My experience with CBD/Cannabis oil

sebreg said...
My poor friend, you have been thru the ringer. I'm so happy to hear CBD seems to be helping, really hope it can keep pushing you forward in a major way. Honestly, the idea of attacking lyme/coinfections from multiple angles is the one I tend to go for in my case. That's why, while not ideal, adding the abx on top of cbd could be good? but always risks with abx obviously. Have you ever tried ivermectin? that is quite a safe drug and for some it gives huge benefits, it has certainly helped push me along.

If you are worried about gastro issues maybe you could explore adding the more standard herbal antimicrobials if you haven't already? (sorry you may have mentioned it in your original post but I don't think I caught anything saying you'd tried herbals) There is some strong stuff in that arena, and it should probably be gentler on the system.

And please keep us posted as you progress with the CBD. It's a very interesting angle and possible therapy that I really hope will work!

Thank you sebreg, I appreciate that. I'm also using the Buhner Bartonella herbs in parallel except for sida acuta, which I hope to add in the next couple of weeks. Is ivermectin used against worms? I have taken albendazole in case of a worm infestation. I'm not sure if it helped.

I noticed some symptoms popping up that might be Babesia related like night sweats, air hunger, those little purple red dots (there are very few so they might be naturally occuring), dry cough and a sense of imbalance. I was never diagnosed nor did I test positive for Babesia but I've read on here that sometimes another infection becomes more noticeable as you kill one off. I'm not sure if the air-hunger I have is from Babesia. For me it feels like the air runs out much more quickly than expected rather than not being able to breathe in. It usually comes with a pang of panic as I feel like I'm suffocating for a short moment. Then I usually take several deep breaths to recover. Is that what it feels like when you have Babesia or is it different?

I have taken Malarone (atovaquone/proguanil) in the past and I though it helped a bit. I have also tried artemisinin but not sure if that helped. Hard to say as the Bartonella symptoms where so dominant at that time.

To be on the safe side I finally managed to order some CSA formula from woodland, they wouldn't ship to my country but my sister who lives in the US bought some for me. I have bought tinctures from the US before without trouble so I'm wondering if they had trouble with the dry herbs they also sell. Has anyone here successfully used CSA against Babesia?

Toronto_M said...
I'm currently using bee venom therapy (8 stings 3X per week), samento/banderol/pinella,burbur, LDN, and I've recently started CBD made from hemp bought from Green cross in Vancouver, BC.

I read on another form that the CBD sold at GC is in fact made from industrial hemp and not cannabis and is therefore not useful? If anyone knows about this, please let me know.

Hi Toronto_M, just because the oil is derived from hemp does not necessarily make it bad. The issue is that some companies have been using the industrial hemp waste to make the oil and the oil contained heavy metals, pesticides and sometimes very little CBD.
If you have a reliable source for the oil there's nothing wrong with it.

These are some of the companies the FDA tested oil from: www.fda.gov/NewsEvents/PublicHealthFocus/ucm435591.htm



I have not updated here for a long time so I'm well overdue.

What happened was that when the Bartonella symptoms started to disappear, Babesia symptoms started to appear. So I started treating with CSA formula. I started at a quarter dose and that was fine. When I increased to half dose I had a pretty strong Herxheimer reaction with extreme dizziness as the worst symptom. I then went up to full dose (1.5tbsp according to buhner) and the Herxing continued for more than 6 weeks. Completely zapped of energy, which is why I didn't write anything here.

I'm finally starting to feel better again and I have had some additional improvement as well. Anxiety is much lower, overall fatigue and fogginess is much improved.
Last week I went swimming for the first time in 6 years. The nice thing is that they also have a pool with water from a natural hot spring said to contain lots of magnesium and calcium. It also has a jacuzzi feature, which is nice, very relaxing. I also went out to dinner with a friend for the first time in 3 years.

My only concern at the moment is that I'm running out of cannabis oil and will not be able to make more until January next year. For now I stick with the Hemp oil and Buhners Bartonella and Babesia protocols. I hope that's enough to keep me from going backwards.

For that reason I went to see my LLMD again and he is open to the idea of treating with antibiotics again. I'm thinking of trying Biaxin with Rifampicin as I haven't tried that particual combo. After some time I would also like to add Malarone to address Babesia. What do you guys think about this combo?

