Help! Do not know what to do.

Hello,

I have been suffering progressing pains over the last 6 weeks. The pain started in my back and was diagnosed with a slipped disc at c6. I worked with a chiro and massage therapist but this dod not help. The pain spread down my left arm, then my right arm, then my over the past week my legs and feet. I visited my gp to do blood work and everything came back normal except slightly elevated ck. He didnt know what the problem could be.

Feeling scared and hopeless. I am in the process of scheduling mri exams and meeting with neurologists to find the root of the problem and why i am getting worse.

Then something hit my wife and myself while we were watching tv one day. A character on the show had lyme disease and the symptoms sound very familiar to what i am experiencing. I also had a large rash last summer that initially looked like the bullseye rash so familiar to many of you. For the rash last summer, the doctors thought it was jock itch that got infected and no blood tests were run for lyme. I was treated with 4 weeks of antibiotics and the rash disappeared. I thought that was the end of it....

I mentioned this rash to my doctor not long ago and i asked for a lyme disease test. He was reluctant but evevtually he scheduled one. That is where we are today. I am waiting for blood test results that i know may not be accurate with hope that they come back positive so i can start antibiotics. While I wait my symptoms seem to be getting worse and i know the key to feeling better is to start treatment right away. My question is what do i do now? I cant sleep and am in constant pain all over my body but i am dependant on a faulty test ( i am in canada) to hopefully get access to treatment. Any recommendations on what i should do while i wait? I have been doing yoga and other meditation texhniques to relax as well as running to keep the joints active. Today i did schedule an appointment with a naturapathic lyme disease doctor but that is not for 3 weeks. I fear my symptoms may worsen significantly.

Any help would be appreciated. i am in my dream job and my wife and i plan on starting a family soon.

Thank you for your time

Hi WonderWhat's Next!
Welcome to our community! I'm so glad you found us!

If you haven't ​yet​, it would be helpful for you to start with reading through the thread at the top of the forum titled,"New to Lyme?...Start here!!", as it is packed full of important information, symptom lists, helpful links and pdf's, how to detox when one has these infections, information on probiotics and much more.​

You need to see a doctor that has been properly trained about these types of infections as they are unlike most all other infections. For information on finding a​n ILADS ​(International Lyme and Associated Diseases Society)​ trained​ Lyme Literate Medical Doctor(LLMD) in your area, you will need to enable your email option in your profile in order to receive any recommendations, as we don't allow doctor's names and contact info to be posted on the forum for several reasons.

You can enable your email option in your profile, under 'edit profile'. Be sure to click the submit button to actually save your preference.

In Canada, you won't find any LLMD's though, as the political firestorm over these infections has reached there as well, but you will find a few brave Lyme Literate Naturopathic Doctors that you can use. Otherwise you will have to travel to the US for a LLMD.

​You can send me an email by clicking on my screen name or the small blue envelope under my screen name. I may have contact information for some LLND's in your area.​ ​Please include your state and area that you would like to find a LLND in and I will see how close I can get to your location.​ If you wish to have information on LLMD's that you can travel to as well, just be sure to ask about them also when you write!

I'm not sure how many of the places below might help in finding LLND's in your area, but it's worth trying:

You can email the Tick-Borne Disease Alliance at​[​​url]​[email protected]​ for LLMD referrals and you can go to ​tbdalliance.org/​​ to learn more about these infections.


You can also go to The Lyme Disease Association and search for LLMD's 3 times in a month. You have to register first. Here is the link:
www.lymediseaseassociation.org/index.php?option=com_content&view=article&id=277&Itemid=74​​


​ You will want to find an ILADS (International Lyme And Associated Diseases Society) trained doctor, as ID Docs (Infectious Disease Doctors) believe Lyme is hard to catch and easy to treat, and don't believe in the reality of chronic Lyme. Go to the ILADS site to read the new (2014) Treatment guidelines to get you started on your Lyme journey.​​www.ilads.org/lyme/ILADS_Guidelines.pdf​​

You can start now with detoxing, as it's the toxins that drive our symptoms more than the infections themselves. Eating as healthy as you can afford to, including organics whenever possible and avoiding sugar and highly processed foods will help provide your body with the right type of "fuel" for it to heal.

Thanks to all of you for the advice,

My symptoms seem to have progressed fairly quickly over the last 6 weeks, I have gone from a sore back to achy and tingly all over to having pain in my testicle this morning. All while dealing with huge mood swings and depression and not being able to sleep a wink over the last 5 days. Is this normal to progress like this? It seems like every minute I need to wait is a moment too long to help me feel better.