too! I completely understand that you feel a bit apprehensive . . . in fact, I have a (much smaller) event which I may have to put in an appearance at for an hour or two later on, and I haven't been feeling great, & would really much rather stay in by the fire :-/ . . . and it's always a worry that you'll be able to cope, but this sounds like such a great event, something you've looked forward to and planned for ages . . . I really hope you'll go for it, and that you'll have a fantastic time. You will have plenty of good support around you and I just wish you a wonderful time at the concert. Hopefully you will be ok for your LLMD appt the next day, but hey, they will understand if you're tired out and slumped in your chair! :-) hope you have a fantastic time - let us know how it all goes :-) xx
Posted 3/27/2015 7:38 PM (GMT 0)
Hope you enjoy your event and feel well later FlossieUK! You deserve some happiness and smiles, that helps the heart, body and soul!
Posted 3/27/2015 7:46 PM (GMT 0)
Have a great time. I also find distractions to be good. Im sure you and your family will have a blast. Please let us know how you make out !
Posted 3/27/2015 11:50 PM (GMT 0)
Thank you lovemychildren, that's so nice of you :-)

Just got back from my evening out, & glad I went, had a lovely time - really did me good :-) Back by 11pm so not too late, and tucked up in bed now!
Posted 3/28/2015 5:40 PM (GMT 0)
That's great FlossieUK!! Hope you had a good sleep, too.

I am already planning for it - even though we're going tomorrow. I am making my lists - i will be leaving some of my supplements at home...will pare down to the 'essentials'.
Going to bring lots of bottled water...so I always have it with me. I'm going to let my diet go...somewhat...

I'm also preparing for my LLND appt. - actually prepping more for hubby's.
Mine is probably going to just involve a med change....hoping....anyway for Rifampin now...
I will finally know if I have bart - if I react when I take the Rifampin.
Posted 3/28/2015 5:55 PM (GMT 0)
Thanks girlie :-)

Hope you have the most fantastic time - can't wait to hear all about it when you get back :-).

Hope the LLMD appointments go well too. I have recently started rifampin (combined with minocycline), and, as you know from my other posts, am feeling pretty horrible, with increased tingling in my limbs, dizziness, and generally feeling worse . . . I am hoping that this is a Bart herx, and that that could possibly be the root of my neuro problems . . . :-/

Anyway, good luck with the packing and preparations, and have a lovely time. Try not to overdo it and grab some rest where you can - I'm sure you'll have a great time. Take care xx
Posted 3/28/2015 8:08 PM (GMT 0)
Thanks Flossie! When I read your posts, I read them to myself with an English accent.


Hope you're feeling better soon!
Posted 3/28/2015 8:58 PM (GMT 0)
Girlie I reacted big time to Rafampin but my LD said it also treats Lyme so not sure if I have the Bart with having the major herxes.

Enjoy the concert!
Posted 3/28/2015 9:06 PM (GMT 0)
Haha! :-) Just love being able to communicate with you, all these miles away. I will have to perfect my American & Canadian accents! ;-).
Posted 3/28/2015 9:19 PM (GMT 0)
Girlie - I hope you have an amazing time and look forward to hearing all about it. Remember - you are doing this for all of us who can't at the moment. I always feel it's the occasional fun time which keeps us going through the not so good bits and reminds us why we have to fight on.
Posted 3/28/2015 9:22 PM (GMT 0)
Flossie, I'm SO happy you had a nice time. I know getting out really helps my depression - I've only tried it a couple of times, don't want to leave my son and he has meds and detox and herbs every few hours, so it was just a dinner Thurs. night with the next door neighbors, but first time in a restaurant in ... well, a year or more?

I found it nice to get out of my house a bit. I always feel guilty having a good time when he is not well, but I'm such a mess, he's tired of seeing me crying all the time (and said so), so I'm pushing myself to do better. Glad you pulled away from the blankets and fire (I know that is really hard to do!) and had some fun!

