Sueg,
Write down your top 3 complaints / symptoms first. Based on what I know, it sounds like severe fatigue would be one of them. I also know you have muscle weakness, but I don't know if that is a top complaint. Point out that you're unable to do anything and see your grandkids. Point out that you're not improving and ask if you should change up your protocol. If your doc is good, she will consider this.
Next, make a list of what, if anything, has improved and what has gotten worse since your last visit or the time you started this treatment plan in January.
Write down all your meds and supplements just in case.
Also, make a list of all your symptoms. You can use a checklist, like:
http://www.cangetbetter.com/symptom-listWrite down any questions.
You should ask what you can do for your fatigue. Did it start when you started any medications or did your fatigue exist before that? I have severe fatigue. Artemisinin is helping with it, not to say that it will help everyone.
Also, your getting sweats if I remember right. You should bring that up too. You can ask if it is a herx or if there is anything you can do.
Good luck!