Ohyran - thank you for sharing that! I have almost the same story! I've been diagnosed with asthmatic bronchitis caused by mycoplasma. I've started using cannabis oil and having all the same herxemer reactions you described. My question is - it's been 2 years...are you healed? Did cannabis work?

Thank you!

Welcome, blackie95

Do you have Lyme Disease and are thinking of trying CBD oil?

I have seen a bunch of good stuff on this, but I cannot take it. I work for the government, and no matter where I go, legal or not, I cannot use it because of that.

Hello....

I'm new to treating lyme with CBC and was just wondering how you are doing now and if you might enlighten me on which ratio/products you were using?

@ Angie75: please tell us more details what exactly you use, how and what quantities? Cannabis oil doesn't tell me much.

Hello!

So sorry, I thought I would receive a notification for replies to posts! I see where to check the box for that now. I just cycled back to this post to see if anything new came up and saw your reply

Yes, I have Lyme. I have been especially sick for ~4 years since breaking my leg in high school, but have always had strange autoimmune issues. I finally was diagnosed this past winter (December 2016) with a positive Western Blot for Borrelia (18 KD (IGG), 23 KD (IGG), 39 KD (IGG), 41 KD (IGG), 45 KD (IGG), 58 KD (IGG), 41 KD (IGM)). I also have high levels of Epstein Barr. Since January, I have been on an herbal protocol called the Cowden Protocol using some of the herbs listed in this forum (Samento, Pinella, Burbur, etc.). I also take other supplements to support my organs along with that, Vitamin IVs, on a very specific/almost keto diet, acupuncture, CBD oil, all the holistic things you can think of I have found great improvements so far!! I think I have Babesia and Bartonella too, so right now I am trying to make sure I have them so I can work from there. I was able to finish up my undergraduate degree so I have more time to focus on healing now )

Sorry if this is the wrong forum for this! I am still new! To stay relevant, in my own experience with CBD oil I have found it extremely helpful with my sleep. I have always had trouble sleeping since I was born and this helps me maintain a very deep sleep uninterrupted for about 10 hours on average every night . I also use a CBD infused balm and apply it to my areas of pain (joints, hands, liver area, throat). I attended the Chronic Lyme Summit #2 online and one doc suggested applying it directly to arthritic spots, and I think it really works! Does anyone else have experience with applying CBD topically?

Thank you Traveler for being so vocal on all these forums and for your reply; though I have not posted much, I do read regularly and I am very thankful for this strong, resilient and supportive community

Traveler said...
Welcome Blackie!
I'm so glad you found our community!

Do you have Lyme, or believe you have Lyme?

So I'm wondering if you can update the progress with the CBD and Lyme disease?
I'm in that same situation and wondering how the outcome is?

Hi and welcome to our forum Healingforsure,

This is an older post so I'm not sure if the members that posted here will respond or not. If you want to contact OHYRAN you could try emailing them. When I clicked on the screen name it shows an email, just not sure if it is active still.

We encourage all new members to Read our "New to Lyme" start here thread at the top of the page.
It has useful info on detoxing, Lyme, testing and more.

I believe there are other members currently treating with CBD here so you could always start a new post with questions if you like.

Well Take care and I wish you the best of healing, Jo

Bellyfull said...
~Ohyran

.. it is not yet legal in my state... a bill was passed recently... but it is still far from becoming a law (proposed only for medicinal use)...

And since i am taking pain meds ... and subject to random testing... i cannot take the chance.
but i am considering moving to a state where it is legal...

I didnt read the whole thread so I apologize if this has been mentioned but because it is considered a hemp product and not a marijuana product, this seller claims legal in and ships to all states.

I recently ordered CBD 350mg product from Green Roads World.

I have no experience with the product as of yet. Although I heard good things about Charlottes Web for chronic pain I saw that the seller I mentioned puts their oil in a glycerin base so I could put in in my electronic cigarette vaporizer to use it.

Since I vape regularly anyway this is attractive to me. What is encouraging is that I was able to heal my lungs and I never gave up vaping. I had to increase glycerin and reduce glycol to almost none or I would congest by the end of the day.

Vaping is not without its risks but I am a former smoker and it is IMHO far superior and does less damage if any and alot easier to quit than smoking. I have gone without and I dont become irritable as I did when I quit cigarettes.

In a moldy environment I often wonder if coating my lungs with glycerin was wise as it may have gave the mold a perfect growth medium. Something to keep in mind as I am not a proponent for use of nicotine and glycerin.