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Introducing PURE NYSTATIN POWDER to MDs one infection at a time...

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Posted 7/17/2015 4:28 PM (GMT 0)
I had an interesting experience this week…

My parents were visiting. My mom was complaining of a sore throat she'd had since 3 days before they arrived. She had some penicillin on hand and started taking it, thinking it might be strep. Sore throat kept getting worse… She does NOT take advice well and has historically been suspicious of my frustrations with western medicine (she was cultured to see MDs as all-knowing Gods and who the hell am I to question…) so I had to be VERY careful about how I suggested it might be yeast/fungal overgrowth.

Her last day, she wanted to go to ER to get meds for the trip home and I took her to Urgent Care. The MD, who was probably retired and working there part time and was very sweet and chatty, also suspected strep. Also commented on how many meds she's on (which I have also questioned…) But when I sensed an "opening" I casually mentioned to the MD that I wondered if she might have a fungal infection like I did, since the abx weren't effective… and told my story of the 13 mos. w/ chronic sinusitis and bronchitis and in/out of Urgent Care & ER and multiple rounds of various abx and steroids, only to get much worse… and when I started treating w/ antifungals I had relief within a matter of days.

Anyway, he actually listened. So we started talking about yeast/fungus (I am very careful not to call it "candida" because there are many strains of yeast/fungus and candida is controversial amongst western medicine, and ER docs are PARTICULARLY closed-minded. He proceeded to declare "candida doesn't exist" BUT started talking about prescribing the b.s. Nystatin liquid w/ all the sugar and fillers…

But then, he actually listened when I suggested the pure powder, etc. I was SHOCKED. And happy. And she left w/ a script for the powder. When we got to the pharmacist, he mentioned that when the MD called in the Rx for the powder, he told the pharmacist to "give the mother the same powder that the pharmacist gave the daughter (me)!"

A huge win. She was so resistant to the idea that it was yeast/fungal and she basically told me I had no idea what I was talking about. Yet she walked out of there w/ a script and the MD will probably describe the powder to the next patient and tell them which pharmacist carries it.

Small steps…

-p
Posted 7/17/2015 5:38 PM (GMT 0)
That's awesome P. I know what you mean about that generation - and the Docs being "Gods".
Good for you to manage to 'work it' so the Dr. would prescribe...it's like when I go in to see my GP, I think ahead of time how I'm going to request something...without her resisiting...you know...massage her first....right?
Posted 7/17/2015 5:38 PM (GMT 0)
Wow, that is great P! Good job. So how is your Mom now?
Posted 7/17/2015 6:04 PM (GMT 0)
Girlie… right. It's exhausting and stressful at times, though, when you're already overwhelmed with all the other information and communication you're supposed to share. To also have to "manage egos" is ridiculous but a fact of life.

I had prepared to just "go with the flow" if I got resistance and then give her my own powder when we got home… but that would have also required a LOT of effort trying to talk her into taking it. But since he backed up the y/f theory almost immediately, I didn't have to. I'm glad because I'm already worn out from the week. ;)

Luckily, future generations of MDs are slowly adapting to the ever-changing world out there. By the time I die, they might be slightly more (self)educated.

DB*
Thank you for asking—she is doing a little better already. Unfortunately, she is a tough case. She is an addict (alcohol and pain killers), has many issues w/ bad discs in her back and has several other medical conditions she's battling (some are actually the result of her addictions). So, she's "sober" maybe 4 hrs of the day. And when she's sober, she's in a lot of pain and that can make a person miserable and alter their entire disposition and personality (we've all been there).

It's tough to get her to do anything and she worships the ground her PCP walks on… she also is the kind of person who is desperate to be well-liked and thinks she has a good relationship w/ her "genius" MD, but it's actually a very co-dependent relationship. When your MD doesn't know about your addictions, there's a problem…

She's also not going to be a good example for the Nystatin powder tx because there is no way on earth she is going to follow a strict candida diet or stop drinking, detox, etc. Obviously the alcohol and y/f overgrowth is a never-ending cycle. So, my hope is that maybe:
- all the Nystatin will reduce her cravings for the alcohol (which is a very real part of alcohol addiction)
- she'll start feeling OTHER relief from the Nystatin for sx she may not have realized were developing and maybe I can convince her how damaging the drinking is—or at least have part of that conversation.
- and now that I've had this very small victory, she'll listen a little more about seeking alternative tx for her back than the pain killers, and that we can ratchet back slowly from all the addiction cycles.

Sorry —you didn't ask to hear all this! It's just a very worrisome situation. Any suggestions for alternative back tx are welcome.

-p
Posted 7/17/2015 6:55 PM (GMT 0)
Wow, how hard on you as the daughter. I am sorry you are in this position. You are so extremely knowledgeable and could help her so much if she would listen to you. That is a frustrating position to be in. Sorry! I was/am there with my Son. He is in this mess with his stomach now. He would not be there if he would have listened to me from the start!

By the way. I don't think he has Candida, thanks goodness. I have taken him to my TCM and the other practitioner I go to. He is on a bunch of supplements plus probiotic and has been doing better. His stomach has felt good for over 2 weeks now. His lasting sx is sleep and even that is improving. I hope to have him better by the time school starts. He will be in 10th grade. He is on the same diet as me and that is a challenge. But he is getting better after a year. Finally. Hopefully he can start putting on some weight now.
Posted 7/17/2015 7:18 PM (GMT 0)
Good for your son! That's great that he has embraced a diet. So difficult for young people. Although they are much more "health aware" than we were at their age, because they have to be. The world has changed. What did they dx him with?

-p
Posted 7/21/2015 4:27 PM (GMT 0)
P, thanks for sharing. I have fired many doctors in my time and it's usually because they think the letters after their name are GOD instead of MD.

NyStatin Powder - another thing to add to the list.

My Mom is the same way about her doctor is God. She has severe COPD and could live another year or another 5 years, but the skilled nursing facility she is in had her code listed as do everything including put her on a ventilator. If she goes on a ventilator she will be on it as long as the rest of her body lasts. I had to call her doctor and ask him to have the end of life talk with her. I had already said everything he said, but I'm not an MD.

So finally now her code is fixed so they won't do CPR or intubation. The doctor also told me that it does her no good to go to the hospital. So 10 days or so ago, she had an attack of feeling like she was suffocating and wanted to go to the hospital. I had to say no and told the nurse to get the doctor to prescribe morphine. It takes away the suffocating feeling. A half hour later she felt better and I talked to her on the phone for 3 hrs. Which is a miracle since she is almost completely deaf.

Now she is getting the morphine first thing in the morning, because mornings are hardest. Getting up, getting dressed and going to the bathroom take more effort than you would think. Now by starting her day right she has better day all around. I guess I made the nursing staff mad because it was a Friday evening and they had to go through a lot of effort to get the morphine, but too bad. It's their job. It would have been easier for them to send her to the hospital which is what they wanted but long term it's actually better for them to give her the morphine.

No doctor knows everything and its not possible for them to. P, you know more about that "medicine" than the doctor did because you can limit the things you learn about to exactly what you need and your study is much deeper.

It's always nice when you meet a doctor who will let you teach them.
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