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Back on antibiotics - your opinions?

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Posted 7/26/2015 10:57 PM (GMT 0)
So, because of liver enzymes continuing to climb, I stopped antibiotics end of April.
After 2 1/2 months off, they have stabilized...so was prescribed minocycline (have not been on it before).

100 mg for a week and then 200 mg after.

Well, I seem to have some new symptoms. Should this still be happening after being on antibiotics (you can see my timeline of meds in my signature) for almost 10 months.

I started the 100 mg dose a week ago Thursday...and went on a mini vacation on Monday - and felt lousy Monday, Tuesday,Wednesday and Thursday (the day we returned)
Had a good day Friday - quite a good day.

Added the other 100 mg to equal 200 mg on Friday.

Today I have sore teeth - on my left side - where most of my issues are. Is it possible becasue of the ability for mino to penetrate the blood brain barrier that it is a cranial nerve herx? Would that affect my teeth?

Also, have left hip pain - kind of around the side and back. And am generally sore all over my body.

So, I'm thinking it's a herx...but after almost 10 months on antibiotics...shouldn't the herxes be getting less severe? Did the 2 1/2 month break set me back that much?

Or, is bart coming out more???

Okay...I know you don't have all the answers...just asking for some support...as I once again question it all....
cry
Posted 7/26/2015 11:32 PM (GMT 0)
I think it's a herx. While that sucks it also shows the abx's doing it's job.

The apo-Hepat helped with your Liver enzymes, right? That brand or line, Pekena has other products that I have found very helpful with detoxing and reducing the effects of herxing.

At least in my case treatment has been a no pain no gain situation. The tougher the protocol the better I feel. That's not to say there are not days where I sit and just tap my foot praying the day will pass faster so I can make it to the next day and so on.

I think most, if not all of us question it all frequently. Is all of this worth it? That's the frustration of the lack of an easy fix and the endless ups and downs of this disease taking over our thoughts.
Posted 7/27/2015 1:13 AM (GMT 0)
It was stopping the antibiotics that allowed my liver enzymes to normalize.
I only just started the apo-Hepat - Dr. C sent it to me after my July appt. and I had my blood work done soon after.

I just expected there to be more good days - but maybe that will happen with the Mino - maybe it's the one I needed - considering I do have neuro lyme.
Posted 7/27/2015 1:35 AM (GMT 0)
My herxes are more severe now too girlie. I also stopped in April until now. I have the exact same questions.

I was never on mino all by itself, but when it was part of my treatment I was sick as a dog.

Mino seems like a slaughtering drug. It's probably doing its job and bugs are dying and that's why you feel so awful.
Posted 7/27/2015 1:38 AM (GMT 0)
Well, I'm fine if it's slaughtering the bugs - as long as I come out the other side feeling better.

Feels like forever....just sayin'
Posted 7/27/2015 1:53 AM (GMT 0)
mino doesn't do anything for me anymore... Maybe because I was on it for like 18 months. I may just have a couple lyme germs left in my brain now probably somewhere around 4 or 5. But I think i have a few thousand bartonella s left hiding somewhere in my cardiovascular system.

I got like one tiny tingle right on the top of my head right now. And I had a headache that felt like a very mild fire like headache... Now it's gone. But i just took my abx, clarithromycin maybe working it's
magic.

Girlie- Lyme also gets into the teeth, and each tooth has a nerve and blood supply, so it's likely a tooth herx. I'm not sure how you might handle a tooth herx but just hang in there. Mino's good at getting on teeth which is one reason I had to get a tooth cleaning every 4 months when I was on it at the 200 mg a day level.

I think bart can also have the hip aches and such.
Posted 7/27/2015 1:59 AM (GMT 0)
WOW.

I have been wondering why my teeth ache so much with a weather change my whole adult life and this helps put it into perspective. Thank you guys.

I wonder if oil pulling will help clean out Lyme from the teeth?

Dan
Posted 7/27/2015 2:05 AM (GMT 0)
Oh great - a tooth herx -

Nothing surprises me anymore.


Although something weird happened to me a few hours ago when I was downtown - I got a drink of water with crushed ice in it at a fast food place (hubby wanted an ice cream cone) - I was having one of my hot flash/sweating events and we got back into the car and I took a big drink through the straw and this sudden pain came over me - hard to explain - it was in my chest area but radiated toward my back - it lasted about 2 or 3 minutes and then subsided.

It freaked me out - could it have been one of those "ice cream headaches" people talk about - except in my esophagus? I've never had one before but my husband and son get them quite a bit.
Posted 7/27/2015 3:05 AM (GMT 0)
Girlie when I stopped anx in Oct and then he added Rifampin in Feb, I herxed my butt off so yes, you are herxing and killing more bugs. Those things are everywhere hiding out.

I think the break just allowed the ones in hiding to come back out, I think that might be the next anx my doc puts me on but I am thinking about stopping all treatment but bee venom therapy, it is doing such an awesome job and the energy I have is great.
Posted 7/27/2015 3:13 AM (GMT 0)
Revive - so are you just doing the bee venom or are you also on herbals?

You stopped the Rifampin didn't you?
Posted 7/27/2015 11:52 AM (GMT 0)
Hi Girlie,

You need to do what you feel is right for you.. As far as sore teeth, the "cycline" family which also includes doxycycline is known for weakening the gums and possibly making one's teeth a blackish or grayish color. Years ago (back in year 2000) the few months I took doxycycline my natural teeth (which I no longer have) turned black and I was very surprised. As soon as I stopped the Doxy my teeth returned back to it's original color...

I am guessing (I stress the word guess) that the Doxy weakened my immune system which caused this...

Good luck to you!
Denise
Posted 7/27/2015 12:27 PM (GMT 0)
Sorry you're dealing with this stuff, Girlie! (((hugs)))

I also vote teeth herx - I've had it.

The pain after the icy drink could have very well been a "typical" reaction to the icy-ness and not necessarily Lyme.

All the rest sounds like a herx - blech.

Hope it passes soon and you get to feeling better!!!
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