Recommendations in LD treatment ignored?

"IDSA Ignores IOM [Institue of Medicine] Recommendations in Lyme Disease Treatment Guidelines' Development":

http://www.prnewswire.com/news-releases/idsa-ignores-iom-recommendations-in-lyme-disease-treatment-guidelines-development-according-to-the-lyme-disease-association--lymediseaseorg-300078777.html?tc=eml_cleartime

A sampling of case studies & online stat results:
http://lymedisease.org/activism/pdf/lymedisease.org-patient-survey-2015.pdf

"According to Pat Smith, President, national non-profit Lyme Disease Association, Inc. (LDA),
"Today, science is producing experimental drugs that can make incurable cancers disappear in 3 weeks' time. Yet, obsolete lab tests that pick up less than 50% of cases, make it difficult for Lyme patients to get diagnosed. If lucky enough to be diagnosed, they have to fight for treatment. When IDSA protocols fail, they are denied further treatment. Physicians who try to help these patients may find themselves brought up on charges before medical boards. Parents who seek treatment for their sick children, may find their children torn from their homes by state agencies. It's a nightmare of unimaginable proportions." http://www.lymediseaseassociation.org/index.php/lda-news-a-updates/1371-lyme-community-unites-to-protect-patient-rights

Yes - it's happened a couple of times that I remember. Truly sad and scary.

Here is a very small part of the story:
"So, why was I in jail? We had to take her son to a hospital in July for a stomach issue. He was admitted to the same hospital where he was first diagnosed with POTS. As usual with any trip the hospital, they asked about other conditions and medications. We told the doctor about Lyme and POTS, and all the medications he takes. One of the doctors took exception to the diagnoses and medications, and portrayed my wife as doing Munchausen by Proxy. They actually said they're afraid she is killing our son.

We opened a case with Denver Child Protective Services. I'm not going to go through all of the details here, but CPS has claimed custody of our son while my wife and son were out of the state, and put out warrants for their arrest. Due to the "brain fog" symptom of Lyme disease (which is particularly present during times of stress), I couldn't tell the magistrate where they were, and I was sentenced to 180 days in jail for contempt of court.

The court subpoenaed our health insurance and banking credit card records in an effort to find them. I became a hostage in their attempt to bring my family back to Colorado. All because of Lyme.

There is legislation currently in Congress to protect families and individuals from this kind of thing. The first is HR 4701 which passed in the House of Representatives in September focuses on online education and treatment. The second is to protect families from hospitals and other organizations from taking custody of a child because a doctor does not agree with the treatment plan or diagnoses. This is been settled in court before an it looks like will be the next fight there.

No family should have to endure this type of treatment. Lyme is bad enough to deal with on its own."

www.huffingtonpost.com/erin-zahradka/jailed-for-lyme-diesease-_b_6257162.html

Like I said, scary!!

I know that CPS got involved over the treatment for LD, but this event is actually a small part of a much bigger problem.... the overreach of big government. Its not at all just about LD. Get used to it. Here is a link to another horrendous story that is quite common in this country, yet you won't hear about in your mainstream media.

http://www.wnd.com/2015/05/homeschoolers-interrogated-on-guns-vaccines/?cat_orig=education

Don

As a former home schooling parent, I can attest to essentially being harassed during the 80's, 90's and into the year 2000 by all that were not completely for home schooling- even the school districts.

But it's also not that uncommon for government to step in when they believe that the child isn't getting what THEY consider to be "adequate" treatment for any health issue, even if the child is old enough to understand what is happening to them and that they have choices and the child chooses the treatment.

That's because the state views children as a "product" of the marriage, and insists that the parents don't own the children - which is silly - no one "owns" children. We are given them to raise up into adulthood, it's not like we sell or give them away when they are 18. But I digress - sorry!!