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Babesia treatment issue

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Posted 5/9/2015 7:53 PM (GMT 0)
Hi all,

At this point I'm very discouraged, not sure how I will ever get rid of babesia. I've been on buhner's babesia herbs for 6 months now. I have also been through several different prescription medications for babs including clindy/quinine, mepron, and malarone. It seems that all babs medications cause extreme insomnia for me. I would take them early in the morning but the half lives of all of them are several days, so it doesn't matter what time of the day I take them. My doc is unsure of what to do because he says sleep is vital to recovery. He said continue with herbal treatment, but I haven't noticed any benefits from it.

Just wondering how I'll ever get rid of all of this stuff. It's just one issue after another. I honestly can't believe I'm going through this right now.
Posted 5/9/2015 8:13 PM (GMT 0)
Do you know which strain of Babesia you have? My understanding is that Duncani [WA-1 strain] is much harder to cure.
Posted 5/9/2015 10:05 PM (GMT 0)
DP,

Have you tried Bactrim DS or Azithromycin?

I think it does depend on the strain. I have read that they could respond to different meds better than others. That said, I don't know which strain I have.

It is also possible you could have something like Protomyxzoa Rheumatica, which has Babesia like symptoms.

There is also A Bab and Beyond Balance products for Babesia. I'm holding off for right now, but will probably try them at some point.

Keep trying. Like Sayyadina said, sometimes it just takes time. Maybe try mixing things up a bit. I have also read that Buhner's protocol is more effective as a whole.

I have also read that Babesia can become resistant to certain meds like Mepron.

What are your symptoms if you feel like sharing? Don't feel obligated. Just trying to help.
Posted 5/9/2015 10:19 PM (GMT 0)
Well to answer all yall's questions, I do have the Duncani strain that I tested positive for through CDC testing. My symptoms include air hunger, hot flashes, and I sweat all the time. The air hunger gets pretty bad, sometimes I feel like I'm suffocating. I've been on Bactrim for about 5 months now, and it seems to be doing a number on my bart symptoms but unfortunately no improvement in babesia.

And I've been doing all of those tinctures; Sida Acuta, Crypto, Alcornea, as well as the CSA tincture he recommends. I take 2 droppers at a time 2x/day for 6 months and no dice, no herx or imrpovement. I've also been taking artemisinin as well and I don't notice improvement or herx from it either. This just baffles me.
Posted 5/10/2015 8:23 AM (GMT 0)
bump
Posted 5/10/2015 10:47 AM (GMT 0)
The medications are not causing the insomnia, it's the die off causing oxidative stress that is the problem. Get a gene profile done through 23andme.com and see where your mutations are. Supplement to bypass those mutations. I was not able to "get over the hump" until I did this. The limiting factor on treatment for some protozoal diseases is the amount of oxidative stress we can tolerate. I benefited from taking manganese, copper, iodine, lithium and molybdenum. You may or may not need those. I think I've figured out a good way of seeing if we need lithium, but haven't posted it because it's not supported with research papers or literature.
Posted 5/10/2015 5:43 PM (GMT 0)
DP,

You could try adding in some additional herbs from Buhner besides the ones specifically for Babs. That might help.

Have you tried Nattokinase or looked into it? It might help.

Bactrim caused Babs and Bart to flare for me. It caused me a lot of head pressure. I guess it really depends on the person. It also can depend on what infection is dominant at the time of the treatment.

Here are some links to check out:

Dr. C says Beyond Balance MC-BAB-1 is "helpful for Babesia microti while MC-BAB-2 seems to work better for Babesia duncani and FL1953 / Protomyxzoa rheumatica." They seem to respond somewhat differently. It might be worth looking into this some more. She has different protocols for different strains.

http://www.betterhealthguy.com/bioresource-2012-conference

http://www.mdjunction.com/forums/protomyxzoa-rheumatica-discussions/general-support/10050074-notes-on-fl1953/limitstart/10]http://www.mdjunction.com/forums/protomyxzoa-rheumatica-discussions/general-support/10050074-notes-on-fl1953/limitstart/10

The link on this does not seem to work, but there are some notes to indicate that some found A Bart hit Duncani / Babs better than A Bab.

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=128443;p=0]http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=128443;p=0[url]

Hope this helps. Keep trying. You will find something that works.
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