Lyme disease remission

One of our members " Yogi" just posted. She is healed after almost a year of treating and life style change. She is even expecting a new baby!
Hang on in there because healing is possible.... It is just a hit and miss till you find the right treatment for you.

Hi Healthy,
We've had a lot of members get well. They tend to leave the forum once they are well, however!

Reading success stories can be a little misleading, in my opinion. What works for one person is a disaster for another. Some people respond to antibiotics, others need to go the herbal route, some have terrible trouble getting rid of toxins, others, like my husband, are cured quickly with no herxheimer reaction at all.

I am up to 98% well after many years of treatment (reinfections), and will be finished soon.

Hope you have had an opportunity to read our "New to Lyme?" thread. The supportive therapies described there can really help you deal with the fall out from your antibiotic treatment.

Keep us posted on your progress!

Hi,

I would say that I am about 60-70% better than when I started. The thing is it varies. I say that because 1.) It still interrupts my life in a fairly significant way 2.)I am still on adrenal medications, sleep medication (I'm tapering off those), anti-depressants.

But looking back to 2007 I didn't have the energy to walk around the block. But in late 2009 after finding a medication that actually helped me sleep my progress skyrocketed. I joined a gym, started working, went back to University and graduated. I do whitewater kayaking and have significant endurance. I love ice skating and can do vigorous skating for 2 hours approx. sometimes longer.

I did IV Rocephin and also treated babesia a lot.

Now the problems I'm facing are:

-recurring flashing lights in my eyes (it's not a detached retina) and several other vision symptoms
-occasional bladder irritation
-insomnia (still have it but it's improved.) At one point I could nap regularly.
-Severe PMS (and I mean severe). The degree of PMS changes with stress levels and unknown factors.

I think I have bartonella. It has yet to be treated.

I've been off all treatment since 2012 and have not had babesia relapse it's just been continuation of the vision, PMS, bladder,insomnia.

Hope that helped (and made sense!)

My daughter and I are asymptomatic now after 1.5 years of low dose (1/4 recommended) Buhner's bartonella/babesia protocol. She was treated for bartonella with abx for 2 years. I was clinically diagnosed with the same infections (the LLMD thinks her infections were passed on congenitally) and have never used abx. Here is her timeline:

Born 2001 with light/sound/touch sensitivity. Loss of speech/fine motor ability 2 weeks after 15 month MMR vaccination.

2004 - Dx ADHD, sensory disorder (light, sound, touch), motor delay (with toe-walking), hypotonia, oral apraxia.

2008 - MMR booster and insect bite (bruise-like rash) - motor/vocal tics, emotional lability (including rage), age regressive behaviour, low level OCD, urinary frequency, diminished fine motor ability, insomnia, loss of executive function. Waxed and waned with strep/viral infections.

2010 - Dx ADHD, Tourettes, Aspergers, motor delay, probable PANDAS.

Jan 2011 - shin/forearm pain, cyclic IBS, foot (sole) pain, dizziness, palpitations, chest pain, anxiety/panic attacks, pick-like skull pain, pain and stiffness at base of skull, tingling in extremeties, chills and hot flashes, extreme fatigue, nightly fever.

June 2011 - Igenex PCR positive bartonella, Negative ELISA, Negative lyme (IND IgM kDa 41; IND IgG kDa 39, 34. kDa 41++). CD57 18. Positive ANA (speckled type), heterozygous A1298C MTHFR. Multiple Abx, methyl B12, methylfolate, P-5-P, herbal, homeopathic treatment with LLMD.

Jan 2013 - Bartonella IgG titers declined from 160 (Jun 2011) to 80. CD57 16.

April 2013 - Weaned from abx treatment at 80% improvement. Continued with Full Buhner bartonella herbal protocol, Terry Wahls/PerfectHealthDiet gf/cf/sf diet. Minimizing EMF exposure.

Sept 2013 - CD57 45.

Oct 2013 - All symptoms (PANS and pain/fatigue) 95% resolved. No flares with viral or other infections. Herxing remains with changes in herbal protocols.

Nov 2013 - Clinical babesia diagnosis. Improvement to 98% with addition of Buhner herbal protozoan treatment.

Dec 2013 - ANA titers negative. PANS symptoms resolved. Regular classroom requiring no accommodations. B+/A student.

Mar 2014 - Continued improvement in cognitive/executive function with increased dosages of cryptolepis/sida/alchornea (CSA) tincture.

Sept 2014 - Continued improvement with the addition of red root. Resolution of EMF sensitivities with low dose cilantro tincture and diatomaceous earth. 99%