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my low dose naltrexone update

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Posted 6/6/2015 11:55 PM (GMT 0)
Hey guys,

I promised an update on my low dose naltrexone experience. I have to say, so far so good! All those crazy symptoms (insomnia, super restless and weird sleep) passed in about 4 days. My doctor told me I could try taking it earlier in the day to see if that helped with the symptoms.. So I started taking it at 6pm rather than bedtime... But soon went back to bedtime because I think I just needed to get through a side-effects period and then I was fine.

A couple days ago I missed a dose (I spaced and didn't get it refilled in time) and I definitely noticed I felt a lot worse the following day. Now I'm on it again and feel better. It's quite something.

My doctor said I could hold steady at 1.5 or try out the next dosage, 3, by taking 2 capsules. Given how helpful it is, I'm going to go ahead and try the increase. I suppose I'll expect a period of side-effects again.. But if the results are as good I think it will be worth it.
Posted 6/7/2015 3:00 AM (GMT 0)
GOOD for you! I had slow, sometimes difficult process tolerating each dose titration but eventually, had a lot of success.

I would not recommend jumping to a double dose. I'm not sure why your MD is not simply writing a .5mg increase Rx… or is your pharmacy selling LDN only at 1.5 mg doses? If you find a compounding pharmacy near you (or MANY online compounding pharmacists ship, mine ships for free if you'd like his info), they will compound the exact dose you need allowing you to increase .5 mg at a time, which is much more tolerable and more commonly prescribed.

Allow yourself a good month at each .5 mg before increasing and if you need to, you can take it earlier in the evening like you were and slowly take it a little later each week. I am now at 4.5mg and have been holding steady for 9 months now.

Pls let me know if you have q's. Hope you continue having success!

p
Posted 6/7/2015 4:16 AM (GMT 0)
Can you elaborate on the symptoms it treats for you? Does it work for muscle pain?
Posted 6/7/2015 5:54 AM (GMT 0)
Pirouette... That's really interesting information.. My doctor said 3 was the next dosage point, so to go ahead and explore by doubling up on my 1.5s.

But my reaction to the initial dosage was so intense, I can definitely see the benefit of increasing more gradually as you suggest. Well... I already took the 3 tonight so we'll see what happens! Fingers crossed that tonight is not super crazy!! I may ask for your pharmacy info, it sounds great. Every $ helps at this point!!

SLML.. It's a bit hard to articulate.. I just noticed that the day I missed all of my symptoms were about 30% worse.. At this moment I believe my dominant infection is babesia, and so I mostly experienced more babesia symptoms.. I had some air hunger/gasping, general fatigue, more body pain, more of that awful intolerable internal shakiness, and night sweats.. I took it again and I just felt more alert, more lucid, less body pain, more energy, more myself.
Posted 6/7/2015 5:57 AM (GMT 0)
Oh sorry SLML, to answer your question directly.. I don't really have much muscle pain so I can't speak on that. I have a lot of joint pain, which I think causes some of my fatigue, and I believe it's helped with those things for me.
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