Girlie, I hope your weekend is fabulous and you have a good dr. visit on Monday.

Today was a challenge here. My son was taking his doxy and rifampin to a friends, going to see if he will take it, on time, not at home, give it a shot. WELL, the rifampin fell out of the baggie (not sure how), son didn't notice and walke to laundry room where I was.... we go back to kitchen and see chewed/bitten rifampin on the floor (one pill, thank goodness), a huge red mess stain and dog looking at us... UGH!!!!!!!!

Well, I have had to make her throw up many times after chocolate donuts, valentine candy, etc. the past 3 1/2 years, so off I ran for the peroxide and syringe! Huge adrenaline rush going on in me - never shot a full syringe down into the dogs mouth so fast! I think she will be ok, but I feel bad for all those dog owners who run around in a panic and pay a huge vet bill to take care of poochies bad choices for a snack! Guess she thought it was candy and went to town on it, only to realize how awful the taste was, too late!

Oh my...
Posted 3/28/2015 10:05 PM (GMT 0)
Flossie and Revive - I may be herxing along side you with the Rifampin...we can have a pity party for three...lol.

LMCM - Hope your pooch is going to be okay.

My kitty is always after my capsules. He'll jump on my lap and I have my capsule in my hand to take, and he'll nudge it and try to get it. Maybe it's the gelatin - he smells the animal?
So, I told my husband to be careful and not to leave any lying around. That would be a sad event if kitty got sick or worse.
Posted 3/28/2015 10:49 PM (GMT 0)
Wow. I never thought about the coating, but you are right, she ignores caplets with no coating..
Posted 3/29/2015 3:15 AM (GMT 0)
Celeste - I missed your post. Thanks for posting.

Yes, I need to create some good memories...so when I look back it's not all about lyme...you know what I mean?

When I look back at the first 6 months I had 'something wrong' with me...I shudder - just horrible memories...and I can't believe it's now been two years since I started to feel unwell. I need to have some good stuff intermingled with the bad stuff.
Posted 3/29/2015 8:12 AM (GMT 0)
Gosh, lovemychildren, you really have had a stressy day! :-(. I do hope your dog is ok - I'm sure you could do without such dramas, on top of everything else. Hope you had a nice peaceful evening and were able to put your feet up & relax for a bit! :-)

Yes, I think it definitely does us good to get out once in a while if we can possibly manage it. I was just out for a couple of hours or so, and just to a little pub, so nothing too full-on or stressful to cope with, and I managed pretty well really, and had a lovely time. It's pretty rare for me to go for an evening out (my first night out to a restaurant in well over a year was a few weeks ago too!) but I'm glad I went - I think it did me good. It sounds to me like you're doing a fantastic job of looking after everyone, so hope you find time to take care of yourself too, and have the odd night out. It's definitely good for lifting the depression and taking your mind off things for a while, so don't feel guilty!

Girlie, I'm eager to know how you will do on rifampin so keep us posted. I'm hoping that my increase in symptoms is a herx, and that the rifampin is hitting something. Fingers firmly crossed!
Posted 3/29/2015 2:54 PM (GMT 0)
Girlie - happy to hear you decided to go to the concert! I know you will have a great time.

I recently hosted a ladies luncheon at my house for this club I belong to. It was the first time I was able to do this in 3 years so I was happy and excited to do it but also nervous about getting too tired etc.

Anytime I had negative thoughts about getting to wiped out in the middle of it I told myself I could rest tomorrow and the anxiety went away. People there knew of my illness and asked if they should leave early. My reply to them was the same, "No, I can rest tomorrow." I made sure I had nothing planned for the next 2 days actually.

I did have an energy slump near the end of the meeting but I got through it!! I can't tell you what it did for my spirits! I was soaring...emotionally...physically it wasn't so great. It took me 2 days to recover but you know what, it was worth it. Your concert will be worth it too. Enjoy!
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