I just found out that my 12 yr old daughter has Lyme induced POTS...HELP!

My daughter has been struggling all her life to get out of bed in the morning just so I could get her to school. It was getting so bad that she just "FLOPS" on the floor. The heat is making it extremely hard for her to do anything her llnd has her on HIMALAYAN CRYSTAL SALT. I bought the empty capsules so i can fill them with the salt. I give her 10 caps with her breakfast. If i give them to her with just water, she gets burning in her tummy and very nauseous. She walks around the house bent over constantly trying to keep her head lower than her heart because it apparently helps her get around. Does anyone have this problem and if so what do you do to keep POTS under control? Im scared I might have to home school her for grade 8.

So when did you find out that her POTS is Lyme induced? The only thing that really will help with the POTS when it's Lyme induced is Lyme treatment - and salt won't cure Lyme. She really needs to be started on a protocol as soon as possible.

Squash_the_Pumpkin,

I'm sorry to hear your daughter is having trouble with POTS. Of all the problems Lyme caused, I would say POTS was the very worst for me to handle.

One thing that was an absolute godsend for my symptoms was the prescription Midodrine. I cannot recommend this highly enough. I took my first dose and felt relief the same day. My POTS caused a constant headache, daily migraines, lightheadedness upon standing, and I would hyperventilate and eventually black out if I did not sit down.

I would also recommend getting an oxygen concentrator. They are pricey, but it was worth every penny. When my stomach is too sensitive for midodrine I breathe in 2PPM's of oxygen for ten minutes every hour. I have found this to be extremely helpful as well.